Forum Discussion
arpie
3 years agoMember
So sorry to see you join our exclusive club @smlsml - the one that none of us ever wanted to join! :(
It sounds like your team has it all organised .... Once you've finished your Rads and seen the Medical Onc re chemo & AIs, they will then arrange for you to see EACH of the team, once a year for at least 5 years (longer for your Onc & Rad Onc) spaced about 3-4 months apart, so that you see 'someone' on a regular basis for checkups and for support as well.
Yeah - They don't normally do PET/CT scans unless there are other concerns raised by you - tho like you,I believe it would make sense to have one done 'early on' - as a 'base line' for comparison over the next 5-10 years ..... for ALL patients who've been diagnosed with any type of cancer.
Most Rads lasts for about 4 weeks, having treatment each day, Mon-Fri. If you live in a regional/rural area and have to travel for treatment, some hospitals have a 'lodge' attached, where you can stay at a reduced rate, to save you having to travel big distances every day.
Cancer Council has a bunch of Q&A on radiation here - check it out & write down any specific questions you'd like to ask. But feel free to put any queries on your thread here & we'll do our best to answer it for you. xx
https://www.cancercouncil.com.au/cancer-information/cancer-treatment/radiation-therapy/common-questions/
Where abouts are you? If you add your 'general' location to your profile, we may have members nearby who you may be able to meet up with from time to time .....
It was my GP who found mine, 4 months after a clear mammogram! I had a lumpectomy, Rads and now Tabs (lucky to skip chemo) & have just had my 5th anniversary since surgery ... I see my surgeon on Fri for my 'sign off' - hopefully not needing to see him again! Which type of BC was yours? Mine was Lobular, which is famous for 'hiding unseen' inside of Dense Breast Tissue .... have they advised your of your Breast Density? Maybe ask them - it is good to know!
Jump onto this thread & have a read - it has a lot of info on 'the site' as well as a bunch of 'tick sheets' (the link is down the bottom) that you can 'self assess' yourself in the lead up to your appointments with the team. Do 2 copies of any that you choose to use - give one to your Onc/Surgeon & tick them off as they address each query. Also, consider recording your appointments on your phone, as it is easy to 'miss bits' at the time ... you can go over it again later on, if you need to.
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
Take care, and all the best for your Rads appointment tomorrow & ongoing treatment xx
It sounds like your team has it all organised .... Once you've finished your Rads and seen the Medical Onc re chemo & AIs, they will then arrange for you to see EACH of the team, once a year for at least 5 years (longer for your Onc & Rad Onc) spaced about 3-4 months apart, so that you see 'someone' on a regular basis for checkups and for support as well.
Yeah - They don't normally do PET/CT scans unless there are other concerns raised by you - tho like you,I believe it would make sense to have one done 'early on' - as a 'base line' for comparison over the next 5-10 years ..... for ALL patients who've been diagnosed with any type of cancer.
Most Rads lasts for about 4 weeks, having treatment each day, Mon-Fri. If you live in a regional/rural area and have to travel for treatment, some hospitals have a 'lodge' attached, where you can stay at a reduced rate, to save you having to travel big distances every day.
Cancer Council has a bunch of Q&A on radiation here - check it out & write down any specific questions you'd like to ask. But feel free to put any queries on your thread here & we'll do our best to answer it for you. xx
https://www.cancercouncil.com.au/cancer-information/cancer-treatment/radiation-therapy/common-questions/
Where abouts are you? If you add your 'general' location to your profile, we may have members nearby who you may be able to meet up with from time to time .....
It was my GP who found mine, 4 months after a clear mammogram! I had a lumpectomy, Rads and now Tabs (lucky to skip chemo) & have just had my 5th anniversary since surgery ... I see my surgeon on Fri for my 'sign off' - hopefully not needing to see him again! Which type of BC was yours? Mine was Lobular, which is famous for 'hiding unseen' inside of Dense Breast Tissue .... have they advised your of your Breast Density? Maybe ask them - it is good to know!
Jump onto this thread & have a read - it has a lot of info on 'the site' as well as a bunch of 'tick sheets' (the link is down the bottom) that you can 'self assess' yourself in the lead up to your appointments with the team. Do 2 copies of any that you choose to use - give one to your Onc/Surgeon & tick them off as they address each query. Also, consider recording your appointments on your phone, as it is easy to 'miss bits' at the time ... you can go over it again later on, if you need to.
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
Take care, and all the best for your Rads appointment tomorrow & ongoing treatment xx