Out of the blue!!
Hi everyone I'm 60 and very recently been diagnosed with TNBC stage 2, routine screening. Everything is happening so quickly!!! Biopsy 5th Oct, results 14th. High contrast mammogram 16th, PET scan 21st Oct. I saw my breast surgeon on 28th, Cancer hasn't spread, small tumor and one lymph node. Then 30th I saw medical oncologist, discussed chemo and immunotherapy, side effects everything. Prognosis is positive, surgery after Chemo, dependant on Brca blood tests, then radiotherapy. Im still in shock, it's a lot to take in!! I have good days then bad. I feel numb, sad, angry and sorry for myself, is that normal? My chemo should start in the next few weeks. I'm worried about how I'll cope. My husband broke his leg in August, so he can't drive, he's on crutches, I'm his carer! What should I expect from the chemo? Can I drive, can I still work? I apologise for all the questions, thanks in advance x DB141ViewsSign in to react to this post8Comments
A little vanity…
Hey chat,first time query having just been diagnosed, starting chemo 11/08. If anyone has experience with having created their eyebrows before losing them, that would be appreciated. Also, I read in the TCHP side effects document, not to keep ‘fake’ nails, however, my oncologist said ‘good, keep your acrylics for nails protection’ , if anyone can give me your feedback, I’d appreciate it, thankyou.150ViewsSign in to react to this post1Comment
Telling my toddler and child I have breast cancer
Hi All, Last month I was diagnosed with IDC and 2 weeks ago I had a single mastectomy. I have a 3 and 5 yr old who I am struggling on how to discuss this with them. So far for all the surgeries and appointments we have told them 'Mummy has a sore booby' which has been enough for them. However I am likely to need chemotherapy and I with the likelyhood of hair loss I will need tell them more about what is going on. I have done reading online into how to do this however it seems to all be directed at older age groups. My children I dont think would understand cancer or even cells. We tell them to brush their teeth so they doing get bugs eating their teeth so I am worried to say I have a bug in my booby to them and scare them of bugs! Any advice or suggestions would be greatly appreciated. I was wondering if anyone had found a good little video or book to help them understand what cancer is?157ViewsSign in to react to this post3Comments
Emotional support
I was diagnosed in April and have had a lumpectomy. Was going to be radiation next but my Ki67 levels are a bit high so having Endo predict test done. Oncologists are saying possibly chemo now. I am very anxious. Don't have much support. One daughter at home is autistic and the other has gone to uni so not home much. Partner and I separated so living separated under one roof which is so hard. Just need some support.172ViewsSign in to react to this post1Comment
Newly Diagnosed
Hi My name is Victoria, I'm 42 years old and I have been newly (well, 5.5 weeks ago) diagnosed with breast cancer. It is is located underneath the nipple on my left breast and it is invasive ductal carcinoma, ER+, PR- HER2-, Stage Two. (Sorry if I don't have all the details but that is what I have interpreted it as). The tumor is 2.5 cm. I have seen my surgeon twice and I will be having a single mastectomy next week some time followed by 6 months of chemotherapy. We had discussed a lumpectomy so he could try and save the nipple but I opted for the mastectomy, just for a clean break. I'm dealing with it okay- I'm a bit concerned I haven't cried yet- and everyone else around me is very supportive and very shocked. I just wanted to introduce myself and hopefully be able to contribute something to these groups. Thank you Victoria417ViewsSign in to react to this post8CommentsYoung and overwhelmed
Hi all, I'm 30 years old, with the BRCA 2 gene mutation, and was diagnosed after my first high-risk screening MRI found a tumour - mixed lobular and ductal invasive carcinoma, stage 2, grade 2, hormone receptor positive, HER2 negative. Because of my BRCA status, I had a double mastectomy in February 2026. An 11mm tumor was removed alongside a 50mm DCIS component that was associated with the invasive tumor and adjacent tissue was removed from my left breast, but my right breast was all clear. The sentinel lymph node biopsy showed a 1mm micrometastases in one node (of two). Initially, the plan was just a double mastectomy followed by endocrine therapy, but the option of chemo has been put on the table post-surgery (and even the choice of two different regimes). My oncologist's justification was "we want to give you every option available because you're young" but it feels like I've just been given an impossible decision with no clear better option. I'm also having a lot of anxiety around chemo and the implications for fertility as I am yet to have children (I was able to freeze a small number of eggs pre-surgery but I would have to self-fund any further cycles). I'm not entirely sure why I'm posting this but maybe I'm just hoping someone will have had a similar experience (especially if you were diagnosed young or before having kids!) or have some words of advice because I'm feeling overwhelmed by all of the choices I'm having to make.158ViewsSign in to react to this post2Comments
Molecular Profiling? Chemo?
Hi All, I'm recently diagnosed and my pathology reports from recent lumpectomy shows ER+, Grade 3, Ki67 20%, LVI present. All 6 Lymph nodes clear. I'm 47, fit, strong and healthy :) It's hard to believe this is happening in my body while I feel so normal. Apart from cording from my sentinel node biopsy! My specialists are recommending numerous treatment options, including precautionary chemo for 3 months. They've also mentioned Molecular profiling to see if my cells would respond to chemo or not. Also radiation and hormone blockers. I'm seriously considering doing molecular profiling so my questions are: Has anyone here made the financial investment to do this? How did it affect your outcome and final treatment decisions? Looking forward to hearing.176ViewsSign in to react to this post3Comments
? Chemotherapy
Please HELP!! Hi everyone, i am 45 years old and i have recently been diagnosed with; ER positive Ki-67 positive Tumour size 12mm Toumour has been surgically removed 6 weeks ago with clear margins from right breast. Tumour grade 3 2 x Negative nodes I was told that i need radiation therapy and endocrine therapy. But i was given the option to decide if i want to have chemo as well! I am really struggling with making this decision whether i should have chemotherapy or not. Or do i just do Radiation and endocrine therapy. I was wandering if anyone has been in similar situation as me and how did they decide on treatment plan?652ViewsSign in to react to this post12Comments
Early HER2+
I understand what Early is and I am grateful that I found something at the same time as my breastscreen mammogram and it is not in lymph glands, PET was also clear but they need a new name for Early. My treatment is starting 9/10 and will be Chemo (abraxane) & hercepton then surgery and radiation. I thought I had choice after doing a lot of research on trusted websites, listening to great podcasts and asking questions of my MDT but although they say I do they highly recommend the above plan. I am resolved to losing my hair and looking forward to the freedom no hair should bring me, I am self employed so can regulate my hours, I am active and look forward to keeping that going, as I know how good it makes me feel and again research shows, it helps us through chemo and everything else. What I struggle with is seeing others reactions to the news and seeing my husband frustrated by the time it takes to have tests and get things started. I would delay treatment even longer if I could but know that is not a good decision as the HER2+ is a grade 3. With a name like Early people seem to think 🤔 I will have an easy run, and I certainly hope I do but have read enough to know that I may not. People also say oh that’s good it’s not urgent then and not that bad. For someone who limits toxins as much as one can this is testing my self control to the limits and then having people say and think 🤔 it is going to be an easy road does not sit well with me. I am babbling and that is certainly something that has happened since diagnosis. I spent 24 hours in denial and 24 hours in why and have decided to tell only positive supportive people going forward and focus on things I can control and leave the rest to my team. thankyou for letting me rant and thankyou for all your encouraging posts and links which I have loved. Let’s kick this tumours out of here x467ViewsSign in to react to this post2CommentsResources for my kids
Hi everyone 👋 I'm 34 years old and recently diagnosed. About to start chemotherapy and want to find some books or resources to help me talk to my young kids about it when I start. I think my 4 year old daughter is going to be particularly shaken by the hair loss and visible impacts of chemo. Any recommendations?124ViewsSign in to react to this post1Comment
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