Forum Discussion

Clairebear7's avatar
4 years ago

Newbie triple negative

Hi everyone

I was diagnosed in December with triple negative bc. I’ve been visiting this wonderful forum probably daily, but have only now had the courage to join.  I’m currently having fortnightly dose dense ac chemo, about to have my third round and am feeling really anxious about it. I found the second round a lot more challenging than the first and am worried about how the third round will go - and just looking for some support I guess. I don’t really have a question just wanted to join this lovely supportive network and say hi. 

  • I am 9yrs since diagnosis with No evidence of disease (NED) 
    take it one day at a time with treatment. 
  • hi Clairebear7 
    we have a facebook group for TNBC https://www.facebook.com/groups/1166665270079659
  • Thank you everyone for your lovely replies. I’m doing ok, tomorrow is the dreaded round 3, but today I feel good and have the public holiday to spend with my family, so I’m going to try to enjoy it as much as I can. 

    My kids start back at school on Monday and I’m a bit sad that I may not feel well enough to take them on their first day. But it is what it is.

    I definitely have good days, started feeling human again around day 8/9 after round 2! Will keep that in mind when I'm in the trenches. It’s so nice to have some lovely ladies who understand, that I can vent to. 
    Thank you for taking the time to reply :)
  • Hey darl 🙂. Nice of you to say hi. A lot of us were stalkers before we posted 😄. 
    Hope you’re doing as well as can be, considering the circumstances. Keep in touch on here when you need to. 
  • Hi @Clairebear7 so great you posted. I am sorry you find yourself here but you will find a lot of support from those of us who have walked this path. I remember reading absolutely every post in here before I built the courage up to post myself. You are never alone, we understand and there may come a time where you will also help someone who posts for the first time. 🌸 The dose dense chemo is challenging, I really had to do a lot of self talk and get in the zone. I imagined the chemo as liquid gold and what I needed to destroy any crappy cells. The chemo also builds up as you go so it is normal to feel more tired as you go. I would literally randomly lie down and sleep. One thing I found helpful was a calendar that I put a great big cross through after every round. I did 4 x fortnightly and then did 12 weekly. It’s also normal to feel anxious because it all feels so strange. Be kind to yourself. Don’t get ahead of yourself, just focus on today. Have you found that you have some good days in the fortnight? When you feel ok, do something you love - coffee? Read? See a friend? If you can try to go for a stroll. If you need anything, jump on here. On my first post, I was told that I would look back on my chemo and would most likely forget a lot of it - I found that hard to believe at the time, but 2 years on, I can say that advice was so true. This time now will pass. Another tip I was given was to reframe how you are thinking, rather than worry about things in the future, consciously say, at this time. Take care, you can do this. 🌸 
  • Welcome Clairebear7 to club noone wants to join.   Wishing you well with your chemo treatment.    It took me a long time to post when I was first diagnosed but I found this forum very helpful.   Cheers