Forum Discussion
Mastectomy 42 triple negative diagnosis
Hi everyone
I was diagnosed on the 3rd of August I live in the south west of WA.First up I think you ladies are amazing and so very supportive.
I am a 42 yr old sole parent with a 15 and 18 yr old son,previously always a working mumma.
My eldest son has Bi Polar type 1 and my my 21 yr marriage broke down in Oct 2016,life has been pretty tough.
But I have previously been able to muster a lot of strength and courage and plan on doing this again.
I have just had a right mastectomy and auxiliary node clearance last week.I have the triple negative factor and I am desperately wanting to connect with others who have this diagnosis.I have infiltrate lobular carcinoma original tumour was approximately 57mm’s but has turned out to be an odd shape and had a second adjoining tumour very similar size immediately behind the first one.
My mammogram was clear it was picked up in the breast ultrasound and then in more detail by the MRI.
My only symptom was a slightly inverted right nipple.
I am waiting for my results for
lymph node involvement until the 1 St October and treatment plan. I have an extremely supportive mother who lost her youngest sister to breast cancer at 40 yrs old 22 years ago.
I have a wonderful group of friends,while I still struggle with the diagnosis I am committed to treatment and wellbeing and where ever possible supporting others.
Thankyou in advance for reading my post I believe knowledge is power and support from those within this circle is so very important.Which in turn I would alsways offer :)
I was diagnosed on the 3rd of August I live in the south west of WA.First up I think you ladies are amazing and so very supportive.
I am a 42 yr old sole parent with a 15 and 18 yr old son,previously always a working mumma.
My eldest son has Bi Polar type 1 and my my 21 yr marriage broke down in Oct 2016,life has been pretty tough.
But I have previously been able to muster a lot of strength and courage and plan on doing this again.
I have just had a right mastectomy and auxiliary node clearance last week.I have the triple negative factor and I am desperately wanting to connect with others who have this diagnosis.I have infiltrate lobular carcinoma original tumour was approximately 57mm’s but has turned out to be an odd shape and had a second adjoining tumour very similar size immediately behind the first one.
My mammogram was clear it was picked up in the breast ultrasound and then in more detail by the MRI.
My only symptom was a slightly inverted right nipple.
I am waiting for my results for
lymph node involvement until the 1 St October and treatment plan. I have an extremely supportive mother who lost her youngest sister to breast cancer at 40 yrs old 22 years ago.
I have a wonderful group of friends,while I still struggle with the diagnosis I am committed to treatment and wellbeing and where ever possible supporting others.
Thankyou in advance for reading my post I believe knowledge is power and support from those within this circle is so very important.Which in turn I would alsways offer :)
43 Replies
- Good on you for reaching out @Shellbelle_75. People like @JJ70 make all this more bearable. You can talk about whatever you are feeling & there’s always someone willing to listen & chat. Take care xx
- I'm not Triple Neg but had ILC. No symptoms just picked up in a screening mammogram. 4.5mm with 3 nodes so have had mastectomy, axillary dissection, chemo and rads - now on Letrozole. It's a shock to the system, isn't it? Anyway, welcome to this site!
- Thankyou @JJ70 @Sister and @Doodoo @iserbrown @Mira I am grateful for your time and advice
it is extremely overwhelming and the level of information to process is massive !!! I get my two drains out tomorrow which is great as I joke currently that I lost a boob and grew a set of balls 🤣
It really helps to chat with others who get it on here so Thankyou x - Hi @Shellbelle_75I've also recently been diagnosed with triple negative, mine is ductal. I was completely terrified and overwhelmed to begin with but after seeing my Oncologist and starting chemo I'm feeling much more at ease. I have learned that while some of the other targeted treatments won't work for us we often respond really well to chemo.Good luck with the results next week. The waiting can be painful but you'll have a plan in place soon enough and you'll feel so much better.
- Thankyou @Mantis I do believe you I think I just need to feel some of my ducks are lined up in a row.
the feeling of why me is still strong but also I just want to get rid of it out of my body as I have so very much to live for Hello and welcome@Shellbelle_75 The information below is what @SoldierCrab provides to new members to our online community.
Navigating the online community formerly the what and how thread.
Breast Care Nurses
https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx
My Journey Kits and other resources.
https://www.bcna.org.au/resources/
BCNA Helpline 1800 500 258
If you have any questions, concerns or require any further information or support please call 1800 500 258. BCNA’s helpline will now be open from 9am-6pm Monday to Thursday and 9am to 5pm Fridays.
How to understand your pathology reports
https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/breast-cancer-pathology.html
Please do not hesitate to contact the BCNA Helpline for support and to help you navigate all the information.- Thankyou @Riki_BCNA
- hi there @Shellbelle_75 i was diagnosed aged 43 TNBC may 2016 , left boob grade 3 stage 2a (3cm tumor), had left mastectomy no lymph nodes involved scans all clear, i had 8 rounds of chemo - 4 AC and 4 paclitaxol 2 weeks apart for 16 weeks,no family history and negative for the gene test (you will probably qualify for this too as you are under 50 and have TNBC) then 6 months later i had a preventative mastectomy of the right boob (my choice) and Im doing great, Im happy to chat anytime, just PM me if you like or I can see the others in our club have been tagged too @Spiv1803 (im pretty sure thats her BCNA name, I only know her by her actual name now lol) is in WA also Im not near you (Qld) but sounds like @JJ70 is close by for a chat, I was sorry to hear about the other stuff going on in your life, there's never a "right time" for any shitty things that happen in life hey, rest assured you will get plenty of support on here with the crew, keep us posted on how you go @SoldierCrab is bloody awesome for advice with all your questions. big hug. margie xx
- @onemargie so good to hear from you Thankyou,the TNBC diagnosis has scared the living crap out of me,I am really trying to stay focused and positive and not let fear consume me as at times it’s suffocating
my surgeons appointment is next Monday re lymph node involvement
And treatment etc i have been told my tumour is Grade 2 but I don’t have a stage yet.
Thanks for the advice and support I really really appreciate it - Hi Shellbelle_75
I am now 6yrs out from diagnosis I had bilateral mastectomy and lymph clearance. I had node involvement and did 9mths of chemos TAC, then AC then paxitaxel then another due to neuropathy. then rads
I am cancer free and reclaiming life.
I get the being strong single parent since '99 with 3 still at home.
2 with autism.
Take it one day at time and dont google.
soldiercrab
