Newly diagnosed and waiting for appt. breast becoming more tender as I wait :-(
Hi there, I feel I’m in the difficult position of waiting four weeks between diagnosis and first surgeon appointment. Invasive lobular ER+ PR + HER2 - lump that I noticed in right breast a month ago. I’ve had the MRI done privately this week so the information is ready at that appointment. Trouble is the breast and armpit just feels increasingly niggly and slightly tender while I wait. I’m worried that it’s just growing/spreading as I wait. I don’t have private insurance, do have savings. but wanted to hold out for public and it being a more multi-disciplinary team. I’m really struggling wondering if I should have gone private and quick :-( Thank you x
Working while waiting for surgery
Hi all, was diagnosed 3 weeks ago today with early stage and was told I’d be having surgery pretty quickly. Ended up having to have more tests to eliminate issues in the other side and thankfully that all seems to be clear. But that has meant I still don’t have a date for surgery (I should find out tomorrow hopefully). My question is about how you’ve all kept sane during this ‘limbo’ period. My emotions and anxiety are all over the place, I can’t really focus or concentrate so I’ve taken a fair few days off work. I’m lucky enough that I can work from home (when I’m up to it) and my boss is awesome but I weirdly feel guilty about taking time off as though I should be managing this better. I’m conscious my surgery might not be for another few weeks so feel I need to work out better ways to handle this. Any inputs welcome! Thanks.New diagnosis triple negative BC
Hi all, I'm having a bit of difficulty reaching out to talk to anyone going through a similar experience - I'm 27 and just diagnosed with triple BC. I've joined the young persons group and awaiting to join triple negative group. I'm in the limbo period of waiting to be referred to oncologist and awaiting appt with the surgeon, so I really don't know anything yet. I suppose I'm just wanting reassurance and support from someone that has go e through a similar experience or maybe if anyone has any recommendations for other places I can go to for support, I've contacted a breast cancer nurse, but I haven't heard back yet. Thank you!
Overwhelmed new diagnosis
Just trying to cope with this whirlwind of a ride. Two weeks ago I was happily holidaying on Hamilton Island (the first holiday in three years) and this week I'm isolating at home after a positive Covid test, only to be told that I have Breast Cancer. Surely this week could not get any worse. The surgery, that was scheduled on Tuesday, has been postponed for three weeks due to the Covid, with chemo starting after that. All this, and not to be able to even get a hug from anyone, makes this journey feel so lonely and isolating. Being at home with time to spare is not helpful. Especially now that the Covid symptoms have abated, I don't even have a reason to try to sleep it all away (even for a short time, to not live with the constant thoughts, is reprieve). It's a lot to take in. Oh, and I forgot to also mention, that my surgeon is retiring this week and now I am being "handed over" to a new surgeon, which, of course, I am unable to meet with yet - due again to this horrid Covid. So it's all a dreadful waiting game.
How did you find out about BCNA?
Hello ladies! I hope everyone has been keeping safe and healthy 😊. I wanted to ask everyone who wants to share, how you found out about this site, BCNA? I think it’s really important for women (and men) to be told about it as soon as they are diagnosed, before they have even seen their specialist. I think it would be really helpful to be informed about all things bca from here before starting the dreaded ‘trip’, as getting advice from ladies who’ve done it is extremely helpful and supportive. I think we all know how we felt when we first got diagnosed, so terrified, petrified, mortified, lonely, lost, confused, frightened, surreal, panicky, to say the least (or was that just me? 🤔). And we all know how much our loved ones, despite them trying so hard, can’t and don’t know what to do or say at times, which makes us feel even more lost, confused and lonely. I felt a strong need to find others like me, and was very grateful when I found the pamphlet about BCNA in my pack with the free Berlei bra. However, I found it after my main surgery, which was about two months post diagnosis. I really wished I’d found it pre-surgery, because a lot of my anguish and depression in regards to my surgeon could’ve been avoided. I mentioned this at the BCNA zoom meeting we had a couple months ago, as I felt it was important to try and get those pamphlets out to gps and screening centres, so more women can know about the site ASAP once diagnosed. So if you’d like to share, I’d love to know how you all found out about it 🙂. M Xxx
Is this the normal process?
Hey Guys, I posted recently that I was diagnosed last Friday with triple neg breast ca stage three. All this week I’ve had the CT scans, bone scans, tomo the PET scan then Friday I’ll meet up again with the doctor that is looking after me and also meet my oncologist. I received a call today from the genetic councillor and my appointment with her is not until next Thursday. Apparently it takes the councillors up to four weeks for my results to see how I’ll be treated. I have never felt this kind of anxiety before. Four weeks? Omg this thing has grown so much in four months. Is this normal?? I thought I’d be getting treatment as of next week. I’m beside myself with worry. I know my surgeon is a good one but far out. I thought I knew what stress was but this thing is a whole new level.
Recently diagnosed with triple negative breast cancer and feeling a little nervous.
I found a lump in my breast at the beginning of Feb and went to the Dr thinking it was probably just a cyst but unfortunately it turned out to be cancer. I've spoken to the Specialist had a PET Scan and a breast tissue mark clip insertion as I'll be having chemo first and am seeing the oncologist on Monday but I'm just a bit scared I guess and feeling a bit overwhelmed by the whole thing and just really wanted to connect with others that have been through or are going through the same thing as I am.
Triple Negative breast cancer diagnosis
Hi, I have found out this morning that I have triple negative breast cancer. My Chemo starts tomorrow and I am overwhelmed with saddness and aprehension of what lies ahead in my future. It will be 2 weeks tomorrow since I had the scan. My whole world has been turned upside down.
Triple Neg, diagnosed 4 wks ago, have had 2 cycles of AC chemo - I wonder what has happened?
Hello, I am not sure how to introduce myself, as this self, is new to me. I feel I havenʻt had time to prepare or make sense of who I am when I look at self. An experience, I have walked into or more precisely, I am on a treadmill of some sort and someone has yanked it up and I canʻt keep up. Emotions running havoc. I am very grateful for support services such as this and give thanks to the community of people who reach out to help each other. For those who read this, thank you.Newly diagnosed - Triple Negative Treatment
Hi everyone, I was diagnosed with Grade 3 IDC - TNBC 3 weeks ago and had surgery to remove it last week. I have been worried about the TNBC part of my diagnosis. I would like to believe that I have been extremely lucky to have caught it very early and found the 12mm tumour quickly. Some of my results from surgery came back today and my surgeon confirmed that the margins were clear and the two sentinel nodes they removed were also clear. Even though it hasn't been said to me, I figure (??) that this might mean it is at Stage 1? The surgeon said that he will send me to a consulting oncologist to discuss these options but made a comment that perhaps chemo would be something to consider. I feel like I should celebrate but I am also conscious that there are next steps in my treatment and wanted to ask has there been any other ladies out there that have been in my position and what treatment was offered to them. I haven't had any gene testing but since all this happened some stories have come out of the woodwork about my mothers aunty's having had breast cancer on both her mother and fathers side and my mother was diagnosed with ovarian cancer 6 years ago at very early stages when they took out her ovary and fallopian tubes and found it incidentally. lucky break! Sorry for the long post..just this stuff has been doing mind miles in my head! thank you in advance for any time you give to my question