HiLillyfurever25 I am so sorry for your recent diagnosis of HER2+ breast cancer. Sending you plenty of positive energy as you bounce back from your first treatment dose.
I hear your caution in who you’re letting know about the diagnosis and managing their reactions; it’s such an intense time for you.
Good on you for finding your way here to have a very tiny vent - it’s a good place, as you are amongst people who have experienced similar emotions! Also some very wise and thoughtful folk likearpie! Who I see has set out a few links and resources.
I had HER2+ Early breast cancer and I was also hormone positive (oestrogen and progesterone positive) and it’s now over 18 months since I completed the treatment for it. Your treatment “cocktail” sounds like it’s a bit different to mine, although I had Herceptin like you. I had Herceptin doses with chemo (6 cycles of TCHP), then surgery, then radiation, and then 11 more doses of Kadcyla (Herceptin with a chemo added). I found it challenging to fully grasp that my treatment would have a longer duration of 14-15 months (though it might be different for you). If you think your treatment will be for quite a few cycles (I had 17) I can recommend having a port-a-cath inserted under your skin to save your veins.
Everyone responds differently to the treatment, so don’t feel discouraged if you don’t feel terrific, just take good care of your rest time. In my case I also got super dehydrated! It’s good you can determine your own hours.
Keep an open mind on how you continue to be active over the duration, exercise is apparently very medically beneficial. I am someone who likes to be active but I found myself a bit floored after a few cycles. It was so positive when I found out about an oncology exercise rehabilitation program through the hospital (supervised by physios).
My oncologist referred me into it. I was quite deep into my treatment when I started but it was very effective for both my wellbeing and strength recovery as I was feeling a bit depleted.
Do sing out with any questions and let us know how you’re getting along. Sending lots of positive vibes,