I am SO Sorry to see you join the club that no-one ever thought they'd be joining 🙁 Lillyfurever25 xx
You've found the right spot here tho, for support & info from those who've 'been there, done that'! So hopefully we'll be able to smooth the way for your own story. Whack up ANY question - remember there are NO dumb questions!!! Make sure you take a trusted friend or family member with you to your appointments, as a 'backup set of ears', as it is difficult remembering everything that is said. Also, consider recording your sessions on your phone, so you can go over it again later, for the same reason. 😉
Mine was ILC (ER+ & PR+ but Her2-) ..... I was lucky to only have the one lumpectomy, rads & tablets .... and have recently finished with the tabs after 7 years!
Are you ER+ & PR+ as well as Her2+? We have a private group for those who are Triple Positive - Click on the link here & you should be 'joined up' by the Mods tomorrow xx They will be more knowledgeable on treatments etc
Group: Triple Positive Breast Cancer (TPBC) | BCNA Online Network
This diagnosis can really muck with your brain too - so if you feel sad, angry, distressed .... ask your GP (or your treating team) for a referral to see a counsellor .... or listen to Charlotte Tottman's podcast (link below).
You can also ring our Helpline on 1800 500 258 for a confidential one-on-one chat xx Try not to get ‘ahead of yourself’ with the ‘what ifs’ ….. as they may never happen - and going down that rabbit hole (specially if using Dr Google) will REALLY muck with your brain :( A lot of info on Google doesn’t relate to your diagnosis or is out of date - so put any questions you have, to your medical team (or here!) xx
Charlotte Tottman is a BC specialist counsellor who was diagnosed herself, also had a double mastectomy, so knows EXACTLY what we've all been thru, both emotionally and physically! Her own reaction to her diagnosis was also quite different to what she 'thought' it might be, given that she'd been counseling women's reactions for some years before, so thought she 'knew' what to expect! She is VERY easy to listen to, too xx
http://www.drcharlottetottman.com.au/my-podcast.html.
Raelene Boyle's video is also well worth watching!
https://www.bcna.org.au/resource-hub/podcasts/upfront-about-breast-cancer/upfront-about-breast-cancer/episode-21-raelene-boyle-on-pulling-herself-out-of-the-darkness/
There is HEAPS of info in the link below to help you navigate the blog and also some tools to evaluate your own physical and mental recovery thru your ongoing treatment! xx.
https://onlinenetwork.bcna.org.au/discussions/general-discussion/a-big-welcome-to-all-new-online-network-members-/222737
Take care & all the best for ongoing treatment & your surgery xx