Devastated and confused

Morning.  I had a 2.9cm, grade 3 tumour on my right breast, that was hormone receptor positive.  I was told after my initial ultrasound that they didn’t think it had spread to my lymph.  (That was what I kept reminding myself whilst waiting results after my mastectomy - focus on what I know).  Turns out they were correct.   I avoided radiation as I opted for the mastectomy.  I was recommended 4 rounds of chemo.  My oncologist suggested I pay for oncotype testing ($5k) as he believed I may not benefit from chemo.  It came back that chemo would have no benefit for me, but I do need to take aromatase inhibitors - mine is Letrozole - for 9 years.  So I’m nearly 2 years post diagnosis & still no detectable cancer as of the last check up in April.  I’m starting the breast reconstruction journey, so that’s my next focus.  There is so much to learn & read about.  Be selective.  Try not to terrify yourself before you have all your results & information and take one step at a time.  Listen to your surgeon, breast nurse & oncologist.  Ask questions until you understand.  Take someone with you to every appointment as you never remember it all on your own. That’s my best advice.  I hope it all goes well for you. Xx

Hi.  I was diagnosed in September 2024. I still recall that initial mix of emotions & it’s overwhelming.  I suggest making contact with your local McGrath breast nurses. They are amazing & full of information for you.   It’s great to talk it through with people who know what you are going through.   I was given advice from a cancer survivor in the very early days.  Focus on what you know.  Try not to skip ahead as that takes you down paths you may never take.  Focus on one step at a time.  I hope all goes well.  Cheers Pam