Radiotherapy

Bugger.  So sorry to hear that @Locksley.  Good that you are being thoroughly checked out.  Have the scans been full body scans?

i hope it settles and stops ... how many more rads treatments do you have?

take care xxx

Oh @Locksley 😢. Very very sorry to hear that. I googled neuralgia and does sound like it could be it, although I’m not familiar with it at all. This whole business just sucks. Understatement to say it’s unfair. Please hang in there. I hope the endone helps until your docs can figure it out, hopefully very soon. Big hugs to you ♥️♥️

Has anyone had bad headaches from Radiation?   I started having them as soon as I started radiation and they still continue weeks after radiation has ceased.  I have even had stabbing pins and needle pains in my face.   I have had a CT scan and all is OK.   I am waiting on a MRI scan to be booked.   I have been to the dentist for a check up in case teeth are the problem.   Panadol has been useless, may as well have had jelly beans.  Oncologist given me script for endone now for the pain.    Some days I am in bed for most of the day due to the pain.

I have had migraines before and this is different.  Migraines make me vomit.   Here the headache is just there.   

One wise lady here suggested it may be Neuralgia.   I will bring this up with GP and Oncologist when I see them next week.  I was just starting to get a bit of energy back after radiation treatment finished and burns healed.    Trying to put one foot in front of the other and feeling a little deflated.  

@noosa_blue150 It is pretty rare, but still good to know it’s a possibility 👌🏻

I hadn’t heard of this , so thanks for flagging it here . Perhaps because it’s a rare occurrence  but ........Happy to hear that you’re on the mend now 

Thank you Abbydog & FLClover.  If I was warned, I do not have any recall.  I did ring the nurses where I received the radiation and the one I spoke to was no help and did not know of such pain being experienced by others!
Anyway, I'm over the worst now and on the mend.

I was warned too, and am also surprised, as well as disappointed, that they didn’t think to check that sooner. You endured pain unnecessarily @luckynov. So sorry. I hope it mends quickly 🤞♥️

I was warned about rib fractures at my initial consult with the OncoRadiotherapist.
It is surprising that none of the medical people thought to rule that out.
I hope that you are feeling much better soon.

Thank you for all of your advices.  I did not have any luck with phoning nurses as none had any idea of the pain I was experiencing and really had no suggestions.  As things stand now, I have been through the mill but at last have a reason for so much pain.  About 3, maybe more, spontaneous rib fractures caused by the radiation. A very rare occurrence.  When I was in so much pain Sept/Oct/Nov would have been when they were just new fractures.  And, of course, not knowing what was wrong, the hydro caused extreme discomfort as did most daily living activities.  I'm on the mend now but lying down is still painful, though not as bad as before. PET scan in August last year was clear and repeat one just 2 weeks ago showed 'healing rib fractures'.  A follow-up chest xray done yesterday shows 3 fractures and we are still waiting for the radiographer to write their report to see if there are more.
So, if you have increased pain in the chest wall several months after radiation, do ask for a chest xray. 

Afraser said:

Dear @ChezaH
Discuss with your oncologist by all
means. But as side effects vary a lot, it’s sometimes really worth starting a course of treatment to see precisely how it affects you. Remember you can always stop, knowing you have given it your best shot. Best wishes. 

Thanks Afraser xx