Forum Discussion

Angela_Peita's avatar
10 years ago

Introduction

I didn't ever think I would find myself writing a blog like this.

Hi. I'm Angela. I'm 31 years old. And this was the year I was going to really start making things happen in my life. I enrolled in uni, picked up some project work, promised myself I would do more writing, travel, spend more time saying no to things I don't want to do and focussing on things I do. Funny what the universe does with you plans huh?

On New Years Eve just gone I was called into my doctors office following some tests runs post what I thought was a simple chest injury. Surprise! Not so much. They told me they thought it was breast cancer and that I would need a biopsy to confirm. Being new years the closest they could make that happen was the following monday, so i had 4 days to wait. Of course we were hosting a party that night so I left the doctors office, and did what anyone else would do. I made punch and party snacks.

That wasn't the best weekend ever. But I got through to Monday with the support of my partner and by Tuesday it was confirmed. 38mm tumour in my left breast, nodal involvement. The next few days were a fun blur of decisions. They decided we would do the full course of chemo upfront (4 cycles of once each 3 weeks then weekly for 12 weeks) then mastectomy, then radiation. It seems like everyone I read about has had surgery first, I have asked my oncologist why we are doing it this way and she tells me it gives me time to get used to the diagnoses. Whatever that means.

The hardest bit at that point was the fertility preservation options. They told me my best chance of having children in the future would be IVF and completing embryo freezing before I started chemo. And they gave me 24 hrs to decide. I have never known whether I wanted children and I have been dating my partner for about a year (we don't even live together) so making that decision was tricky. In the end I went ahead and did it, we figured at the very worst he would act as a sperm donor, but it hurt my heart to have future decisions forced and taken out of my hands like that. I know I should be grateful for having that option, and I am, It's just a lot to take on.

I started chemo about 4 weeks ago. I just completed round two last friday. The first cycle was pretty gross for the first week or so but I bounced back nicely after that. Apart from the hair loss. I ended up shaving it the night before round two because it was coming out in handfuls. I'm still unsure if it was the right move because now I can't even pretend I'm not sick. You know? Sometimes it is nice to pretend.

Now I'm recovering from round two. I feel awful. I had glandular fever once and I used to get exhausted walking from one room to the next, this is the only comparable thing to that for me. I have always been really healthy so this is tough. I've gone from training 3-4 times a week to not being able to walk to the shops. Does it get easier? Will I adjust? 6 months of this is going to destroy me.

I wish I knew how to make myself feel better. I'm taking suppliments, eating healthy food, resting, drinking water, getting massage and accupuncture but it seems like everything is two steps forward, three back. 

I'm not even sure why I'm writing this. I guess I need to start getting things out of my head, I spend all day making jokes about this, and telling everyone how it's all going to be fine, It's exhausting.

If anyone has any tips on how to come to terms with all of this, feel free to share.

That's probably enough for today.

Ange x

 

 

14 Replies

  • Hi Ange, 

    I'm 39, just finished off my 4 doses of AC every 21 days, and now 3 sessions into my 12 weekly chemo runs.  I had surgery first (3cm lump removed and full axillary), with a 2 year old at home and suddenly stopping my full time work i found that was the hardest part for me really, not being able to pick her up and do the day to day usual stuff, driving, walking the beastie of a dog.  Don't get me wrong, the chemo sucks too, but I found those big hitting 21 day cycles pretty yuk, week one was a throw away, week 2 pretty average and week 3 I felt like I was just getting back to OK and then winding myself up about the next run.   But I got into a cycle of using week 3 as my catch up with work colleagues and friends week, kept me distracted and out the house.

    Glad to say that the weekly sessions aren't knocking me about any where as much - so I truely hope its the same for you, no need for naps, getting back into walking and pilates, and I ended up with a power port, so the good news in the oncologist has confirmed I can get back to the swimming pool now too.  

    Hang on in there, and be kind to yourself, I spent so much time trying to make sure everyone else was OK with my diagnosis that I forgot in those early days to just take time out for myself, and admit when I really did feel lousy.  For me the run up to periods (which I was told would stop but haven't yet) are the worst, armpits swollen and aches upon aches, but thankfully some days the red wine tastes drinkable, and friends are on hand to make me laugh, and when they're not I read the posts from all the lovely ladies here and remember I'm not alone, I'm not over-reacting, I'm just working my butt of to get rid of this cancer, and it's OK to be selfish sometimes on this journey.  Breathe deep and best wishes for smooth sailings through the rest of the treatments and future op.

    Sending you Hugs & Happy times

    Leonie

     

  • Hi Angela, 

    You wrote your blog to RELEASE. You have been through a mammoth event!  

    We get battle weary! 

    Even though the circumstances that you have joined us aren't favourable you have come to the right place, we are in this together and are here to support you... . Like you I made grand plans for this year until my Christmas Eve gift was BC!  But my plans will still be there, just a year or so later is all! 

    I can't comment on chemo yet as I'm only starting mine tomorrow, but I assume  that what you are feeling seems to be the norm? Have you heard of the look good feel better workshops? A few ladies here have done them.... As will I when the time comes.... There is also a group here for younger women, this may help to talk to other women around your age.... 

    Hang in there Angela! .... One day at a time.... Your plans for this year will still be waiting for when you have kicked this! Hugs to you

    love and light for easy recovery and beautiful days 

    -Tracy

    stay strong|breathe|believe

  • Hi Ange,

     

    I am 7 months post 16 months treatment and I am only now coming to terms with how sick I have been.  Whilst you are trying to convince everyone else that you are alright, I do think you are trying to convince yourself too. , you are doing all the right things. Eating healthy, keeping up the water, get rest when you need to and try to do some light exercise, like little walks. Take it one day at s time, or one hour at a time if needs be and just keep reminding yourself that it's short term pain for long term gain and that you will get through this. Hang in there. Karen cox

  • Hi Ange,

    I'm 32 now and have finished all of the treatment you describe here. At 31, I had the same diagnosis as you and faced the same decisions re. fertility etc.

    I'd just like to say that the whole thing is shit. You don't deserve it and will probably find that it's the hardest thing you'll ever go through. People will tell you that you look well, that you'll get through, that you're strong - forgive them, they don't know how to express their love and support. But you, meanwhile, may feel like you're dying a slow, painful death as life becomes harder and days begin to blur.

    I had almost the same chemo as you - fortnightly x4 then the 12x weekly - the weekly treatment is what destroyed me. It's hard to describe, but it felt wrong, every bit of my body protested against it and my 'normal' life disappeared in a haze as chemo-brain set in.

    Good on you for sharing your experience on here, take whatever support is offered and be sure to prioritise yourself now - this is your struggle, you must focus on it and, while others will be desperate to alleviate your suffering, you're the one who faces it day by day.

    I kept a blog, which you might find interesting - or might hate. Feel free to have a look and we can stay in touch if you like - notthecword.weebly.com.

    All the very best to you, my friend. May you find moments of real joy amongst the misery you now face xx