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CattyB's avatar
CattyB
Member
3 months ago

Radiotherapy and exercise

Hello everyone - 

After a DCIS diagnosis and lumpectomy with a re-excision I now have clear margins and, although I could have refused radiotherapy, I have opted in as it is still standard treatment. And I wasn’t prepared ‘to roll the dice’ as my surgeon put it. I will have about a three-quarter hour train commute and a 10 minute walk each way from the train station. So all up I reckon it’s going to be three and a half or so hours each day. I have heard that exercise helps combat the fatigue. My question is - yoga? I’ve found a fabulous YouTube yoga by Lisa Moore which is about thirty minutes, gentle stretches etc. Walking I could definitely do in fine weather. I also have a rowing machine at home that I enjoy. Have people kept up resistance training while going through radio? I work four days a week but I can be fairly flexible about hours. Any survival tips welcome!

9 Replies

  • Some excellent advice from Selkie​  and Tri​ already .... CattyB​ .. just be kind to yourself during the Rads treatment (and afterwards) as it may take 'more' out of you, than you think.  It is important that your body 'repairs itself' without added stress, so it is very important not to over-exercise until the body is ready for it.  Doing too much, too early can actually set you back 😕. So definitely, stay away from your rowing machine and the resistance bands for the time being! 😳

    On top of your desire to exercise is the fact that you are under a bit of stress already, just getting to and from your daily Rads appointments.  I was lucky to be able to  stay in the locally provided 'lodge' that was attached to the hospital where I was having my Rads, which was an hour away from my home.  If you are travelling daily to your Rads, you may be also covered by the State's 'Isolated Patient Travel Scheme' ... whereby accommodation and/or fuel costs may be partially refunded to you.  Which State do you live in?  Check it out on the link at the bottom!  It sounds like you are 'almost' covered for accommodation and/or fuel reimbursement ... depending on which state you are in, as each one's 'distance requirements' are different!   This form (below) is a few years old now but shows the assistance available to regional/rural/remote patients .... and may have been updated since 2019.

    Saying this - Stretching and weigh bearing upper body exercises should be minimal until post Rads - and even then, start back slowly.  Doing gentle exercises are fine - but don't try & push those 'reaching' exercises.  In this case, it would be 'No Pain, No Brain', so maybe back off on the Yoga Stuff just now!  Walking is just FINE, during your treatment. xx. Just wait & see how you 'go' during your treatment .....   

    There is Plenty of time to get back into it all AFTER your treatment has finished and you have worked out your 'rhythm' post treatment  xx. You won't be losing that much fitness during the Rads .... as your underlying muscle structure will still be there, to 'fine tune' after your treatment has finished.  Just 'freshen up' slowly as you feel up to it, after Rads. 

    Take care & all the best 

    Travel & accom subsidies Australian states-2019 Page 1.jpg110 KB
    • CattyB's avatar
      CattyB
      Member

      Hiarpie​ - thanks for the link. Victoria has 100 km - we rock in at 76 round trip. The anticipation of the travel is stressing me a little but that’s just the way it is.  Everyone has given great advice - and it’s a resounding take it slowly, so that’s what I’ll be doing! Thanks again - such a good place to discover info in a new bewildering world. xxx

      • arpie's avatar
        arpie
        Member

        Yep, make haste slowly xx. You'll be back doing what you love in no time!  😉

        Maybe Check with the Vic Iptaas to see if you can STILL claim, if the repeated trips within a specified period of time (eg 1 week) adds up to a 'specific' Km ..... it has been added to the NSW Iptaas now. 
        Ours in NSW only kicks in once the travel is 100k ONE WAY ..... or culmulative of 200k in a week, which is much more reasonable than the Vic one! 🤨 

        I've just found a more recent brochure, showing that info from 2024!  I hope this lets you make a claim now!  (see below) 😀

        So it looks like your Vic one is also 100k one way - or 500k in a week  🤨 .... from any appointments, so see if any of your other appointments will 'tip you over' to 500k in a week!

        ALL STATES in Australia Travel info is in the PDF!!

        Hmmmm, It won't let me attach the actual PDF, but you can click on  'view PDF' here on the link below  (I'd suggest downloading it & even printing off the Vic page) ... and check what the current Vic requirements are - and reimbursements xx
        https://www.ruralhealth.org.au/publication/fact-sheet/patient-assisted-travel-schemes-guide/

        Take care & all the best 

  • HiCattyB​ I was similar toSelkie​ and think the months of adjuvant chemo (plus getting Covid!) probably meant I was fairly depleted by the time I got to radiotherapy. I did a modified oncology exercise rehab program and had just one instance of very low blood pressure and had to be helped - I was glad to be in an environment with back up. 
    I used to row on a rower but after dose 3 I just didn’t have the confidence and energy. The surgeon wasn’t keen on too much upper body strength work in the weeks after my lumpectomy, so I paused until all my treatments were behind me. 
    I came to yoga later, it’s been terrific for me. I was cautious but started with some modified yoga and then regular yoga.
    I am inclined to consult your oncologist and radiation oncologist and keep an open mind, asSelkie​  said to be prepared to rest  if it turns out that you’re feeling out of steam. Sending all good wishes as you crack on with your treatment-

    • CattyB's avatar
      CattyB
      Member

      Thank youTri​ - the yoga has been great after the lumpectomy - it’s a staged program and i just find it really grounding. I started doing yoga at home during lockdown and I do really enjoy it. (Though I’ve very inflexible.) I’m in awe ofSelkie​ swimming 3.5 kilometres a day - fabulous! 

      I think I’ll just have to see where it all lands, consult and take it gently. It’s lovely having this network for advice and reassurance. Thank you both -Tri​ &Selkie​ 

      • Tri's avatar
        Tri
        Member

        HiCattyB​ you’re 💯 right about feeling grounded, I was surprised to discover that aspect of yoga.

         I didn’t realise I had a bit of cording after my lumpectomy surgery and radiation therapy, but once I started yoga it made its presence felt so my physiotherapist helped me regain movement with stretching. That was helpful to discover because my reach was more “normal” once I could start swimming again.

        Selkie​ 3.5 km a day! I agree withCattyB​ that’s inspiring (and it explains the “selkie” 🦭good choice!!)

  • Different people find side effects different. I had incredible fatigue during radiotherapy, including in the month following it.

    I also followed the advice of trying to exercise but I had some pretty scary experiences. Ended up having to take my partner out walking with me in case my legs buckled under me and I ended up sitting on the footpath having to use all my willpower to stand up again.

    However, I'd been through months of adjuvant chemo between mastectomy and rads so the cumulative effects may have caught up with me. 

    I went back to my usual exercise (swimming) about 6 weeks after. Took about 2 months to get to my old distance of 2km each day. This year I've upped the ante and am swimming about 3.5km/day, including 76km during March to raise money for new breast cancer treatments. 

    Which is to say- don't sweat it if you find yourself too exhausted to do much during and immediately after rads. You may find you're all good, in which case power on. If not, your energy levels will come back in time and you may just find you're tougher than you were before going through this particular marathon.

    Good luck with rads.💜

    • CattyB's avatar
      CattyB
      Member

      Oh that’s great about the swimming and good on you - 3.5 km is a distance! I used to swim every summer in the outdoor pool near us but we moved. I don’t think I swam much more than a kilometre.