Has anyone had cold cap chemo & been on thyroxine?

Question

I had a total thyroidectomy a few years ago & have to take thyroxine. My hair fell out a little after the lumpectomy but has settled down again. However, I’m wondering if I’m wasting my time trying to save my hair with the cold cap chemo? Especially as it fell out a little just from the surgery.
Has anyone been in this situation as I’d really appreciate hearing your experience?

kmakm · Answer

Hi SCat. I take thyroxine for Hashimoto's. I tried the cold cap. I don't believe it was fitted properly on me and so abandoned it after two rounds of chemo (TC). Where it did have full contact with my head it worked. My hair has since grown back and seems to be as thick as ever even though I am menopausal and taking Letrozole, two things that can thin your hair. Of course it may change but so far so good. K xox

kezmusc · Answer

Hi @Scaredycat,Nothing is a waste of time if you want to give it a go.&nbsp; You never know your luck.&nbsp; I can't comment on the thyroxine but just had a quick google and cannot find any contraindications between the two. If you have the opportunity why not give it a try?&nbsp; @kmakm is spot on regarding the fit of the cap.&nbsp; If you want any info or tips just give me a message.All the best lovely.xoxoxo

scaredycat · Answer

Thank you kmakm &amp; kezmusc,The Hashimoto’s sounds like a challenge in keeping the thyroxine levels correct?&nbsp;I am going to give the cold cap a try, and it’s good to know re the fit of the cap.I’m a little worried due to my hair falling out just from surgery. I googled as well but I couldn’t find anything regarding it.&nbsp;

kmakm · Answer

@Scaredycat Not too bad, just a blood test once a year. My telltale symptom is my heart missing a beat. It's been doing that rather a lot lately. I normally get my blood checked round August; might go a bit earlier this year.

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Has anyone had cold cap chemo & been on thyroxine?

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