Cold Capping and hair loss experience with TC chemo
I went for my first TC chemo session with cold capping on a Paxman. I've got wavy coarse hair, that's not particularly thick. Conditioner and water was applied with a focus on the top of the head. I was expecting a brain freeze but came nowhere near that in the 2.5 hours of the cold capping. I'm a skier so I'm comparing it to having damp hair on the snowfieds. The nurse said only about 20% of his patients keep their hair. I'm now paranoid it was ineffective and am sitting at home with a bag of ice in a large ziplock affixed to my head, which feels colder than the cap. Has anyone had a similar experience with cold cap not being as cold as you expected, but still had reasonable hair retention after that session?
Cold cap - is it worth continuing the frosty hell?
Hi ladies...having had two surgeries (masectomy and DIEP flap) in June / July I am now on the chemo journey 4 x AC (every 2 weeks) and then weekly Taxol for 12 weeks. It sucks. I have had 2 rounds of AC and tried the cold cap for both. The first time it was manageable although not fun but the last round (this Thursday just gone) was unbearable and I felt so unwell the entire 4 hours of chemo even with all the drugs. I am now wondering if I can do this for another 14 more rounds. This week will be the week my hair should start to fall out which fills me with dread but so does 14 more rounds of cold cap. I feel absolutely awful for days after chemo and have horrible nausea and the whole process is very overwhelming. Has anyone had AC and Taxol and done the cold cap for so many treatments with success? I would appreciate any advice as I now feel even more anxious about my next round. Thank you so much xIce cap or no ice cap? personal experiences?
Hi All, I was newly diagnosed mid December, have had surgery and am recovering well. I am due to start 12 weeks of weekly chemotherapy using paclitaxel. I will also be receiving Herceptin 3 weekly for 12 months and goserelin (hormone treatment) for 5 years. I have been told about ice caps to minimise or prevent hair loss. From reading it seems that this doesn't always work and also sounds painful. I was wondering if any of you had personal experience of using or trying the cap - obviously the good and the bad. I think it's not so much losing my hair that is bothering me, but the thought that then it is so public and there is no hiding it then :( Thank you so much.
Cold cap with chemo to save hair!
I have the chance to wear a cold cap when I start chemo next month. The nurse wets your hair, rubs conditioner in it and you put the cap on that has -20 degrees water running through it! Has any one tried it? They say you get quite cold and need a blanket . Be nice not to have to loose my hair, but sounds like torture!
HAIR LOSS
YIKES. I’m losing my hair. :'( I’m cold capping - I know hair still falls out with this , but my hair is thin and I don’t have a lot to lose. My family says you can’t tell , but I CAN and it sucks. And I hate having hair stick to my clothes and brush and my face and hang down from my scalp. I know this happens with the chemo, I just need to vent!!! Does it ever stop?!!!! AAAAAAARGH
Cold capping
I start chemo next week and I'm considering using a cold cap. I'll be having 4 x TC. Can anyone who has used the cold cap during TC shed any light on how effective it is with this type of chemo? I know it varies from person to person, but from what I've read the chemo regime has a big impact on the effectiveness of the cold cap
Feeling before hairloss?
I had my first chemo session two weeks ago with the cold cap. The cold cap was fine throughout my session. However, I’m not sure if it will or won’t be successful for me at this time. My head has a sore spot over an area that feels kind of like a bruise as if I’ve bumped it. I think any hair loss also occurs about 2 or 3 weeks after chemo? Is this the type of pain/discomfort that is usually felt before your hair falls out?Has anyone had cold cap chemo & been on thyroxine?
I had a total thyroidectomy a few years ago & have to take thyroxine. My hair fell out a little after the lumpectomy but has settled down again. However, I’m wondering if I’m wasting my time trying to save my hair with the cold cap chemo? Especially as it fell out a little just from the surgery. Has anyone been in this situation as I’d really appreciate hearing your experience?
