Cold cap size
I'm under going 4 rounds of AC and have used the cold cap medium size First round didn't lose any hair and had a hair cut in between rounds and lost allot of hair from my crown in the second round. I'm wanted some advise on whether I should go to the small size as does the firmness of the fit impact success?102Views0likes2CommentsScalp cooling - tips on cap size and forehead pressure?
Hi all, I'm about to start my first of 12 x weekly paclitaxel treatments on Monday (combined with trastuzumab infusions every three weeks). I am keen to try scalp cooling to try to reduce hair loss and had gotten my mind around the cold factor (I think!). However, I had my chemo education session yesterday and got to try on a cap. I discovered that the cap alone for just a few minutes was very uncomfortable/slightly painful on my forehead and am now not sure how I'll go with this for several hours! The nurse did get me to then try the next cap size up, but this didn't seem to be as good a fit and had a gap at the back of my head - hence may not be effective. I also didn't have a headband on when I tried the first cap - so possibly this might also help a little. Just wondering if this tightness/pressure/forehead pain is normal or if anyone else has experience and tips on dealing with this? I noticed from other posts about scalp cooling that these seem to suggest the hardest period is the first 15-20 mins and then your head acclimatises/becomes numb. Just wondering if this also applies to the feeling of tightness of the cap? Or if there are any other tips on reducing pain/pressure on your forehead during the cooling process? I figure I'll give it a go anyway on Monday as I can always stop the scalp cooling if it is too much for me, but any advice would be very welcome!200Views0likes4CommentsIce Caps to prevent hair loss
Are you worried about losing your hair during chemo treatments? For me keeping my hair was very important. I am a private person and the thought of people seeing me hairless felt very intimidating and public. I wanted to choose who I would like to tell I had breast cancer and not just be on display everywhere I went for everyone and anyone to diagnose. I decided to give ice caps a try and it was absolutely successful. Keeping my hair gave me a sense of control over the chemotherapy and its nasty side effects. For me it became an uplifting and very positive experience, giving me something satisfying to focus on, instead of on the cancer.392Views2likes6CommentsCold Capping and hair loss experience with TC chemo
I went for my first TC chemo session with cold capping on a Paxman. I've got wavy coarse hair, that's not particularly thick. Conditioner and water was applied with a focus on the top of the head. I was expecting a brain freeze but came nowhere near that in the 2.5 hours of the cold capping. I'm a skier so I'm comparing it to having damp hair on the snowfieds. The nurse said only about 20% of his patients keep their hair. I'm now paranoid it was ineffective and am sitting at home with a bag of ice in a large ziplock affixed to my head, which feels colder than the cap. Has anyone had a similar experience with cold cap not being as cold as you expected, but still had reasonable hair retention after that session?795Views0likes7CommentsCold cap - is it worth continuing the frosty hell?
Hi ladies...having had two surgeries (masectomy and DIEP flap) in June / July I am now on the chemo journey 4 x AC (every 2 weeks) and then weekly Taxol for 12 weeks. It sucks. I have had 2 rounds of AC and tried the cold cap for both. The first time it was manageable although not fun but the last round (this Thursday just gone) was unbearable and I felt so unwell the entire 4 hours of chemo even with all the drugs. I am now wondering if I can do this for another 14 more rounds. This week will be the week my hair should start to fall out which fills me with dread but so does 14 more rounds of cold cap. I feel absolutely awful for days after chemo and have horrible nausea and the whole process is very overwhelming. Has anyone had AC and Taxol and done the cold cap for so many treatments with success? I would appreciate any advice as I now feel even more anxious about my next round. Thank you so much x119Views0likes4CommentsIce cap or no ice cap? personal experiences?
Hi All, I was newly diagnosed mid December, have had surgery and am recovering well. I am due to start 12 weeks of weekly chemotherapy using paclitaxel. I will also be receiving Herceptin 3 weekly for 12 months and goserelin (hormone treatment) for 5 years. I have been told about ice caps to minimise or prevent hair loss. From reading it seems that this doesn't always work and also sounds painful. I was wondering if any of you had personal experience of using or trying the cap - obviously the good and the bad. I think it's not so much losing my hair that is bothering me, but the thought that then it is so public and there is no hiding it then :( Thank you so much.264Views0likes18CommentsDoxorubicin for 3 rounds and 12 weekly Paclitaxol
Hi All, I was diagnosed with ER + BC in Dec 2020, Grade 3 stage 2b, as it reached two lymph nodes. I had a pet scan after surgery biopsy results from lumpectomy, and there was no distant metastasis anywhere. I have just completed my third round of doxorubicin and Cyclophosphamide with one more too go. Hair has started well and truly coming out. I have 12 weeks of paclitaxol after this. I have heard that hair does come back during paclitaxol. If anyone can please let me know of your experience I would be very great full xx175Views0likes7CommentsHair Growing Back
Hi All, I am on my last paclitaxel chemo next week and staring to look beyond the chemo bad ass. I am just completing 8 courses of dose dense chemo - 4 xAC, 4x Paclitaxel and am wondering how long it took for others to grow their hair back. I know this is assuming it has grown back sufficiently, as some women are unlucky with hair regrowth. Just hoping you can share you experiences of when your hair grew back enough to actually feel like you had enough to do something with and any changes in your hair regrowth from before chemo. Many thanks, Jo7KViews0likes459Comments