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Heidi_62's avatar
Heidi_62
Member
13 years ago

chemo

i am about to start my first session of chemo today i already went out and bought a wig so im ready for the hair loss im feeling really nervous about it they said they are giving me the strongest one so thats crap.I was first diagnosid in feb got told it was early breast cancer no nodes involved all good so i went on my way thinking it was all going to be fine then 2 months later just when i was about to start radiation i get a call to say there was a mistake on my test results on the nodes and they were positive so they said i have to go back to have the rest removed when i went to see my doctor he refused to do it said it was unnesasary so i was happy with that went home feeling good again then i get a call from oncology saying i have to do it because they went back over some samples that they had stored and said they had cancer so i was told to got back to the surgeon he did a clearance 27 nodes when i got the results back 3 were positive so now today im going in for my firs chemo they said they are giving me the strongest dose what ever that is im so scared and hate all the stress they have given me im angry to i went out and bought a wig so i wont go around bald that my big crazy journey ive been on and there is still more to come with this chemo then radiation  

 

6 Replies

  • thanks for the reply you made me feel better and laugh with the blonde joke and i have read up alot of info on the chemo but sometimes there is to much  to take in im on fec chemo for 3 sessions then not sure what the next one is called after that for the last 3 anyway thanks for the reply needed that x  x x xx xx

  • thanks for the replys from you all i got through the first chemo day ok just dont know what to expect for the next couple of weeks one down 5 to go then 4 weeks radiothraphy then 5 years tamoxifin i know my hair is going to fall out and the worst thing is everyone i meet in there nurses social worker pathology keep telling me its so sad you have the most beautiful hair and look at me in pitty its crap they shouldnt mentiont that at all my hair is long thick and and beautiful red in color so thats the firs thing they notice ive been lucky to be a natural red head with no freakles so anyway see how i go i was going to get this orange color wig but the hair dresser said the sold the last 2 to the local drag queen so that was enough to put me of i dont want to match him so im going blond i thought that was funny though anyway i will get on with this crap and try to think of having fun time with the girls once its all over 

  • thanks for the replys from you all i got through the first chemo day ok just dont know what to expect for the next couple of weeks one down 5 to go then 4 weeks radiothraphy then 5 years tamoxifin i know my hair is going to fall out and the worst thing is everyone i meet in there nurses social worker pathology keep telling me its so sad you have the most beautiful hair and look at me in pitty its crap they shouldnt mentiont that at all my hair is long thick and and beautiful red in color so thats the firs thing they notice ive been lucky to be a natural red head with no freakles so anyway see how i go i was going to get this orange color wig but the hair dresser said the sold the last 2 to the local drag queen so that was enough to put me of i dont want to match him so im going blond i thought that was funny though anyway i will get on with this crap and try to think of having fun time with the girls once its all over 

  • Hi Heidi

    Big hugs and good luck for today.  I remember feeling anxious and scared too... I think we all feel that way.

    More and more you hear of stuff ups and mistakes.  I too have been mucked around.  But... its better to be sure and at least if they have all results they can treat your cancer properly.  

    Dont worry about your hair. IT WILL GROW BACK!! Thicker, softer and so healthy.  Mine was blonde, straight and fine before BC then grew back thick, golden and wavy :) Im actually looking forward to seeing how it will grow back this time.

    Stay strong sweetie, in a strange way it really does get easier and remember youre not alone xxx

  • Hey Heidi

    Sorry to hear that you are having an absolute crap time right now and yes you have reason to be angry.  I had a similar experience in that I was told all good and no further surgery required just 2 days before Xmas 2011 and then I went back after Xmas for post op appt when they all returned from their break to be told sorry but tumour was much bigger than originally thought, no proper clearance due to chest wall in the way and nodes were involved.  You could have knocked me over with a feather and yep you better believe I was very very angry.  But I got over it and decided I just need to get on with this and fight this bloody thing and I did.  

    i had 6 cycles of chemo and 7 weeks of rads.  

    You ask yourself how can they manage to tell you the wrong information.  Were they looking at someone elses pathology?? I have no idea but yes I agree it sucks big time.

    i am glad you have found us here on BCNA and I hope we can offer you help and support as you go through this crappy time.  

    Lots of love, Mich xoxo

  • Hi -  I remember my first chemo and like you I was up on the computer at 4-00am.  I think the fear of the unknown is the worst.  I ended up having 16 doses of dose desne chemo which means you get the same stuff just closer together.  It was pretty horrible but definately managable - you just have to stay positive.  Remember that whatever side effects you get from the chemo is better than letting the cancer beat you.  I am about to start my radiation for the next six weeks so know that I am now on the later part of my journey.  Having no hair is also not as bad as we all imagine you just have to embrace it and have as much fun with wigs, scarves, beanies as you can.Having cancer and going through treatment can be stressful but stay positive it is your best defence against this crap. Good Luck and thinking of you.  Sue