IBC - Need to chat with my pink sisters

Mich x
Mich x Member Posts: 1,530 ✭
edited February 2013 in Day to day

Hey girls

I needed to chat to you as I am a lil bit worried.

I have an ultrasound booked for this Tuesday. I have been noticing feelings like a sinuey/lumpy kind of feeling on the same breast they removed the lump from just over one year ago. I am also experiencing some pain and there are some minor red areas and minor orange peel looking skin. Very minor occasionaly crustiness to the nipple.

This is all on the same breast but on the inside of breast not the outside where lump was found. My breast is tender to touch.

I am hoping that it is nothing to worry about but I would love to hear from anyone else who has had these symptoms. I don't want to be told it is IBC but that is what I am scared about.

How can it happen so soon after lumpectomy, total axillary, 6 rounds of chemo, 7 weeks of radiotherapy followed up with a mammogram and an ultrasound.

Please tell me it is not possible.

I am sorry but I just needed to share with you because I believe I get such good feedback, advice, love and understanding here at BCNA, more so than anywhere else.

Please tell me I am being silly and that the ultrasound the doc has ordered is just to make me feel better.

Lots of love, Mich xoxo

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Comments

  • annie2
    annie2 Member Posts: 164
    edited March 2015
    Mich id love to say its nothing to worry about.Only we know our bodies.And they have endured so much.We must be at about the same stage i was diagnosed Oct 2010.
    Our worst fear is that this dreaded cancer will recur.But as lara says if it is anything you have caught it early.I hope and pray that its your breast recovering from all its been through.
    I was hospitalized twice this week with severe migraines.my white cells were down.They did a AT scan thinking i had secondaries to the brain.I was beside myself.It was all clear thankfuly and please god let yours be too.
    Take care Mich and try not to think the worst as hard as that is.
    Annie x
  • LouiseTurner
    LouiseTurner Member Posts: 1,600 ✭
    edited March 2015
    Hi Mich, I've spent 10 mins trying to write something and just can't find the right words.

    I'm crossing fingers and toes for you for good results. You're a strong lady and always there for the rest of us, I hope you can feel the love and support coming your way.

    But if you have to get back on the round-about focus on the reasons why...it's temporary and we do what we need to to stay alive (Mmmm, think someone may have just said that to me!)

    Thinking of you Tuesday
    Xxxlouie
  • Michelle_R
    Michelle_R Member Posts: 901 ✭
    edited March 2015

    Hi Mich - I will be 'willing' you a clear ultrasound tomorrow with all the energy I have. Will be praying it's just some ropiness from all the rads last year. Sending you lots of love and hugs with everyone else. You know we are here whenever you need us. It is good news that they are checking so quickly even though (hopefully!) it will turn out to be nothing to worry about. Keep in touch. Michelle xxxx

     

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Hey Lara

    Thank you for your post luvy. I am keeping myself busy doing mundane stuff like washing and ironing and cleaning etc. but it is keeping me occupied at present.

    I have done it before and I am hoping to god I don't have to do it again BUT if I do I will be so much more aware and hopefully do things a lil different.

    I started noticing the sinuey feeling around Xmas time so have been concerned since then.

    I used to be quite complacent about checking my boobs and all that stuff but I'm not any longer cause I know if you catch it early you have a better success rate.

    I very much thank you for your wonderful support and I will let you know how I go.

    I hope you are travelling well.

    Lots of love, Mich xoxo

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Oooooh dear Annie

    That must have been so frightening for you with what you have gone through in the last week, must have been shocking.

    I haven't told anyone about this except hubby of course and all my sisters on BCNA as there is no need for anyone else to be worried.

    You are right in that there is always the fear of recurrence and I will be lucky if there is anything wrong that we have caught it early again. I am also hoping it is just my poor boob trying to get over what it has been through cause I know I am still trying to return to normal hee hee.

    All will be fine I am sure,. Please take good care of yourself.

    We are lucky in that anyone in the medical field knowing we have had the big C they become very diligent in our care.

    Lots of love, Mich xoxo

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Hello my sweet Louie

    Thank you for your thoughts. It is hard sometimes to find the right words but you have done well thank you.

    Keep everything crossed for me and your love and support will be a comfort.

    Mmmmmm that person who said those words about temporary and why we are going through this must have been a very wise women hee hee.

    I will let you know how things go.

    You take care as well.

    Lots of love, Mich xoxo

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Hey Tonya

    How are you luvy? Sounds like you know where I am coming from if you have just experienced all your tests etc. I am so glad they do check everything for us all the time. I am lucky in that I have a wonderful GP who doesn't mess around.

    I wish you could tell me there is nothing to worry about but I know no one can till I have been through the process tomorrow.

    I am busy busy busy, keeping myself and my brain occupied.

    The waiting will be over soon and then I can get on with my life one way or another.

    Lovely to hear from you and I am glad you are there for me along with the rest of the girls.

    Lots of love, Mich xoxo

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Hey Michelle

    I hope you will do lots of "willing" for me and you have lots of energy to help me get over this hurdle.

    I also hoping it is only from the rads, that is what I keep telling myself anyway and that I will now just have a very lumpy bumpy boob.

    Thank you for being here for me, it means a lot.

    How are you going now, are you back at work etc?

    Lots of love, Mich xoxo

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Thank you so much Annie for your kind works and support. Please think lots of positive thoughts for me for tomorrow.

    I will keep in touch. Hopefully I just making a mountain out of a mole hill (or in my case a lumpy bumpy sore red boob) lol

    Lots of love, Mich xoxo

  • Sorelle1969
    Sorelle1969 Member Posts: 51
    edited March 2015
    Hey Mich, so sorry you have to do this,it is so easy to expect the worse,and it's always in the back of our minds.
    Whatever the outcome your not alone xxxx
    Please let us know how you go.
    Will be sending lots of positive vibes your way
    love Sorelle xxx
  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Thank you so much Sorelle, I so much appreciate your wishes and good vibes. I am sure it will be fine. By this time tomorrow it will be all over and I will be celebrating I am sure.

    I will take all the positive vibes you can send me though at the moment.

    Thanks again, wishing you well.

    Lots of love, Mich xoxo

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Hey Adean

    Mmmmm I don't think we ever get past the what if's or the maybe's and you are right I will deal with what is sent my way. Cause that is what we do.

    I have everything crossed as well for you my love, and let me tell you it makes it hard to walk this way lol hee hee.

    Seriously I am wishing you well. Where are you at with your journey now?

    I hope that both our if"s will be nothing to worry about.

    Lots of love, Mich xoxo

     

  • dawngirl
    dawngirl Member Posts: 130
    edited March 2015

    Oh, Mich. I read this last night and got all tongue tied as to what to say..what is the right thing to say...scared to say the wrong thing....not much clearer this morning....but ^&*()*^&% the way this thing looms large, hanging out the back, coming back into our thoughts and igniting our fears. I'll keep all crossed for you today that it's your version of my freak out last week -- what I'd convinced myself over night was a skin met, turned out to be an age spot. I'm so sorry to read you are going through this stress and worry and really, really hope for you that it turns out to be a-ok.

    x

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Hey Dawngirl

    I know exactly what you are saying. I hope I am freaking out for nothing. You are right there is nothing to say.

    I keep going through my head that it is impossible. There is no way it can happen. I have not long finished chemo let alone radiotherapy let alone now being on an A I. Plus follow up mammogram and ultrasound towards end of last year. So really it just has to be totally and utterly impossible!!!

    Needless to say I haven't had much sleep recently and none at all last night and really just want today to be over.

    There is definitely something going on with my boob but please please do not let it be BC.

    Lots of love, Mich xoxo

  • Mich x
    Mich x Member Posts: 1,530 ✭
    edited March 2015

    Hey Dawngirl

    I know exactly what you are saying. I hope I am freaking out for nothing. You are right there is nothing to say.

    I keep going through my head that it is impossible. There is no way it can happen. I have not long finished chemo let alone radiotherapy let alone now being on an A I. Plus follow up mammogram and ultrasound towards end of last year. So really it just has to be totally and utterly impossible!!!

    Needless to say I haven't had much sleep recently and none at all last night and really just want today to be over.

    There is definitely something going on with my boob but please please do not let it be BC.

    Lots of love, Mich xoxo

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