Palb2
annmaree872
Member Posts: 1 New Member
Hi everyone this is my first post
I have been through cervical cancer stage 3 with chemo and radiation now tested positive to palb2 gene and have been given options my mind is muddled and I’m nervous about going through such a big procedure has anyone been through this if so any advice would be appreciated
I have been through cervical cancer stage 3 with chemo and radiation now tested positive to palb2 gene and have been given options my mind is muddled and I’m nervous about going through such a big procedure has anyone been through this if so any advice would be appreciated
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Comments
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Hello @annmaree872 and welcome. As you have not had any response yet I have sent you a private message - look for the little envelope to the top right of the screen next to where you log off.0
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https://www.bcna.org.au/resource-hub/articles/genetics-and-risk-of-breast-cancer/
@annmaree872
I hope the link above gives you clarity on your situation
Best wishes
Take care1 -
Hi @annemaree82 - sounds like you have had good support and suggestions above. We would like to also provide you with information we have in our My Journey resource and website. It must be difficult navigating these decisions and we hope the information is helpful.
Feel free to reach out to our Helpline for any further targeted information that may help 1800 500 2581 -
Hi @annmaree872
When you refer to “procedures” are you including a double mastectomy?
I had a double mastectomy with reconstruction and it was a big decision as well as (2) big surgeries.
I found that the private group on here “ Choosing reconstruction” very helpful - ladies who have been there post stories and photos - I did also call the BCNA helpline and talk to my ( female) GP as well as a friend of a friend who had a double mastectomy and reconstruction and that was also very helpful.
There are different types of reconstruction and some ladies stay flat - there is a private group on here for that too “ Flatchat”.
The helpline can join you up if you have issues.
With all my medical decisions I asked my Dr “ what would you do if it was you”? Or if the Dr was male “ What would you advise your sister/mother/aunt in these circumstances?
Take care.
🌺
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