Newbie - not the 2024 I was hoping for!
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Hi @Paris_24
Great you are feeling better! I found when my appetite returned each round that I was really hungry and everything tasted like it was the best ever of whatever I was eating! Great idea to have a staycation and keep up the treats!
I've been put back a week for this round of chemo unfortunately, but it is what it is and will give me some time to catch up on stuff while I'm feeling better.
@iserbrown thanks for the tip about The Otis Foundation....I didn't know about it and will definitely look into it further!1 -
Thought it was time for an update. I am very close to the end of this 5 month chemo journey. Survived the AC rounds and have completed 10 with only 2 more weeks to go of the Paclitaxol. I also slipped in an extra week in hospital with cellulitis in the chest wall yet continued with chemo. 😆 The cumulative effects of the Taxol, chemo face and arm rash, steady as she goes peripheral neuropathy in fingers and feet, no eyebrows, fatigue and the yucky post nasal drip will soon start to disappear. I know I am far from the first but have been riding a roller coaster of emotions as this phase is going to end - I am excited and happy but also feel sad and want to cry, am thankful for my treating team, the staff on the chemo day ward, and all those family and friends who have really stepped up for me. While there is more treatment to come and a persistent seroma to deal with too, I am keen to hear what things helped for those who finished their chemo to celebrate or acknowledge this momentous occasion? 💗3
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Hi @Paris_24
Well done on making it this far 👏 Only 2 left, it will be great to finish the chemo! It really is an achievement, only those of us who have been through it can truly appreciate that fully! One of my chemo nurses did warn me that some people get a bit teary after the last chemo, apparently it's quite common, thankfully I was ok! I rang a victory bell after completing my chemo 🔔 After I finished radiation I also rang the victory Bell and I sang for the team and waiting room (I'm on my way - The Proclaimers) and we had a good laugh, sing and dance and they wore party hats when they got me out of the machine for the last time 🥳 I also took morning tea in for both my chemo and radiation team on my last day as well ( including a pack of chocolate boobs AKA ARNOTTS royals- they really look like chocolate boobs 😀). But really you should celebrate however you want to, you've earned it! Let us know how you go with your celebrations!
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Hi @Paris_24 not long to go! Congratulations! I cried at my last chemo, I don't generally, so be prepared for it. I also rang the bell 🔔 and everyone cheered. A few weeks later we went out with a group of friends to celebrate.
It takes a bit of time for the side effects to subside, so be patient, although I did spend a lot of time inspecting at my head and eyebrows waiting for hair to appear 😆
Over 2 months later and I have hair again, eyelashes and eyebrows, my nails are almost back to normal, my rashes are gone and my peripheral neuropathy is slowly improving.
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Thanks ladies for sharing your experiences. @Coastiejas so glad you celebrated in style and sounds like a high finishing chemo and radiation. Morning tea for the teams sound like a goer, love the choc boobies idea. @Katie46 - I am sure I will cry too I already am and trying to understand why 😂 - Coastiejas said it so well only those who have been on the journey can truly appreciate this point. Celebratory dinner sounds good too. Appreciate the tip that it will take some time for the side effects to go and so exciting that your hair, eyebrows and lashes are back. It helps manage expectations that I will be back to my old self, but a new self in time. I get a small break 2 or 3 weeks post chemo, likely another drain popped in for my seroma and then 3 weeks radiation before talking about hormone treatment. Sending you healing and strength every day, the path forward keeps being laid. 🪄1
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My heart goes out to you, my diagnoses was 9 years ago, I have had 9 health happy years, after I recovered from treatment. Treatments are getting better all the time. Keep going one foot in front of the other. My diagnoses made me reassess my life, we (my husband & I) made a lot of changes, we become sailors best thing we ever have done. Cancer has raised her ugly head again, so I retired myself (farmer) now it is time for more sailing, or whatever your thing is. Good Luck3
