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What do bone Mets feel like?

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  • jackie 4jackie 4 Pakenham VicMember Posts: 45
    A CT scan picked up some suspicious areas on the bone.  Bone scan showed nothing.  PET scan picked lesions up.  Pain I attributed to side affects from letrozole.  Does not pay to be a martyr, get checked :)  
  • Dory65Dory65 Member Posts: 323
    I'm sorry to hear that @jackie 4. How are on earth are we supposed to tell the difference between one pain and another? I hope it's early and very treatable. L x.
  • arpiearpie Mid North Coast, NSWMember Posts: 6,359
    edited December 2020
    You’ve been dealt a cruel hand, @jackie 4 ... we hope that the treatment will stabilise the lesions and it is then treated more as a ‘chronic’ condition xx

    Yes, we all need to be vigilant of unexplained aches and pains .... can a GP order a PET scan, or must it be a specialist?  
  • Lisa1407Lisa1407 Elwood, VictoriaMember Posts: 258
    @Dory65 I was diagnosed with bone mets right at the beginning. I had been having hip problems for over a year and had been seeing a physiotherapist regularly. With the benefit of hindsight, my hip problems were from the mets. My GP said any pain that persists longer than 5-6 weeks should be X-rayed and particularly pain that keeps you awake overnight.
  • Dory65Dory65 Member Posts: 323
    Thank you @Lisa1407, good to know what to look out for. All the best, L x
  • jackie 4jackie 4 Pakenham VicMember Posts: 45
    @Lisa1407    that is my issue.  How do you tell????  Think docs also put it down to side affects and you try to tolerate.  The initial CT scan that picked it up for me was not related to the cancer directly but from plastic surgeon on another matter.  I would never have found out otherwise.  Not sure if I'm lucky or unlucky that I found out ???  
    The area which is now painful and was the area of the bone biopsy is an area I have had problems with for years, pre cancer diagnosis. Have had physio and
    x-rays (which I guess would not pick up anything sinister).  Both breast and hip have been areas of past trauma but you get told it is coincidence.  I'm not sure now, big coincidences. 
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