New balancing act

@Canberramum - I think everyone has pretty well covered most of it .... just do what is right for YOU.

Re your first chemo treatment - maybe your ipad/music/headphones, or suduko or crossword books?  Magazines are good - but I wouldn't take a novel as there is just too much distraction going on & you'd read the same page over & over I reckon.  My husband just absorbed himself in his music list most times.  Other times, he just shut his eyes & drifted off to sleep!

Having visitors stay whilst you are undergoing treatment is just a plain hassle - so don't get conned into that one again.  If they want to visit - tell them the closest motel (or furtherest away) and you may find they will change their mind about the visit!!   We had a good friend visit whilst my husband was having his chemo treatment & after 3 days, he asked when she was leaving - so I asked if she could cut the visit short.  She was a bit 'miffed' initially but got over it & we remain friends.  (We'd stayed at her place many times prior to that as hubby did many triathlons in her town .... )

Re your kids - here is some info that you & they can access, even a kids helpline if they want to talk to someone confidentially if they are struggling ... Ronald Macdonald Houses are also available as a bolt hole for you & your family to get away to.  We have one in my town.
https://actcancer.org/information-and-support/publications/cancer-services-directory/support-for-children-and-families/

After your active treatment has finished, you can also contact the Otis Foundation who have holiday houses available in every state for BC patients - families make their holiday homes available for most of the year (except for holidays when they'd be using it themselves.)  I had a wonderful holiday in Thredbo earlier this year with my husband, brother & wife.  Depending on your treatment plan - try & organise it early on, as it can be many months before your desired 'spot' is available to you.   Everything is supplied for you - you just have to get there & take your own food & drink!
https://www.otisfoundation.org.au/directory

Wishing you all the best as you start your treatment xxx

Good luck @Canberramum.  I agree with everyone else, you decide what is best for you. 
If having houseguests will stress you out then best to be honest, I know I could not have stood that. Everyone just wants to help and feel like they are doing something for you. 
For the persistent ones I found small things for them to do so they felt they were helping,  supermarket shopping, small housework jobs or making a meal for my hubby. Occasionally I asked someone to drive me to an appointment or pick me up when I was sick or had Peripheral neuropathy.
Except for the first diagnosis appointment, I went to every appointment alone.  I could not handle seeing others with worry etched all over their faces and the small talk drives me nuts when I am worried.  I am so much better on my own as I can concentrate on breathing and relax more.
The nurses at both chemo and radiation were fantastic and they know what they are doing, I relied on them so much for information.  

Hi @Canberramum,

Everybody is different in the way they handle this.  As the ladies have said this is your gig and your rules.  Personally, I made the mistake of taking a family member to my first two appointments. They cried so that never happened again.  I took my hubby to my first chemo session.  He looked sad, so I sent him home. 
  I took my BCN if I felt I needed an extra set of ears and help to explain the lingo. 
 Dealing with other peoples emotions was far more difficult than controlling mine.
Some of us are stronger on our own, some are not.  Choose what's best for you lovely.
xoxoxo

I did chemo on my own. Couldn't bear the thought of having someone there watching, chatting, fussing. It's such a time soak. I had an allergic reaction so they dosed me up with Phenergan everytime so I pretty much dozed or slept through the whole thing anyway.

Well done, so you just have to tell the would-be helpers to keep their distance. Or find something useful they can do without getting in your hair. Looking after the feelings of those who don’t have cancer is par for the course, I’m afraid. Don’t muck around, tell them what you really need (the cleaner, the laundry, whatever) and get someone else to say no
to other ‘help’ if you can! 

Thanks @suburbangirl @Zoffiel @TonyaM @kmakm @ddon @Afraser for your comments. I don’t have anyone to talk to who gets this.  Im a fairly pragmatic person and keep a cool head. Aside from one appointment where my partner came along I’ve just been doing this alone. My son has special needs and has been in and out of hospital and seen a truck load of specialists, so I’m used to doing my research and asking questions.  

Hi @Canberramum
I totally agree with @Zoffiel !!
Last night I tried to write something, but now today see this is what I wanted to say!
I have a distant relationship with my immediate family (parents and sister) but all of a sudden they wanted to come to appointments and I knew it would be all about them; they would 'take over', despite me being confident and outgoing, not to mention my knowledge working as a registered nurse.
After days of anxiety, imagining them in the consult room, I had to put my big girl pants on and ring to say, sorry you cannot come. I always rang or emailed with updates after every appointment though. I had one of my daughters and a good, sensible friend come with me to first / important appts, then went on my own. 
Honestly, this is one time it truly is all about you. Don't let any 'do gooders' do, or sway you, otherwise! 
Your feelings, your mood, your body, your energy levels, your anxiety, your fear, your husband and children, your moving forward etc etc.
Good luck and feel free to vent or write on here anytime- this is a safe place!
xx

Cancer first (cause ignoring it is fatal) kids/partner second (they are tougher than you think) work third (if you can do it. If not, check your income insurance) Rellies who want it to be all about them, who make a mess, get in the way, take control of shit best left alone or reorganise your kitchen cupboards? Tell them to bugger off. Nicely at first, then more firmly then threaten them with garden tools.

If they want to help, money to hire a cleaner or someone to do the laundry would be helpful if that's the sort of thing that appeals to you. Taking the kids off your hands--under your terms-- during school holidays could be an idea. Anything that makes you uncomfortable is an absolute no go. Turn off your phone when you get home or turn it to silent and tell them not to ring you 'just to check up.' Which they are likely to do. At 9:30 pm. Gargh.

Don't let anyone needy or overly anxious anywhere near the oncology ward. Personally, the idea of anyone being in there fussing over me was enough to induce a panic attack. The staff know what they are doing and it's one of the few hospital situations where you have their undivided attention.

You will handle this the same way you have learned to deal with any other crisis, so set up support systems that suit you. Well done getting ahead of the game with the FB group. Hold your ground, ultimately this is all about you. It has to be. MXX

We are all different and I took time off work whilst having chemo and I’m glad I did. I was so ill from it and even ended up in hospital.Depending on where you work,you need to be mindful of germs as you’ll be more susceptible. This can also double up as a good excuse for unwanted visitors! My husband acted as the door/phone screener and he did a good job.Thank people for their offers but you call the shots as to if and when you need their help.

You have to accept help. This was something I was extremely resistant to do, and was told I'd have to the day I was diagnosed by my BS and breastcare nurse.

BUT... this is the time to be 100% selfish. You have to be, for your own wellbeing and protection. So circle the wagons and play that cancer card very firmly. If necessary get your husband to say no to the people you don't want in the house. You can emphasise that you want to keep things as normal as possible for the kids.

Many people bring their own emotions to your experience of cancer. This is a normal human reaction. But as you've identified, sometimes this is too much for you, the actual person with cancer. You get to say no. This is the time to say no, and yes, on your terms. You are the boss of your cancer experience. K xox