Just need to talk to someone
I’m 59yo and newly diagnosed with breast cancer. I’m really not sure I get what is going on either because I’m just slow or it’s just not all clear yet so I feel confused, in total panic and that I’m drowning and there is nobody to save me 😢 I am waiting for an mri this Thursday. I have a 10cm Not Special Type Grade 1 something positive to do with hormones and her2 1+. The surgeon says mastectomy is the only choice because of the size. There isn’t anything clear about what happens after that… is that how it’s meant to be? I just feel very lost appreciate any words of wisdom for these circumstances? susan
WHO do I tell?
I was diagnosed with early-stage breast cancer 2 weeks ago and had a lumpectomy with sentinel node biopsy last week. I’m recovering , but figuring out support has been tricky. I’m single, with a small close circle — amazing women who are already doing what they can, but they’re busy and going through a lot themselves. I know I need more help, but the next layer of friends includes people who always overshare others private news. I’m hesitant to open up, even though some of them might be able to support me practically. I also love my privacy, alone time I'm not good at asking for what I want/ need - and so far have managed. So I’m a bit stuck between needing more help and not being sure who I feel safe relying on. Has anyone else struggled with this? How did you decide who to tell or lean on — especially when trust or privacy was a concern? Should I even worry about privacy - would it be so bad if the whole world knew...? I prob feel it might from romantic and future job perspective... Thank you in advance!
Papillary Lesion - overwhelming anxiety
Hi Everyone, Sorry if this isn't the right place for this post, but I'm feeling overwhelmed and very alone right now. I have been a member here for 13 years and it's crazy to think that it was initially to help support my mum with her breast cancer. Now, here I am with my own possible issue... My mother developed her breast cancer (stage 2c) at age 46, the same age I am now. She's alive and well after treatment (partial mastectomy and hysterecotomy), but it's also meant that I get my boobs checked regularly via mammo and/or ultrasound. This year, they found a 'papillary lesion or complex cyst' - that's what it says on my GP's referral for me to get another U/S and a core biopsy if needed. I mean, it's hard to NOT know someone who's been through a breast cancer journey these days. There are so many women who've experienced it. I've always felt like my turn was just around the corner. What's probably made me even more anxious is that my dear cousin is battling Stage 4 MBC and I've been in contact with her frequently to try and support her. She and I are in very similar circumstances (ie. living alone with kids) so I can't help but feel very deeply for her. I think holding that emotional space has done a number on me... Compounding the issue is that I have pretty severe PTSD which I've got under control for years now, but suddenly I'm having panic attacks and struggling to do even the most basic tasks. I have no idea what I'll be like when I get the results of the second scan/biopsy. I live alone with my 17-year-old (who has special needs). Frankly, I'm terrified and the fear is paralysing me. GP is urging me to make mental health appointments to get it under control. What will happen to my child if I get sick? Sorry for the ramble. Any advice or wisdom would be so appreciated. I feel better just making this post. Thanks, Effy.
Fluoxetine and Letrozole
Hello folks, I'm wondering if there is anyone in this community with experience of low mood being exacerbated by Letrozole. I have been on Fluoxetine for many years but am finding after six months on Letrozole my mood has become very low. Does anyone have a similar experience and what have you done to alleviate it? I have an appointment with a GP to ask about it but would like to read about other's experiences and fixes.
2nd operation DCIS
Hi all, Was diagnosed in Feb this year with high grade DCIS, 3 small tumours. Lumpectomy 3 weeks ago. Pathology report came up with not clean edges. The surgeon said I have two options, do another re-excision with most likely radiotherapy and endocrine therapy, or mastectomy. I have a family history of breast cancer. Has anyone been through this desición before? What was your experience like? outcomes? Thanks for sharing
Feeling scared and just a bit angry
Hi, I'm Karen, 61yo, from Victoria. I was diagnosed in September, my birthday actually, I was numb. I had been dealing with a very coercive relationship, narcissism, gaslighting the lot, to be told this news was just too much, I had all sorts going through my head, How do I tell my children? How do I do this? Why me? Everything was so hard to process and even now I'm struggling. I was told it was an Oestrogen based cancer, sorry I cant remember much of that conversation, but 2 Biopsies, the first one they biopsied the wrong lymph node, Pet scan, M.R.I and blood test later to be told sorry its not good news, well having a lump in the breast isnt good news anyway but, I had my right breast and Lymph nodes removed, then to be told its bad news I'm so sorry was another kick in the guts, 35 of my 36 nodes were affected, so onto another more thorough Pet scan, blood test and M.R.I, To get the good news that it wasn't anywhere else in my body. Now I'm preparing for Chemo to start on the 2nd of Jan and I'm absolutely terrified, I have no emotional or any other support at home, even though I'm told everyday that he cares, they say actions speak louder than words well Im yet to see any, my son who is my heart, doesn't know how to deal with this and neither do I. They have just had an Eptopic pregnancy and I'm hurting for them, we were all so excited and happy. I don't know what to do or how I'm going to do it, my living situation is so toxic to my mental health and is impacting on my son and daughter-in-law as well. My partner is trying to get me out of the house and that is something I can't deal with at the moment as I'm trying to deal with being there for my son and daughter-in-law and Chemo, I feel like I'm rambling, my life is a mess, I just don't know what to do. Sorry for the rambling talk I'm not very good at putting things on paper, everything is very disjointed.
Newly diagnosed - feeling lost despite stuff happening.
I was diagnosed a few weeks ago, rarer invasive mucinal carcinoma. Coping well with what I know is happening but not so well with what I need to do, or where to get explanations. I’m having a Scout clip implanted tomorrow because I can’t have the MRI my surgeon requested. I have a CRT (heart) device and MRI was requested because the cancer is not well defined. So now I won’t know extent, lumpectomy, mastectomy, until the operation. Operation is on 28th. I guess my main thing is who to talk to about what will happen next. Having Pre Op stuff at GP next week, but do I just wait until the hospital gives me more detail? Do I ask to see a breast care nurse, there’s one at the surgeons office? Seeing GP I have so much to ask and take in because I’m on lots of drugs for too many health issues and I have to stop some, take less of others. And my normal confidence has flown the coop. Is this just a normal reaction?
Waiting, waiting, waiting + frustration
I’m sorry, I’m really making the most of the solidarity here. It’s been almost 3 weeks since my diagnosis (43yr old, Grade 2, ER+ PR+ HER- mixed lobular/ductal) & I’m usually a super patient person, but I’m feeling quite down. I go for my PET scan & MRI tomorrow morning, early. I’m then seeing the surgeon again next week for hopefully a bit of a plan for treatment. I’m sick of not being able to plan or commit to anything. I’ve kept working as much as I can, but I’m getting sick of being told about friends of friends who have died of BC, or at the other end that ‘it’s so treatable & nothing much to worry about’. This morning I had my first real big cry, which made my 10yo daughter cry too, which made me feel worse. I cried because she has a grotty cough & so we had to take her with us for the 4 hr trip to our nearest imaging place & not send her to school or expose our neighbours to her germs. I cried because my oldest daughter had to stay behind. I cried because my oldest daughter turns 13 very soon & wants to be excited & plan her birthday, then she flips & apologises & says ‘don’t worry about getting me anything Mum’. I really know now how it feels to feel like a burden. I told my husband I should have just gone alone this trip, but he insisted on coming to keep me company, which I do appreciate. I’m so lucky really to be surrounded by so much love & well-intentioned support, but I think reality is really starting to sink in. I’m already sick of doing the 8hr round trip for the nearest cancer care, yet this is only the start. How do I decide what surgery is best? I don’t care much about my appearance, & I think a mastectomy & going flat makes the most sense, causes the least disruption to my family, but I feel quite sad still about losing my breast. Ugh. Anyway, no need to reply, just needed to get this off my chest.Support with coping
I've just been diagnosed with invasive breast cancer NST, I haven't been told what stage or what kind yet. I'm 27 and this has come as a major shock to my family and I. I'm struggling with how to cope, major low feelings and significant worries about what the future brings, especially given my age. I'm hoping to be provided with some reassurance or advice or tips... or anything lol Thanks so muchMum with young children-how do you cope?
I’m 35 and was diagnosed with a 22mm IDC last month and DCIS, booked in for mastectomy in 10 days. I found my lump while breastfeeding, I have a one year old and a four year old, this diagnosis flipped my life upside down. Still dealing with crippling anxiety, every time I look at my kids or try to spend any quality time with them my fear of not being around for them comes up and I start crying. The sadness and crying is worse at night. Please share some coping mechanisms. I started tamoxifen and zoladex mid Feb so I don’t know if the emotions are also exacerbated by those.
