Forum Discussion
cranky_granny
6 years agoMember
The answer wasn’t clear
Well I’m off to see Oncologist on Thursday
am i silly to ask.
am i silly to ask.
The answer to the proposed radiation was delivered to me by by the nurse coordinator that I wouldn’t be having radiation and a letter would be sent to my GP. None arrived at my visit with him this week so
the question
is the sclerotic bone lesion in the Sacrum metastasis
or is it the result of the coccyx pain which is now easing with the anti inflammatory tablet.
and the smaller lesion on the chest bone.
is the sclerotic bone lesion in the Sacrum metastasis
or is it the result of the coccyx pain which is now easing with the anti inflammatory tablet.
and the smaller lesion on the chest bone.
And
How long will i be on tamoxifen do the side effects get less. Though i am getting less joint pain everywhere compared to the anastrol , but the hot sweaty flushes the Headaches and disturbed sleep and always feeling like i want to punch someone out Let alone the sudden feeling of dread that something is wrong. Feeling like I'm carrying lead weight all over. The tinnitus has trebled and the vision gets blurry
there you go another load off.
How long will i be on tamoxifen do the side effects get less. Though i am getting less joint pain everywhere compared to the anastrol , but the hot sweaty flushes the Headaches and disturbed sleep and always feeling like i want to punch someone out Let alone the sudden feeling of dread that something is wrong. Feeling like I'm carrying lead weight all over. The tinnitus has trebled and the vision gets blurry
there you go another load off.
Now all i have to do is last till Thursday
writing this all down Might help me remember.
writing this all down Might help me remember.
Then again my brain is mushy half the time
I know others are worse off but sometimes it’s lonely and the why bother creeps in
23 Replies
- NefertariMember@cranky_granny good luck with all your appointments, thinking of you x
- arpieMemberLooks like you’ll be kept busy, @cranky_granny ... all the best for those tests and your results xx
I will look for plenty more funnies for you xx - cranky_grannyMemberBlood test 13 febNew bone scan 13 feb
psychologist 14th feb
Oncology on 21st for results
told best to stop anti inflammatory As they are not good long term with reflux and hernia and other stomach issues
Now just to survive till then
i will keep reading the past and present Friday Funnies Posts - TempleMemberI’m grateful for the insights shared here, thank you again. Remembering that overwhelmingly I am angry at cancer more than anyone or anything else and most times people are doing the best they can even if at times, it falls somewhat short of expectations that I am still learning. 🙏
- NefertariMember@Temple, that is very sad to hear about your work situation, no it is not fair.
On the flip side of looking through a different lens, it has also allowed me to see some truly wonderful people.
Some people in my life have really surprised me with their kindness and support, just small things that mean a lot.
@kmakm. Yes the "you're okay right?", pity look. I just usually say yep or I hope so, you are right few really want to hear about your aches and fears lol
@Afraser - thankyou for the explanation of the word remission, I think I will just go with the "I've got the all clear for now" response. I just wish people would stop asking so I can distract myself with other things. - TempleMemberBefore cancer I assumed people who did have cancer were better supported.
Taking my foot off the pedal at work while I do radiation, I’ve been a bit forgotten and left out of things that is not fair and franklyI’m really pissed off with staff. I am the boss, but this is very undermining and people will use my temporary absence to their advantage.I’ll deal with them when I return in January though 😆😂😂
But it does let you see people through a different lens, often not in a good way either! - kmakmMember@Nefertari Just today I was asked that raised-eyebrow-and-you're-OK question. These days I just smile and nod and say yes, all looking good, or something like that. If people have a follow up health question I get into the NED conversation. And/or Letrozole. But it's a whole can of worms to open and really, who wants to listen to that?
It's a reality that with a few exceptions, the only people who know about the ongoing effects of a breast cancer diagnosis are the people who have it and those very close to them.
I've found that genuine empathy has come from the older people I've met along the way. People who've lived long enough to have had serious health issues themselves. It's a life wisdom I suppose.
I'm striving for acceptance for the chronic pain and mobility issues I now live with. Part of me still rages in an 'it's not fair' kind of way, mentally lying on my back and drumming my heels into the floor like a toddler! But nothing ever is fair and there's a whole heap of people who aren't here anymore who'd love to be, screaming ankles and all. So I strive for grace, and as you say, when I need to unload I come here! K xox - AfraserMemberAs I understand it, remission means that an identified cancer is not progressing - still can be identified but halted or even reducing (size, impact). No evidence of disease (NED) means just that - any known indication of cancer is no longer there. Used warily, because there is no 100% means of saying that you have no cancer cells at all. All of this of course applies only to cancer itself, not to the many impacts that treatment may have, directly or indirectly. Most people still understand that if you are better, all of you is better which with cancer may not be the case at all. Offload wherever you can! Best wishes.
- NefertariMember@Temple, brilliantly worded. You have captured the exact feeling, some people actually squirm when I tell them how I really am, so I've stopped telling them.
They just want me to say Im in remission, I cannot say that as no medical person has said that to me and I dont really understand what that is for a BC patient?
Yes it is lonely and that is why I come to the forum, people here really get it. I offload a lot to my psychologist, she is a saint but then I start worrying about her mental health lol - kmakmMemberPerfectly put @Temple! I'm exactly the same, and it does end up with making you feel lonely. I've just had the most appalling night's sleep, waking up six times due to a combination of hot flushes and the insane levels of Letrozole pain in my legs. Not saying a word about it to anyone. It is what it is but gosh it's hard. Big hug lovey, and you too @cranky_granny. What a shit time you've been having. I hope you'll get clarity and a plan from Father Christmas this year! K xox