Invasive Lobular Cancer (ILC)
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There was something in that ILC webinar about Letrozole but don't have time atm to look for it0
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letrozole is an anti-estrogen0
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What can I say? 15 years after being diagnosed with infiltrating ductal carcinoma, I was diagnosed with invasive pleomorphic lobular carcinoma. I still have severe and generalised bony metastatic disease as well as some liver secondaries. I am living my life to the best of my ability. I have just been on a long overseas trip. Hope to be around to see any grandchildren that come along.
No use complaining about anything. Who is going to listen?1 -
Oh! I love raw honesty .. great comment berry!1
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Sorry, I meant that there was something in the webinar about the stats around letrozole and ILC...0
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Hello everyone,
We have been reading this thread with interest and thank you all for your feedback and comments.
The team at BCNA have been in discussion as we have also received some emails regarding ILC. We are currently following up a few different channels and are in the process of formulating a coordinated plan and will keep you posted via this thread.
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this is slightly off ILC's impact but my hair is really slow growing back. Finished chemo the end of Feb and barely have 1cm.
anastrozole - Al- can cause bald spots. Can it also cause slow hair growth? I want to see the old me when I look into the mirror not the ex- chemo sap.(didn't tolerate chemo).
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Thanks Giovanna. hi Berry..Ive noticed my hair has thinned since being on Arimidex.It doesnt fall out just seems to retard thickness. I havent noticed it affects other hairyplaces on my body.I havent had bald patches.The question may be " How does oestrogenaffect hair follicles? What other parts of the body are affected when oestrogen activity is suppressed?Definitly eye health. May also be compounded by the drugs you had on chemo?Itd be a great question for the webcaast on June 6 re Hormone Blocking Therapy and its effectson other organs in the body especially skin, Hair, eyes. Love your discussions and knowledge.0
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I am not going off hormone blocking since its the only drug ILC really responds too. Apparentantly eggs are good for eye health since they have the same enzymes that your eyes have which protect eye vision. A women on the American FB page had a picture of her hair growth after 3 months and it was similar to mine, knowing that has quietened my anxiety. To find out the total effects of oestrogen suppression it will be dr google for me after I get back from my week at a buddhist retreat. 2 degress at night and 7 during the day. ouch. kindly-a possible frozen berry. lol
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Hi Berry
Retreat sounds great..much calm1 -
Haven't heard any media warnings on drinking and breast cancer recurrence but have heard Breast Screen Victoria's advertising knowing lying to Victorian women. When will they advertise the facts. I think I will make a complaint ACCC on misleading advertising except I can't remember which media I heard it on. I promise myself to pay attention rather swear abuse at those lame ducks.0