new bone lesions....help whats next for me

Lisa1407 · January 2019

Hi @Joinmelb
Sorry to hear that you have more bone mets than originally expected. Your treatment probably won't change as you just have more mets all of which are bone. They may hold off on radiation. I have lots of bone mets in and around my right hip and I have chosen to leave radiation until I am in more pain as radiation (for me at least) is not about controlling the cancer but is about controlling pain.

You can still have lots of success on the drug combination even though you have more bone mets, so don't get too worried.

Sorry also to hear about your husband - I think your cancer is more likely to be caused by him! Although there is no data to support, I am a firm believer in stress causing cancer. Also, many of us were diagnosed with cancer not long after stressful divorces!!

Look after yourself
Lisa xx

Finch · January 2019

@Joinmelb , sorry to hear about your mets. Don't ever think you're to blame for your breast cancer. Nothing you've done has caused it. You are well rid of your husband and as someone else said, he probably caused it from the stress he gave you. I too believe internal stress has a lot to blame . Wishing you the best.
@Angelo thinking of you also, take care. Hugs xx

MeganM · February 2019

@Joinmelb I’m in the same boat and on the suggested treatment plan. Hope by now you’ve been able to meet again with your Oncology Team and they have provided answers and some reassurance too

Joinmelb · August 2019

Hi all,
Just thought I should pop in and give an update to you all.
My tumour markers on bloods are dropping still or remaining stable so the combo of letrozole and ribociclib is definitely working!! I've had repeat bone scans which showed my shoulder tumour which didn't show up on original bone scan (but did on PET scan). I thought this was shit news as I figured it meant it had progressed but nope oncologist assures me that's the way a healing bone will show up on a bone scan. I trust her implicitly and have a deal with her that she's not to sugar coat anything! Despite weight gain, which i can live with, I've only really noticed considerable tiredness but as a single mum who is still working she assures me most people would be bloody tired with what I deal with every day!! I'm still managing to work part time and have actually increased my hours this last few months as cancer isn't exactly a cheap thing to have! I'm surrounded by amazing family and friends who have my back at all times! I cried recently when my breast surgeon made a review appt for June next year and I said that 6 months ago I didn't think I'd be here to be making appts in mid 2020! I'm trying to take each day as it comes and be grateful for the amazing advances in treatment every day
Much love to all xoxoxoxoox