Thanks for sharing the
difficulties you have had with receiving the acknowledgement and support for
your physical and emotional needs from first being diagnosed right through your
whole experience including the ongoing sequelae of cancer treatment especially
with AIs, the ongoing emotional impact, sleep disturbances etc . Our State of
the Nation report that we published this year based on interviews/surveys with
over 13,000 people around Australia raised very similar issues to what you have
raised here including the need for communication training for healthcare
professionals working with cancer patients.
Here's the link to it if you
haven’t already read it.
a result of our findings there are a number of advocacy issues we are focusing
on in 2019.
1. To increase the number of
breast care nurses, particularly metastatic breast care nurses and especially
in rural areas.
2. To increase the number of
Medicare subsidised allied health appointments from 5 to 10 (so if you require
counselling this would be in addition to the appointments you are entitled to
through a mental health plan).
3. With funding from Cancer
Australia we will continue to develop the My Journey online
tool so that it will provide those who have completed hospital based treatment
with a comprehensive range of tools and information to help manage your ongoing
psychological and physical care needs according to your preferences and inform
you about helpful programs and services.
We'll keep you posted on progress
in these areas and will probably ask for your assistance at some stage.