Hi Im new to this network - maggiew

This discussion was created from comments split from: First Oncology appointment - what to expect/ask?.

Comments

  • maggiew
    maggiew Member Posts: 1
    edited November 2018
    Hi, I'm new to this network, I hope its ok to chat here. I was diagnosed with breast cancer in August and have already had a left breast mastectomy. There were some lymph nodes removed and checked also and cancer was found in one of those. So I had the remaining nodes removed just 10 days ago.    I have read many of the comments here and wanted to say thank you for sharing them. I have been so confused about what treatment I would need and how long it would take to recover etc.. I have received "advice" from so many well-meaning people close to me that I became lost and confused by it all. From your messages here I can see that I need to get as much information as I can about my own individual case so I can decide what is best for me. I have my first appointment on Tuesday to discuss my treatment as determined by the pathology from the lymph node removal. my fingers are crossed.Thank you again.xxx
  • SoldierCrab
    SoldierCrab Member Posts: 3,429

    Below are a couple of links to help you find your
    way around the forum and also how to find a breast care nurse and how to order
    a MY journey Kit if you haven't got one yet. 



    It can be a whirlwind when we first get a
    diagnosed.... Breathe and take it one step at a time. 



    Navigating the online community
    formerly the what and how thread.

    http://onlinenetwork.bcna.org.au/discussion/14879/navigating-the-online-community-formerly-the-what-and-how-thread

    Breast Care Nurses

    https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx 

    My Journey Kits and other
    resources. 

    https://www.bcna.org.au/resources/

    BCNA Helpline 1800 500 258

    If you have any questions, concerns or require any further
    information or support please call 1800 500 258. BCNA’s helpline will now be open from
    9am-6pm Monday to Thursday and 9am to 5pm Fridays.  

     

    How to understand your pathology reports

    https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/breast-cancer-pathology.html

  • SoldierCrab
    SoldierCrab Member Posts: 3,429
    hi @maggiew welcome to the forum we will always answer questions and give links etc to help you through this time. 

    Sorry you have need to join us but we are all a supportive group of women who each has/had breast cancer and can support and share with you our ups and downs so you can work out what is right for you. 

    I have put some links above for you. 

    Soldiercrab

  • Brenda5
    Brenda5 Member Posts: 2,423
    Welcome. I had the same ops on November 2015 followed by 4 doses of chemo  during 2016 and then I was put on hormone therapy which I am still on. Check ups every six months for 5 years. I did not require radiation. Just keep an eye on your nodeless arm during chemo. If it starts to swell at all, get oncology to get a physio to see you. I had to wear a compression sleeve and odd times even now I have to put one one for a while.
  • SoldierCrab
    SoldierCrab Member Posts: 3,429
    Maggie Just type in Blank

  • Giovanna_BCNA
    Giovanna_BCNA Member Posts: 1,838
    Hello @maggiew welcome to the online network.  Checking in to see how you are going?  Dont hesitate to call our helpline on 1800 500 258  if you would like to speak with a cancer nurse for information and support.