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Newly Diagnosed - TNBC - Mantis



  • kmakmkmakm MelbourneMember Posts: 7,898
    edited November 2018
    @Wonk Yee ha! Love it! Thank you  :D:*<3
  • SoldierCrabSoldierCrab Bathurst NSW Member Posts: 3,266
    https://www.facebook.com/groups/1166665270079659/  this is a facebook group for TNBC 
  • MantisMantis SydneyMember Posts: 58
    Love it @Wonk

    Thanks so much @SoldierCrab. Have sent a request to join xx
  • primekprimek Broken HillMember Posts: 5,347
    My hair grew back on taxol...no colour but hair nobe the less so you might start having regrowth.
  • MantisMantis SydneyMember Posts: 58
    7 rounds of Taxol now done with only 5 to go. I’m traveling ok, the worst thing is the leg and pelvic aches and pains.  The little hair I had left is slowly disappearing and my eyebrows and eyelashes are thinning too.

    I have my radiation planning appointment the week after I finish chemo then I’m booked in to have my port removed the week after that. Then it’s 20 fractions over just over four weeks and hopefully it’s done! I know the end of active treatment can be just as hard as treatment itself but it feels good to be able to see the end for now.

    One thing that could change things is results from genetic testing which are due just before chemo finishes. I have a greater than 10% chance of a BRCA mutation so will just have to wait and see ....
  • primekprimek Broken HillMember Posts: 5,347
    Hoping like me it will be negative and no further surgery will be needed. 
  • SisterSister Adelaide Hills, SAMember Posts: 4,588
    It does seem that the road is long but you will get there.  It's a great feeling to be able to start ticking things off.  I'm not sure who said it first but I agreed that on AC-T you seem to count up for the AC and down for the taxol.  And as you say, port removed, rads...  End of treatment is wonderful but, as you say, it can also come with a bit of anxiety and depression.  But you can get through that, too, particularly if you're aware of it.

    Fingers crossed for your genetic testing.
  • MantisMantis SydneyMember Posts: 58
    Thanks @primek, fingers crossed.

    And thanks @Sister. So right about counting up and counting down!

    I’ve been up and down so my Oncologist suggested I make an appointment with a Psychologist which I’ve done for the end of January.
  • kmakmkmakm MelbourneMember Posts: 7,898
    Good move. I'm seeing mine next on the 3/1. She's trying to help and I like her approach.
  • kezmusckezmusc Member Posts: 1,469
    Yahoo @Mantis.  Feels good huh?  Congratulations.
  • SisterSister Adelaide Hills, SAMember Posts: 4,588
  • kmakmkmakm MelbourneMember Posts: 7,898
    Bloody brilliant @Mantis! Well done! K xox
  • SoldierCrabSoldierCrab Bathurst NSW Member Posts: 3,266
    Congratulations Mantis  

    Rads is a walk in the park now 
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