Friday update 2 March 2018
Hello everyone and welcome to
Fridays update. How fast have the last
couple of weeks gone, we are already in early March! There is lots happening at BCNA with work
underway for BCNA’s 20th Anniversary celebrations.
A great article was posted in the
online forum titled “Breaking taboos: talking about the sexual side effects of
breast cancer treatment”. It
featured interviews with BCNA’s Director of Programs and Services, Kirsten
Pilatti and our very own @SoldierCrab.
New
online network members
We have had 96 new members join
our online forum in the last 2 weeks.
Welcome everyone! Here’s some information to get you
going.
Don’t forget, you can always
direct message one of the BCNA moderators if you have any questions or need any
support at @Giovanna_BCNA, @Marianne_BCNA, @Rosie_BCNA, @Tracey_BCNA or
@Riki_BCNA or call our Helpline on 1800
500258.
In
the news
As discussed in the last update, we
will be introducing our online network moderators and other BCNA staff in each
Friday update. This week its Rosie’s turn.
Thank
you for this opportunity to introduce myself to the online community. My name
is Rosie and I joined BCNA in March 2017 with my first day being at Summit on
the Sunshine Coast – lucky me! This was a wonderful introduction to BCNA and I
was able to meet many women and men who are actively engaged with the
organisation. My role is Program Coordinator of the Helpline where I work
with a team of cancer nurses and Helpline officers. I am a Registered
nurse with extensive experience in community nursing, research, and cancer
care, including working in a Chemotherapy Day Unit, a community palliative care
service, psychosocial research unit and the Cancer Council Victoria –
Information and Support Service. Prior to joining BCNA, I worked with the Royal
District Nursing Service but I really missed working within the cancer sector.
Outside work I love catching up with my friends, doing yoga, travelling if I
get a chance, and spending time with Andrew, my husband, and our miniature
schnauzer, Mr. Chompolicious AKA Chompo.
2018 Pink Lady Luncheons
We’re
thrilled to announce the 2018 Pink Lady Luncheons in Sydney and Brisbane. You
can be part of our events team and assist in the following ways: volunteer at
the luncheon, source prizes or help sell tables by promoting to corporates and
social media. Above all,your help to raise awareness of the luncheons is
invaluable. For more information please see our website or
contact BCNA at specialevents@bcna.org.au.
BCNA 20th Anniversary
Field of Women
We are thrilled to announce
that we will celebrate our 20th anniversary in 2018 with our fifth Field of
Women.
In 2018, it is estimated
that 18,235 Australians will be diagnosed with breast cancer. Our aim is
to have this number represented by women, men and children in the shape of
BCNA’s Pink Lady.
The Field of Women will
take place on Sunday 12 August at the MCG during Round 21 of the AFL match
between Melbourne and the Sydney Swans.
The event will also
coincide with the Plan B Survivorship conference that will take place on
Saturday 11 August at The Glass House, Melbourne.
https://www.bcna.org.au/news-events/events/field-of-women-2018/
Upcoming forums
BCNA has a number of information forums being
held across Australia over the coming months. Go to our website
for further information about upcoming forums.
Our
next forum is the Financial Information
Forum on Thursday 15th March in Melbourne.
Expert guest speakers will provide you with information and practical tools to
help manage challenges such as:
work
supannuation
Centrelink
For
further information and to register for the forum go to our website
Ribociclib and Palbociclib Campaign:
BCNA is calling on its members and their supporters to write to their
local federal Member of Parliament and state or territory Senators to urge them
to support the listing of ribociclib and palbociclib on the PBS. Information
regarding the campaign including letter templates and a list of federal
members and senators can be accessed via this link.
A number of our online members have already
written to their local members and some have posted their letters online. You can
look at the posts here
Please take a look and encourage your family and friends to do so
too.
Join our campaign to have ribociclib and palbociclib
subsidised in Australia
BCNA Helpline
Have you had a good experience with the BCNA
Helpline? We want to hear from you. Share your experience as a comment on this
post or email Essie at ebohan@bnca.org.au
If you have any feedback regarding
the Friday update please contact @Giovanna_BCNA
Safe travels everyone, hoping you have a restful weekend
Giovanna
Comments
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I have had such an wonderful experience using this helpline. I don't know even where to start. At the beginning, being welcomed, have a resource to access and ask questions about procedures, reports, expectations, what things really meant, when I was feeling so overwelmed and overrun by white noise. Knowing there were so many people (and some who stepped up in a such a way) understanding what I was going through and willing to give their perspective and/or call on others who could perhaps give better. Real help with research through personal experiences, advice and assistance but never "in you face". Laughter when I most needed it. Support, of which I have tried in my own way to give back. Almost none of these women (and men) will I ever meet face to face but they are there with me every day while I am trying to negotiate this minefield. So, have I had a good experience? Too right.
However, if you want one that is easily quantified and led to a medical-type decision made, the Port or not to Port discussion was excellent. I have actually referred others outside this group to that. Everything else just falls into the general amazing.6 -
Hi there @Giovanna_BCNA what’s involved with volounteering at the bcna pink lunch in Brisbane and how can I get involved. Might be able to recruit a few for you too if needed. Margie xx1
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Hello @onemargie
Thanks for your question and my apologies for the late reply. My college Chloe is coordinating this event and is happy to be contacted directly. Her email is cdouglas@bcna.org.au or can be contacted via our helpline 1800 500 258.
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Hi there giovanna. I’ve heard from Chloe and she has penciled me in thanks. X1
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What happened to the Friday Update this fortnight ?????0
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Hello @SoldierCrab
We are sending it out tomorrow (Monday) just to confuse you all!
Sorry, should have let everyone know. I was waiting for some further information for the update, prior to posting.
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It doesn't take much to confuse these days...I would just think I had the day wrong.1
