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Newly Diagnosed



  • PatsyN
    PatsyN Member Posts: 296
    @Romla I have aloe growing on both sides at my entrance. For any kind of burn I just break a bit off and let the gel drip onto my skin. It's very soothing.
    @arpie I totally agree that Manuka honey is pure magic. Ask any horse, whose wounds cannot be bandaged. When mixed into a paste with tumeric there's nothing that won't heal.
    A poultice, used to heal wounds for centuries is what I'd be looking for. There are many different combinations. They use only organic matter  easily obtained.
    After all @shann, the medical profession doesn't seem to be helping.
    I don't know any except the honey and tumeric one but I'm sure google with give you lots of results if you key in poultice.
  • Romla
    Romla Member Posts: 2,092
    @PatsyN not sure about honey.

     They have antibacterial honey for wound healing available at the Chemist. I used to put it on my son’s face as he had a small area of psoriasis- flared up bright red then gone in the morning top stuff.

    Am not familiar with Manuka’s purity but heard the name and seen pots in the supermarket just worried about whether bacteria might be in it. Can you advise a bit more ?
  • arpie
    arpie Member Posts: 7,020
    edited July 2018
    @Romla ....

    Proper Medical Grade Manuka Honey is collected in NZ & has specific healing properties that is anti bacterial & has been sterilised (read the info below.)  I believe that every 'batch' has to be tested to maintain the 'Medical Grade' rating.  The name comes from the Tree that the bees harvest from - usually found on coastal edges is a variety of 'Ti Tree'.  It costs more than 'eating honey' - so you probably wouldn't use it in your tea or on toast!  ;)

     Australia has their own version from the Aussie Ti Trees, too (sometimes called Jelly Bush.)

  • PatsyN
    PatsyN Member Posts: 296
    @Romla Honey is anti-bacterial.
    It kills bacteria so I'd be surprised to hear of any bacterial honey.
    It's one of nature's gifts.
    But it's gotta be Manuka honey.
  • Romla
    Romla Member Posts: 2,092
    Thanks ladies did think it might be for a gourmet’s toast as very pricey. @PatsyN am very keen on honey and fed my kids honey yogurt when tummy gastro problems as well as for psoriasis just wasn’t sure about it on open wounds. Will do a bit of reading @arpie.
  • Romla
    Romla Member Posts: 2,092
    Wow amazing gear - apologies @PatsyN been buying Medicinal honey from the chemist for years - wonder if it’s a small tube of Manuka must check.

    Thanks @arpie for sparking my interest in the product’s properties just a little concerned if spotted by my teenagers with their current consumption rate.
  • lrb_03
    lrb_03 Member Posts: 1,266
    Hi @shann I've been following your story. Just another random thought, from a nurse to another.  Is it worth contacting your state wound care association,  and asking them to throw it out there for suggestions? Get them brainstorming, tell them they can write it up or somethijng, but get them working for you.
    Thjnking of you you, 
    Take care
  • Sister
    Sister Member Posts: 4,960
    Back to Manuka - apparently a lot of stuff on the supermarket shelves is not pure manuka so beware.  You'd want the medical grade.  However, honey has been used for it's anti-bacterial properties for centuries.  I remember a poultice my Mum used to use which was sugar and soap to draw out deep splinters and thorns but I'm getting off-topic.  
    @shann I don't want to bombard you with suggestions (especially ones that you may already have investigated) but have you thought of contacting the big overseas cancer centres.  Almost certainly, with the larger populations, they will have seen something like you are going through and may be able to help.  I had a friend, many years ago, with a different type of cancer - they could not even work out what was wrong with her here until a junior doctor joined some dots and, to cut a long story short, never seen in Oz but a handful of cases in US.  I know this is a completely different scenario but if your doctor is not willing to help, it may be worth exploring.
  • Kiwi Angel
    Kiwi Angel Member Posts: 1,952
    We use special Manuka honey in the Veterinary clinic for some animals with open wounds. 
  • kezmusc
    kezmusc Member Posts: 1,544
    Just to touch on what @Arpie & @PatsyN said.  I have used both Manuka honey and a product called Sea Minerals cream on horses with amazing results.  The sea minerals cream I used on my cesarean scar (stings a little mind you) and threw a bit on the scar under my arm I figured if it worked so well on gaping wounds on animals it couldn't hurt right.  There is probably a human version of it but it's what I had in the stable so why not.  Both scars are near invisible.  You've probably tried most things but you just never know.  I do hope you get it sorted soon.  xoxoxo
  • shann
    shann Member Posts: 68
    Thank you one and all for your suggestions.  I have tried most things at the hospitals advice not to.  I allergic to bees and bees wax which ruled out the manuka honey.  I have tried the 100% oil but did nothing not even to the actual scar.  My body may just won't to be left alone.
    To @sister I have emailed quite a few but no replies as yet, I even emailed the 2 surgeons on the show botched but the only reply I got was a list of prices to see them.  But still trying to look into many things.
    I was back at the hospital again as I have to go on Fridays to be on the clinic as that is the only day the surgeon works but nothing but pump off and another on as they can only stay on for 7 days.  This is the only thing that seems to help but as soon as they take it off my wound just opens up again.  So stuck with what to do as I have no life with this pump can't even drive my car any where.
    I will just keep going as I always do.
    Thanks again to everyone. xx
  • arpie
    arpie Member Posts: 7,020
    Oh dear ..... that really sucks big time, @shann .....  shame you are allergic to honey/bees!  :(

    How about Silver Dressings?   They used one regularly on an open ulcer on my hubby's leg & it aided in closing it fairly quickly .... when nothing else worked.  (We hadn't tried Medical grade honey or other options above tho!)   Usually the Community Nurses administer it every few days ..... it could be worth a question to the specialists?

    All the best ... thinking of you xxx

  • [Deleted User]
    [Deleted User] Posts: 0
    edited July 2018
    The user and all related content has been deleted.
  • shann
    shann Member Posts: 68
    Hi @arpie
    They usually use silver dressings for infections (which I don't have) but unfortunately react with blisters and a rash to these.  My skin does not seem to tolerate much at all unfortunately.  But thank you for the suggestions. xx
  • Romla
    Romla Member Posts: 2,092
    Maybe a long shot @shann but I remember an amazing surgeon in WA after the Bali bombings treating some terrible wounds and burns.Think she became Australian of the year Dr Fiona Wood - she is a plastic surgeon in Perth.