Newly diagnosed today and feeling shattered.
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Hi nonkyboy, i recently had mastectomy on 14/6, the hospital also provides you with a post surgery bra which has been really supportive. I was in a private hospital, berlie also sends a complimenrty bra with the kits. The breast care nurse will assist also.
I am now finding that the ahhh bras are great support also, i use the padding of the other side in one breast by doubling the padding. That seems to give some filler as i havent had reconstruction. I use it 24/7...take care...xxx
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That's good to hear Hulos. I hope you are recovering well x0
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Hi nonkyboy, i initially had lumpectomy and lymphs removed on 31/5/17 because the tumour had shrunk, however the pathology results came back with more canxxx, that is why i had to have mastectomy, was on 14/6/17, 2 ops in 2 weeks and more drains.
I think the underarm with lymph nodes removel was more painful than mastectomy , and the drain removal was painful....yuuuuuk
I'm glad that is all over. Radiation to start in about 6-7 weeks time. .
Take care...xxx0 -
Love you mum. You'll beat this4
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Thanks my Bella. I love you too0
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Waiting is hard and no dr google. We all take the news and cope differently. Your team is your best guidance as they will give you all your info, this can sometimes be overwhelming but you soon become an expert at all the jargon. I am 5 years post treatment and there are good, bad and better days but you get there. My advice which I didn't take lol is be kind to yourself we often try to be superwoman and sometimes it's impossible. All the best adean3
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Thanks Adean. I'm glad to hear you are doing well x0
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Thanks Rapunzel. I have ordered the kit online so hopefully it will arrive this week.1
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It will be your go to along with the breast care nurse
Take care2 -
Hi everyone. Have just joined this morning. I was diagnosed with IDC in May and through Breast Screen ultimately went through every machine in their building. My mammogram in April showed a large cyst which needed aspirating. While having ultrasound came this from the sonographer "Oh what's that"? She left the room and returned with another person. Roll, slide, glide. "Hmmmm" Ok .."We need to aspirate the Cyst however need to do a biopsy on this other area" "So this looks different to the cyst"? Response "Yes". This is where I go into shock and get a bit shaken. Biopsy done and results in 1 week later. Also small discharge during mammogram put on slide for investigation. Day of results - another biopsy on my already bruised breast. due to calcification seen and wanting to make sure nothing else there. This time through the mammogram machine.. It seems I am a "surprise bag" as my tumour was not seen on mammogram nor was it palpable. All the initial specialists and the treating surgeon are surprised. Results - discharge clear, calcification clear, contents of cyst clear.... IDC in the tumour they found under ultrasound. I have since had surgery to remove the tumour, 5 lymph nodes removed and am still recovering. Results came back yesterday - 0 lymph nodes positive. Small Invasive Tumour and all margins clear. I am thankful that God granted me. in the midst of all of the tests, diagnosis and surgery, the strength to stay relatively calm. Surprised - absolutely, questioning - that is a given. But most of all encouraged by all the support and prayers of those who know what is happening. It is literally a day at a time. It is something I have no control over. It isn't my fault. I am now waiting on discussion of treatment plan. I try to stay positive and focused, I know it was there. I know it has been removed, I know that I am very thankful for the keen eye of the sonographer in finding "the invisible" I want to encourage you nonkyboy on your courage to share after "hovering", hoping you find a source of comfort through -the people here who seek to support you, the team working with you to find a path through this quagmire, and knowing you are braver than you think, stronger than you seem and are loved more than you know... be kind to you in your unique journey in this new devastating and challenging space. big hugs
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Welcome @steplightly. Sounds like you are progressing in treatment well. Keep strong.
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Thanks Brenda5 It is very early still for me Hope you are travelling ok and nonkyboy is getting everything she needs0
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Dear nonkyboy there's much support and wise guidance on this site.There will also be much on your journey from those who will be helping you along the way. I felt cocooned by kindness thru diagnosis , surgery and radiotherapy - the bcna kit was a good start for me as information allayed some of my fears. At this moment for me the greatest support is talking and reading about others in the same boat and knowing I'm not alone hence this online chat is a lifeline.Many women have and are taking this journey with us and are continuing to live happy lives afterwards and that I need to remember when I get down.As regards treatment until the biopsy is done after surgery nothing is definitive .I had lobular cancer grade 2 and er+ similar to your own - I had a lumpectomy with a sentinel biopsy followed by another op to widen the surgical margin because of what the post op biopsy revealed and it was clear then radiotherapy which is to be followed by hormone therapy soon - aromatase inhibitors for 5 years.I did not have to have chemotherapy as they believe it was contained to the breast and had not spread.As I have osteoporosis and AIs cause fractures I also need a bone builder like prolia. I am 63 post menopausal and still have kids at home twin boys aged 16.0
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Hi Romla, thanks for your thoughts. My kit arrived today so I had a good read this afternoon. I see the bs tomorrow and will then know some of what I'm facing. Less than 24 hours to go now until I see her. I have my sister coming with me as a second pair of ears and I am also bringing along a voice recorder as I have a terrible memory due to my thyroid condition.2
