Newly diagnosed today and feeling shattered.

24

Comments

  • Hulos
    Hulos Member Posts: 94
    Hi nonkyboy, i recently had mastectomy on 14/6, the hospital also provides you with a post surgery bra which has been really supportive. I was in a private hospital,  berlie also sends a complimenrty bra  with the kits. The breast care nurse will assist also.
     I am now finding that the ahhh bras are great support also, i use the padding of the other side in one breast by doubling the padding. That seems to give some filler as i havent had reconstruction. I use it 24/7...take care...xxx
  • nonkyboy
    nonkyboy Member Posts: 188
    That's good to hear Hulos. I hope you are recovering well x
  • Hulos
    Hulos Member Posts: 94
    Hi nonkyboy, i initially had lumpectomy  and lymphs  removed on 31/5/17 because the tumour had shrunk, however the pathology results came back with more canxxx, that is why  i had to have mastectomy,  was on 14/6/17, 2 ops in 2 weeks and more drains.
    I think the underarm with lymph  nodes removel was more painful than mastectomy , and the drain removal was painful....yuuuuuk
    I'm glad that is all over. Radiation to start in about 6-7 weeks time. .
    Take care...xxx
  • amylo
    amylo Member Posts: 1
    Love you mum. You'll beat this
  • nonkyboy
    nonkyboy Member Posts: 188
    Thanks my Bella. I love you too
  • adean
    adean Member Posts: 1,036
    Waiting is hard and no dr google. We all take the news and cope differently. Your team is your best guidance as they will give you all your info, this can sometimes be overwhelming but you soon become an expert at all the jargon. I am 5 years post treatment and there are good, bad and better days but you get there. My advice which I didn't take lol is be kind to yourself we often try to be superwoman and sometimes it's impossible. All the best adean
  • nonkyboy
    nonkyboy Member Posts: 188
    Thanks Adean. I'm glad to hear you are doing well x
  • Rapunzel
    Rapunzel Member Posts: 32
    Hi @nonkyboy ....what @adean says, avoid Dr Google, if you haven't been given your kit yet ask for one and read as much as you can from it. Do that in chunks, it can be overwhelming.  Hugs to you...
  • nonkyboy
    nonkyboy Member Posts: 188
    Thanks Rapunzel. I have ordered the kit online so hopefully it will arrive this week.
  • iserbrown
    iserbrown Member Posts: 5,768
    It will be your go to along with the breast care nurse 

    Take care 
  • steplightly
    steplightly Member Posts: 185
  • Brenda5
    Brenda5 Member Posts: 2,423
    Welcome @steplightly. Sounds like you are progressing in treatment well. Keep strong. <3
  • steplightly
    steplightly Member Posts: 185
    Thanks Brenda5  It is very early still for me  Hope you are travelling ok  and nonkyboy is getting everything she needs 
  • Romla
    Romla Member Posts: 2,092
    Dear nonkyboy there's much support  and wise guidance on this site.There will also be much on your journey from those who will be helping you along the way. I felt cocooned by kindness thru diagnosis , surgery and radiotherapy - the bcna kit was a good start for me as information allayed some of my fears. At this moment for me the greatest support is talking and reading about others in the same boat and knowing I'm not alone hence this online chat is a lifeline.Many women have and are taking this journey with us and are continuing  to live happy lives afterwards and that I need to remember when I get down.As regards treatment until the biopsy is done after surgery nothing is definitive .I had lobular cancer grade 2 and er+ similar to your own - I had a lumpectomy with a sentinel biopsy followed by another op to widen the surgical margin because of what the post op biopsy revealed and it was clear then radiotherapy which is to be followed by hormone therapy soon - aromatase inhibitors for 5 years.I did not have to have chemotherapy as they believe it was contained to the breast and had not spread.As I have osteoporosis and AIs cause fractures I also need a bone builder like prolia. I am 63 post menopausal and still have kids at home twin boys aged 16.
  • nonkyboy
    nonkyboy Member Posts: 188
    Hi Romla, thanks for your thoughts. My kit arrived today so I had a good read this afternoon. I see the bs tomorrow and will then know some of what I'm facing. Less than 24 hours to go now until I see her. I have my sister coming with me as a second pair of ears and I am also bringing along a voice recorder as I have a terrible memory due to my thyroid condition.