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what to do??

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  • Scooper
    Scooper Member Posts: 113 ✭
    Hello my friend! Just logged on! So sorry you have this bloody rash! It sounds so awfully painful! You are always so upbeat and positive on this site! Sending you much love! Hope we can catch up soon for coffee!
  • Cate64
    Cate64 Member Posts: 446 ✭
    @Scooper I will send you a message, have hospital on 16/06 if you want to catch up for coffee??

  • wendy_h67
    wendy_h67 Member, Dragonfly Posts: 466
    Hi Cate, I had a problem with a skin rash when I first started on Abraxane 5yrs ago.  My oncologist blamed it on something I had eaten but my radiation oncologist got me to see a skin specialist. He did some investigation into the treatment I was on and found that it was an uncommon side effect from the chemo. He gave me a low dose of a steroid cream which helped and the rash eventually disappeared. 
  • Cate64
    Cate64 Member Posts: 446 ✭
    @wendy_h67 it is listed as a side effect of my treatment but let me tell you how things have changed just in the last week....
    They put me on 50mg of solone for 5 days & nothing still as bad as ever... that was some weeks ago..
    Now my Mum is  coeliac & so is my Dads brother so I was tested at my insistence  as it can manifest as skin issues instead of gut issues, but i tested negative.
    2 weeks ago i decided what the hell & completely eliminated gluten from my diet after 2 days a little improvement followed by no further improvement for 10 days now 3 days after that its almost gone...
    So now Im wondering..... will see how things pan out during my next cycle of Xeloda, see if it comes back or not...

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