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wendy_h67
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Joined 13 years ago
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Re: Anyone had Faslodex?
Hello @Hoping, I have been on Fulvestrant Injections now since October and my tumour markers halved, which is the first time in ages that has happened. After I had a bone scan and ct scan of the organs my oncologist was reasonable pleased as my liver mets had shrunk, although there seems to be a new one poped up. My bone mets had some improvement but I have recently new mets in my lymph glands in my neck and back of my shoulder. The Fulvestrant doesn't seem to work for them. I am having radiation therapy for them to hopefully shrink them. The side effects from Fulvestrant have many been no energy and headaches which I put down to sinus pain from all the smoke from the bush fires. I may be wrong. I hope I can stay on Fulvestrant Injections as long as you have as I don't want to go back on chemo again. All the best with your treatment.Re: Verzenio now available on PBS for Metastatic Breast cancer
@brightspace, It makes you feel alienated, just because we have been on other treatments and still trying to fight this horrible disease, they dont want to know us. I have been fighting metastatic breast cancer for 8 years and guess I'm passed my use by date. I was asked by a specialist, "" how much longer do you expect to live. " He wasn't a very nice person and it made me more determined than ever to keep on fighting. Lately I think the cancer is winning and I'm not too worried. I just live one day at a time.Re: Verzenio now available on PBS for Metastatic Breast cancer
Hi arpie, I saw that in the paper today and I was wondering if it will only be available for those as a first line of treatment for metastatic breast cancer. I am on Fulvestrant Injections monthly and this treatment may also be beneficial. I will have to ask my oncologist.,especially if it is on the pbs.Re: Fulvestrant Injections
Hi Palmbeachprincess, Hope your treatment goes well for you. I am not on Abemaciclib tabs .My oncologist hasn't mentioned it as yet. Maybe she knows that I may not qualify for it and couldn't afford to pay for it. I will ask about it next time I see her in January. Have a lovely Christmas.Fulvestrant Injections
Hi to the ladies that have recently started on Fulvestrant Injections. How are you going ? I have been having the injections since October and my tumour markers have more than halved. My oncologist is very happy with the results and she feels that my liver mets may have shrunk. I'm due for scans early January, so all will be revealed. Hope you all have a happy Christmas and stay well.Re: Trying to get through the journey of growing my hair back
I don't know what you are worried about, at least your hair has grown back. I have lost my hair 4 times now due to chemo over a 7year period. Each time it has grown back a little different, sometimes curly and sometimes straight. At present I have just enough coverage to not wear a hat but it doesn't seem to want to go the way I use to have it. It is grey and I use to dye it a blonde colour but my hairdresser is reluctant to put a colour in it. I have got use to the grey now and thankful for the hair that I have got.4Views3likes0CommentsRe: Game Changers Living with Advanced Breast Cancer
Hi Karen C Thank you for re-posting your post. I remember reading it a couple of years ago and feeling inspired . I needed to read it again , so that I realize that we are not alone as we go through this time . I have had metastic breast cancer now for almost 8 years and lately things have not been going so well. I never hear that favorite word ' stable " any more. I have also lost a couple of friends to breast cancer this year. I have my down days but also very greatful to still be here. I try each day to do something to show my appreciation, even if its just to make someone smile. It is good to hear from you. Hope everything goes well for you.Re: Hi Ladies
Good to hear from you again and to know you are doing ok . I have been on Abraxane IV and coped with it fairly well. My hair even grow back while I was on the treatment. I think I was on Abraxane for over 2 years before I had to change treatment. I have just spent most of the winter in hospital, from end of June until Yesterday. After my last chemo , I had temperatures over 38 ,so my oncologist told me to report to the hospital. Things did not improve and I had trouble breathing. I spent some time in ICU. And found out I had pneumonia. I lost alot of weight and found it difficult to walk again. I spent my last few weeks in rehab, to put on some condition and get me walking again. I was determined to get going as I wanted to go home. I now have lympodema in my L leg which I think is from the mets in my pelvic area and the top of my femur which may be affecting the lymph glands. I am . due for scans and see my oncologist next week so I will find out more then. Its so good to be home. All I can say is you cant keep a good woman down. That goes for all of us.Re: Can you feel if you have mets?
I have numerous bone mets.,first diagnosed in 2012. At first I had serve back pain which I tried to ignore, thinking it was from picking up my young grand children, but the pain got worse. When I was riding in our car and we hit just a small bump the pain was so severe it made me go and see my GP pretty quick. I had xrays followed by a bone scan and found out there were bone mets. In my spine and the severe pain was because it was compressing my spinal cord. My specialist said If I had left it much longer, I could have been paralyzed . So I think its a good idea to get any pain checked out and not leave it too late, just for peace of mind.
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.
