Lymphoedema and recurrence fears

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  • TripleNegMama
    TripleNegMama Member Posts: 47 ✭
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    just want to mention that if you have trouble getting to a physio with experience in lymphodema and/or have issues with doing the self massage (I have damage to the other arm), I trialled a compression pump at my local oncology unit and then brought my own and got a physio at specialist lymphodema clinic to show me how to use it and now use that at home regularly.  Bit expensive upfront to buy but I'm in a country area without access to lymphodema trained physios and for me was definitely worth it.
  • Andij
    Andij Member Posts: 115 ✭
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    My goodness after not getting notifications about recent posts for well over a year I think  they started popping up yesterday

    So now 2 years down the track almost - It does get easier. Unfortunately I tried out a cheaper garment this year and have had nothing but hassles getting it right so will pay more money next year and get my original brand of garment - Jobst. Has anyone else had problems with different brands?
  • Afraser
    Afraser Member Posts: 4,373 ✭
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    I was OK on an off the shelf number until my therapist felt I needed something more around the wrist. A locally made to measure was selected. Total nightmare. Badly made (expensive), badly measured, popped into 2 holes day 3, badly repaired. Oh and as it bottle necked, hideous to get on and off. One of the very few times during diagnosis and treatment I was reduced to tears. So a Jobst made to measure, and have never looked back! 
  • mum2jj
    mum2jj Member Posts: 4,330 ✭
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    Jobst all the way. I need made to measure, they are expensive but one of the good things Qld health do. I am seen by their cancer occupational therapist who measures me and I don’t pay. 
    Very grateful. 

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