Diagnosed one month ago, aged 24.
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@em_24 Hi Em, I was just checking in to see if you are ok chicky. Have your medical team come to a definite decision about treatment yet? We are here for you if you wanted to talk. Hope your mind has stopped racing and that you feel more empowered to carry on. Big hug x Rene0
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Hey @em_24 ! I am sorry to hear you are going through this at your age. I can most definetly relate having been diagnosed 2 months ago at the age of 28 with no family history- the whole thing has been a shock. And since then it has been an emotional journey filled with medical tests, specialist appts, surgery, having my eggs frozen, genetic testing to have started my first chemo session just last friday!
Look after yourself and take each day as it comes. Ive been on this forum and have found the support and wealth of knowledge and experience from everyone here to be amazing!
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Thanks for your kind and supportive words everyone. Thanks @Ne, I am okay, although I am finding things harder as they go along. All I can think about is it coming back in the future. I feel really torn about my treatment, my medical team and second opinions have recommended no chemo.. which I find hard to believe given my age, but they said that they believe it would give no benefits. Although it is a grade 1, they were all surprised to find that I had micromets in one lymph node.. which I why I find it hard to understand that chemo would be no benefit. They also noticed a spot on my rib in my bone scan, which they said was not cancer and it was fine, but when I saw my oncologist she said she would do another scan in 6 months to check it... so not I have started worrying a lot about that!
I have been given prescriptions for tamoxifen and zoladex.. and if I can handle that they said they would then change from tamoxifen to aromatose inhibiters. This would be for the next 10 years. I feel really concerned about how I am going to go with all of that.. I see my surgeon on Wednesday as I am leaning towards a double mastectomy, but I am not sure when that would happen. The surgeon said she would treat the lymph nodes by removing more, but that just doesn't feel like it is enough treatment. My medical team are really good, but I just feel like I have endless questions. I understand that my outlook is good and I am lucky it is not aggressive.. but I am definitely finding it hard to see that at the moment as all I do is worry and think about this constantly. Thank you xxx
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Your team would choose the best treatment for you based on lots of knowledge and lots of research. By taking extra nodes they are checking if any more are affected or not. If they really felt you needed chemo, they would have offered it. We all worry about metastases and the repeat scan in 6 months is probably more for reassurance. All of us appreciate the confusion, I know I second guessed decisions and worried that even though I didn't have nodes ...should I be having radiotherapy anyway? However once the decision is settled and you are on your way in treatment, you will start to feel more secure. Hope all goes well and medication side effects are minimal. Kath x0
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Aaauw sweetheart it is all so normal to feel the way you do. i agree with everyone whos posted here. what i wanted to add was that you should stick to your gut feeling. if you decide that you want a double mastectomy then stick to your guns and make sure your wishes ate heard. Don't be talked out of, or in to anything you aren't 100% happy with. I was glad to have my healthy breast removed after aggressive cancer in the other. it gave me some relief from anxiety of an occurrence. You know your body best. Have you received the My Journey Kit yet? it is very helpful and can put your mind at ease to look at it and read through the bits that applies to you. Knowledge is power. xxx Keep us posted how you travel1
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Hi em_24, I also had Grade 1 (certainly not as young as you
) but with no nodes involved and have had mastectomy with no radiotherapy or chemotherapy. I felt at first that I was being neglected by only having tamoxifen HOWEVER my radiotherapy oncologist put my mind at ease by telling me that should I go ahead with say chemotherapy given my cancer was a grade 1 that I would more than likely be doing my body more damage and it wasn't necessary. That has helped me come to terms with the idea of no further active treatment and I now concentrate on how lucky I was to have a grade 1 cancer. All the best and I hope you can get to the point of less worrying. Xx Cath 0 -
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Thank you so much everyone, I really appreciate it. Yes @Ne, I got the My Journey Kit as soon as I was diagnosed. It was really helpful, but I am thinking I might read it again as things have settled in a bit more. Thanks @socoda, yes I feel very similar. I think because of that small bit in my lymph node, I thought that meant I would have chemo. But my oncologist said that because it is grade 1, it is possible that chemo may not do anything as the cells are not dividing fast enough. I am sure I will get to the point of not worrying soon enough.
Thank you as well @iserbrown, how do you feel being on Tamoxifen and Zoladex? I will, thank you again xxx2
