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Re: SUFFERING STOPPING HORMONE TREATMENT FOR MENOPAUSE
JodieMaree said: Hi. Diagnosed two weeks ago yesterday, can’t believe it’s only been two weeks seems so much longer. Daughter is currently in the middle of HSC, so I haven’t told family yet, which sort of makes it seem like it’s not real. I’ve been reading a lot of posts and like a lot of women, I was blind sided getting a call back from Breast Screen Australia, even then thought, nah, not me. One out of twenty, my odds are good. I’ve been to the surgeon and McGrath nurse and now need to make a decision. It would be so much easier if I could get a good nights sleep. As the tumour is hormone positive, I’ve had to go off my happy gel (Estrogel). For the past week the night sweets are back. Anyone with the same dilemma? Any suggestions? TIA Hi Jodie. I was diagnosed age 39, 8 years ago. Needed full hysterectomy because I was BRCA2 positive (to reduce risk of ovarian). Weren't allowed any HRT and went insane with night sweats and hot flushes to a point I cried out for help. My oncologist prescribed 'Gabapentin' (Neuropentin) which can be safely taken at night. 1 tablet, 2 hours before bed, 300mg capsule. Gabapentin is an anticonvulsive medication (not HRT). It has an effect on the brain waves that normally would stimulate your body to create a flush. So it reduces the flushes and night sweats almost completely. I have been on Gabapentin for the last 8 years and it has given me back my sanity. Ask your Oncologist or GP about it. All the best. Rene8Views3likes0CommentsRe: Is ovary removal a viable option instead of hormone therapy?
Sam09 said: Do is what you are saying mean getting my ovarys out will not help because the drugs for me are not an option. I read the side effects of both drugs one in needle form to strengthen my bones and then laughable enough this drug to stop the production that has a side effect of thinning brittle bones exposed jaws teeth falling out etc etc no thanks not for me Hi Sam I remember having a petrifying fear of the prolia injections that my onc. suggested for my osteoporosis (The hormone blockers I use for estrogen positive bc as reduce my bone density significantly). My onc. said that the necrosis of the jaw and falling out of teeth issues he has probably only come across once in his whole career of 20yrs plus and this was with an elderly patient that was on monthly prolia injections. Usually bc patients like us with low bone density only requires a six monthly injection. I am still fearful in saying this because I am 42 yo with bones of an 80yo and it is never far from my mind all the side effects but for me it is better than the alternative. I've noticed another lady posted recently that she managed to control and even restore her bone density with a weight bearing weight lifting program she's been doing for the past 2 years I think and that without the prolia injection. I will have to find a link to her post thought but I think it was called "Increased bone density without prolia injections or something"Re: Very worried lump close to scar of mastectomy
Hi there, I agree with everyone about the probability of it being scar tissue but here is what happened to me!. I also found a lump near the center of my breast right underneath my scar and completely freaked out thinking the worst. I made an appointment and when my surgeon had a feel she smiled and say you will not believe what I am about to tell you but please stop worrying. Turned out with some silicone implants (like mine) they have this small bump in the implant where the manufacturers have sealed the implant off. There are actually two tiny manufacturer bumps on each implant. She made me feel the other breast and whallah! same thing on that side. She then did an ultrasound anyway to just give me peace of mind.:) It gave me the biggest fright ever! but the only relief we ever get is when we have these things checked. Just don't assume the worst cause it can definitely be scar tissue or even a small silicone bump from your implant. I have scar tissue as well which also freaked me out when I became aware of it. I am sure yours will be too.43Views0likes0CommentsRe: Newly diagnosed mother
I am sorry about your mum. Just wanted to say that I did my chemo private as well as my surgeries and the bill for surgeries was quite high. Not sure I would do it private again after hearing that you get the same drs pretty much if you do go public. The nice thing about private is I got to choose my surgeons which I valued heaps. With Chemo I was admitted every time so that was paid for under my hospital cover which helped heaps. Also, I claimed my 'trauma benefit' from my life insurance policy. Only thing is, most companies will only pay out trauma cover for bc if patient needed a mastectomy. they normally don't pay out trauma cover for a cancer diagnosis without mastectomy (for instance just lumpectomy), So unfair!. I would definitely look into being gene tested if there is such a strong history of BC. I myself got BC at age 39 and never knew of family history or genetics until I got gene tested and it turned out to be positive for the BRCA2 gene mutation. This meant I could be proactive and have preventative surgeries (mastectomy of my remainder breast as well as a full hysterectomy). These preventative surgeries significantly reduced my risk of developing a new cancer after my initial one. This is the best forum to read up on any terms or things that might be confusing during the first few weeks after diagnosis. You have come to the right place.8Views0likes0CommentsRe: When to have your ovaries removed
I was tested and positive for BRCA2 and my surgeon also immediately recommended the surgery to have a hysterectomy. I did it straight away as I felt my ovaries and tubes were a ticking time bomb that i did not want to risk. My gynae-oncologist suggested taking everything and that is what I did. I had the full hysterectomy. Surgery was key hole and recovery was not bad.8Views0likes0Comments
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Choosing breast reconstruction
PRIVATE GROUP. Choosing breast reconstruction after single or double mastectomy can feel overwhelming, and deeply personal. This group is here to connect you through others' stories and images. Please respect everyone’s privacy—do not copy or share content outside this space. Information is based on personal experience and is not medical advice; always consult your healthcare team for guidance. ⚠️CONTENT WARNING⚠️ Members may share photos of breast surgeries. These images or discussions may be distressing or triggering for some. If you need support, please contact the BCNA Helpline - we are here for you.Christianity & breast cancer
This group offers a welcoming place to share how your Christian faith supports you through the breast cancer journey. Connect with others who find comfort and strength in Scripture, prayer, and reflection. Whether you're seeking encouragement, community, or a place to explore spiritual resilience, you're warmly invited to join in fellowship and support. Prayers and Bible study are welcome.
