Just need someone to talk to.....

in Day to day
Hello!
Since my my diagnosis in Feb this year I have read through online discussions but never had the confidence to join in. After being up all night looking up websites etc I have decided my time would be better spent seeking support rather than looking up scary statistics (I know! Everyone tells me to stop looking up things but sometimes it actually reassures me).
Anyway a week after diagnosis I started neo adjuvant chemo which was hard but I did really well. Surgery was performed just over a week ago and whilst I am healing really well I'm devastated that I need to go into surgery again next week as my margins weren't clear. As I am very small (A cup) they have said I will now need a mastectomy as they can't remove anymore tissue without it looking terrible. I'm actually okay with this (or in a bit of shock) but what is really worrying me is that they now want to do more scans. The oncologist said they wouldn't redo scans unless there was a reason but now the surgeon says they need to be done to restage the cancer? My tumour did shrink with the chemo but it was still there and nodes were also positive. I'm so scared they are redoing scans because they think it has spread. The nurse said it was routine?
I feel like I'm back at the start again - waiting, worrying....... Hopefully I get a bit of sleep tonight!
C x
Since my my diagnosis in Feb this year I have read through online discussions but never had the confidence to join in. After being up all night looking up websites etc I have decided my time would be better spent seeking support rather than looking up scary statistics (I know! Everyone tells me to stop looking up things but sometimes it actually reassures me).
Anyway a week after diagnosis I started neo adjuvant chemo which was hard but I did really well. Surgery was performed just over a week ago and whilst I am healing really well I'm devastated that I need to go into surgery again next week as my margins weren't clear. As I am very small (A cup) they have said I will now need a mastectomy as they can't remove anymore tissue without it looking terrible. I'm actually okay with this (or in a bit of shock) but what is really worrying me is that they now want to do more scans. The oncologist said they wouldn't redo scans unless there was a reason but now the surgeon says they need to be done to restage the cancer? My tumour did shrink with the chemo but it was still there and nodes were also positive. I'm so scared they are redoing scans because they think it has spread. The nurse said it was routine?
I feel like I'm back at the start again - waiting, worrying....... Hopefully I get a bit of sleep tonight!
C x
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it is a very worrying time especially having to face it all again. My situation is different because I had my surgery first and then chemo. I was given the option of lumpectomy or mastectomy. I chose masectomy as I wanted to be sure that everything was taken the first time. Every person is different and every treatment is individual. I'm sure your medical team has your best interest at heart and need to reassess your situation before recommending further treatment. Talk to your breast nurse for reassurance.
All the the best for your future journey.
love and hugs Bev
I would like to encourage you that you have been strong and gotten through the Bl**dy journey so far ... rest assured your team are working in your best interests.
There are so many advances in the treatment that what was proposed even in Feb this year can be changed as they find better options for allowing us to survive and get back to life... a different life but still life.... I am 4 years down the track and I can say I am happy with the choices i made back then Double mastectomy and chemo and rads.... I am grateful to be alive and here with my kids 4 years later ....
Always come and share your fears and worries we are happy to chat
hugs and energy to deal with this bump in the journey
Soldier Crab xoxox
Sending you hugs... Trust your team, they know what they are doing. I have had a whirlwind experience and it feels like you are on a merry-go-round that no one will let you off. Keep in touch on here. x
Im so glad you decided to pop in and post! The journey is so very difficult and I have found it so helpful to be able to come here and vent and know I am completely understood. I dont get that anywhere else! Understood that is! It is a roller coaster and its hard to find your feet when they are constantly knocked out from under you. It does sound like you have a very thorough medical team and I would have faith in that. The Scans I know immediately your thoughts would be the worst because that is what this journey has taught us???!!!! BUT I honestly feel this is just a process and something they need to do and not for any other reason other than since youve had Chemo so to see how things are now. In 5 yrs Ive had 2 major lumpectomies, Breast Cancer twice and treatment and I am all clear and moving on!!! I do however have to have a Mastectomy because of a recurrence. So big breath, one step at a time, and I find dont look too far ahead but what you have at hand, it helps you cope better.
Hugs
Melinda xo
Hope you get the answers regarding your scans soon.
Having been diagnosed with Breast Cancer twice in the last 13mths (right & then left breast) I still think the waiting is hardest part!
Wishing you all the best
Mel xx
Thinking if you as you wait again on tests & results, Lyn
Take care and take a few deep breaths as we are all here supporting you and yes keep away from Dr Google and the statistics, it doesn't do your blood pressure or demeanour any good!
Sending you a virtual hug from Christine xx