It's back: Lost Libido Ladies

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Cosette
Cosette Member Posts: 637 ✭
edited November 2016 in Community news and events
Lost Libido Ladies is a private group to discuss sexual health and breast cancer. @DaisyMarigold has kindly requested that this group be formed once again and she will lead it.

Discussions about sexual health may be had in other parts of the online network such as Tests, treatments and side effects or Health and wellbeing. But if you want more privacy, then the Lost Libido Ladies group may be for you.

Request to join at http://onlinenetwork.bcna.org.au/group/9-lost-libido-ladies
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  • DaisyMarigold
    DaisyMarigold Member Posts: 315 ✭
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    Thanks for getting us back on the road Cosette. Old and new members are very welcome! It may be a little while before we can get some of our old but helpful information back into the group, but if you have any queries please join and email us, and we'll do our best to help. Some of us have been investigating and/or trying various solutions for painful sex and vaginal atrophy (which I found had a hugely negative impact on my libido and killed my sex life for a while) and we have had some success. Hope to see you in the group soon. Best wishes, DaisyMarigold.
  • suzieq
    suzieq Member Posts: 332 ✭
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    Fabulous. We're back!
  • LouiseTurner
    LouiseTurner Member Posts: 1,610 ✭
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    Hiya Suzieq....great to see you and this group back on track. Xx
  • mum2jj
    mum2jj Member Posts: 4,330 ✭
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    Brilliant news. Have found this group fantastic in the past. Paula :)
  • suzieq
    suzieq Member Posts: 332 ✭
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    Update: Like Pam I have ventured into the world of alternatives to estrogen pessaries and found a Compounding Chemist who specialises in this area.  He has asked my GP for specific blood tests looking at current levels of DHEA, Cortisone, circulating estrogen (there are 4 types) thyroid and a few other things. Will compound into tablet or vaginal pessary which will be perfectly safe and can be mailed to me. Will be interesting.

    PS still no UTI"s since Mona Lisa Treatment and things do seem much better generally. I had thrush last time I posted so pain and discomfort most likely due to that. In the meantime if I can take something specifically designed for me by the Chemist negating the need for further laser treatments then I would be very happy. Suexx
  • AnnaB
    AnnaB Member Posts: 176 ✭
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    So happy to see this group start.  I have also found the Mona Lisa procedure very helpful.  Frustratingly I was diagnosed with Vulva lichen sclerosis as well which makes intercourse currently impossible.  Treatment is helping somewhat with this.  By far though the most difficult side effect of Oestrogen blocking is that my libido has 'left the building' completely and the loss of this has made me very sad.
    I guess I feel I have done all I can to help with the mechanics of sex/intercourse but I don't know what to do for my head. 
    Looking forward to any suggestions
    Thanks Anne 
  • melclarity
    melclarity Member Posts: 3,502 ✭
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    Hi Anne,
    I have to agree with you, 9 months on now from Chemo and taking Arimidex, I have to concede my waning libido, I have zero interest and I have always had a healthy appetite. On top of the whole thing, this really has upset me terribly, and also that the Oncologist offers no help at all. Just feel like Ive lost myself completely...and all of it is due to treatment, even now...the side effects are still debilitating and controlling my life. So am looking at alternative medicine now, which Im finding alot of success in recovery. I havent broached this problem yet though, so if there are any tips mentally I too would like to know...
  • mum2jj
    mum2jj Member Posts: 4,330 ✭
    edited September 2016
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    Hi Girls, @AnnaB @melclarity
    Dont forget to join, or rejoin if you belonged to the old group, or would like to join now. 
    http://onlinenetwork.bcna.org.au/group/9-lost-libido-ladies
    Thats where all the dicussions will be. 
    Paula :)
  • melclarity
    melclarity Member Posts: 3,502 ✭
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    Thanks Paula!

    I did just join, though wondered why it is a private group and you are asked for a reason to join the group?

    Thanks
    Melinda
  • Cosette
    Cosette Member Posts: 637 ✭
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    Hi @melclarity. Lost LIbido Ladies is a private group because its leaders and some members have requested that. However, we welcome open conversation about these important topics. Discussions about sexual health may also be had in other parts of the online network such as Tests, treatments and side effects or Health and wellbeing.
  • melclarity
    melclarity Member Posts: 3,502 ✭
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    Hi Cosette,
    Thanks for that, I wasnt sure if open discussions were allowed elsewhere.
    Cheers,
    Melinda
  • Effi
    Effi Member Posts: 5 ✭
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    Good to be back online.  Suzie Q, as you are now looking at other alternative treatment does that mean that the mona lisa treatment has not been a complete success as far as negating pain during intercourse?  I am lucky(or not) in as much as I still have some libido but intercourse is impossible due to the pain.  Thanks for you open and honest discussion about this, I was devastated when the site was lost.  We don't need anything else lost!
  • melclarity
    melclarity Member Posts: 3,502 ✭
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    Cosette,
    I wanted to ask, I clicked to join the lost libido ladies but theres nowhere to access the discussions? and theres no button to press to join now as I already did.
    Thanks Melinda :) 
  • Cosette
    Cosette Member Posts: 637 ✭
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    Hi @melclarity. After you request to join, one of the group leaders has to approve the request. Then you can post. It will look very much like the rest of the forum.
  • melclarity
    melclarity Member Posts: 3,502 ✭
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    Thanks Cosette,
    I wasnt sure as its been a few days.
    Cheers
    Melinda

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