-
Brain Mets
It’s a long time since I posted here. Herceptin has been doing a great job as scans 6 months ago came back NED! In July I had a nasty fall and needed skin graft on right knee area, 3 weeks in public hospital, then another 3 in private hospital for wound care and rehab. All good until scan 14 Feb. new spots on a rib and…
-
Lived Experience Panel: Rockhampton Information Forum
Hi All, We recently created a video snippet of our lived experience panel from BCNA's Rockhampton forum for the Online Network. The video captures key discussion topics: 'Side Effects, 'Communication', 'Sexual health' and 'What I learnt'. Hope you enjoy hearing from BCNA members Michelle Peters and Tracey Barlett.…
-
Questions around removal of the primary in metastatic treatment
I am VERY new here so I hope this is not a silly question..... I have been diagnosed and one of my first shocks was they were no longer going to remove the primary cancer. I understand they say the data does not indicate significant impact on survival however this data is also questionable on integrity as its so old too.…
-
Are you a member of the private Living With Metastatic Cancer group?
My name is Rachelle and I am based in Melbourne. I have MBC and joined the newly formed MBC Advisory Group to help BCNA, at this stage, with the revision of the Hope & Hurdles hardcopy guide and to inform BCNA of emerging issues affecting people with metastatic breast cancer. I have also put my hand up to be a group leader…
-
S E QUEENSLAND SUPPORT GROUPS
If YOU live in SE Qld from Northern NSW to Mackay I have compiled a list of face to face support groups. I started local support group on the Gold Coast back in 2019 and we now have 630 members - We opened our support group to include Ovarian due to the BRCA gene then gradually to ALL cancers for women on the Gold Coast.…
-
Ribociclib/Letrozole Combo - How long have you been on this plse?
Hi Everyone, I've been on the Ribociclib/Letrozole/Denosumab combo now, successfully since Nov 2018. I take only a low dose of Ribociclib, 200mg daily and so far so good. However, I'm heading towards the 18th month mark now and starting to get a little apprehensive about how much longer it will be effective for. I've read…
-
New Diagnosis Shock - metastatic breast cancer
Moderator moved @SallyJ original post from the 'Activity' section to the discussion page:
-
6 years cancer free...then I'm not
Hi all, just wanted to share a little about my journey and was also wanting some advice... My story begins in December 2016, found a lump in my right breast after running my first marathon (lost quite a bit of weight with all the training). fast forward 11 surgeries-lumpectomies, sentinel node biopsies, egg…
-
Webcast: Food and movement when living with metastatic breast cancer
Good afternoon everyone, We have just launched our next webcast - Food and movement when living with metastatic breast cancer. The event will run on November 23, at 7.00pm AEDT. Register for the webcast now via: https://kapara.rdbk.com.au/landers/f0bdf1.html In a recent Issues Paper, Making metastatic breast cancer count,…
-
Coming to terms about living with metastatic bc
Post by Ultrarunchick moved by moderator from activity section to the main discussion page: November 8 2022 Six years since my BC diagnosis and one year after being given the all clear (my 5 year anniversary) I was diagnosed with Metastatic Breast Cancer.. thankfully it's just in one place at this time my spine and it's…