Best Of
Re: Radiotherapy is pretty painful
Gosh @Kathryn2412- I am so sorry you're having problems so early in your Rads ..... perhaps you should talk to your Rad Onc asap - as they try to gauge the strength of the Rads to have the greatest effect over the 4-6 weeks but to minimise skin damage!
Your Rad Nurses should be checking you out BEFORE your daily treatment - so explain your concerns to them too & raise the issue of seeing the Onc again. They may need to reduce the strength just a tad.
take care & all the best xx
Your Rad Nurses should be checking you out BEFORE your daily treatment - so explain your concerns to them too & raise the issue of seeing the Onc again. They may need to reduce the strength just a tad.
take care & all the best xx
arpie
1
Re: Stage 2/ grade 2 - is chemo required?
I had a mastectomy and one lymph node was malignant (several looked suspicious but were OK). Stage 2 and HER2 positive. My oncologist definitely recommended chemo. As @Lockley says it’s doable (like some, I had no nausea or fatigue and continued work through treatment). I wanted to
do everything I could to avoid doing it again. So far (10 years), so good. Chemo can be daunting but so is the prospect of more cancer. I just didn’t want my choices to be the source of any regret. Best wishes.
do everything I could to avoid doing it again. So far (10 years), so good. Chemo can be daunting but so is the prospect of more cancer. I just didn’t want my choices to be the source of any regret. Best wishes.
Afraser
5
Re: Stage 2/ grade 2 - is chemo required?
Hi @Annalyn, it's all so overwhelming trying to figure out the best treatment. The ki67 factor nearing 50% and your grade 2 status of your cancer cells is probably why chemo is recommended especially since one lymph was involved.
If one lymph was involved in then only takes one cancer cell to take off and get to another organ and so chemo can hunt those cells down and cancer is then killed off I would get the chemo and you will have more peace of mind that your cancer is actually all gone. If no chemo that cancer that went to the lymph can have spread and it can spread fast.
I was 57 when diagnosed with stage 1, grade 3, ki67 at 69% and ER and PR+. I had surgery, chemo x 4 months snd 20 rounds of radium and now AIs. I got through it all. That was in 2020. Yes it was hard at times but it is doable.
You can do this too. One step at a time. Reward yourself after each treatment with a night away or a night out for dinner. I hope you have some good support to help you at home. Best wishes to you
If one lymph was involved in then only takes one cancer cell to take off and get to another organ and so chemo can hunt those cells down and cancer is then killed off I would get the chemo and you will have more peace of mind that your cancer is actually all gone. If no chemo that cancer that went to the lymph can have spread and it can spread fast.
I was 57 when diagnosed with stage 1, grade 3, ki67 at 69% and ER and PR+. I had surgery, chemo x 4 months snd 20 rounds of radium and now AIs. I got through it all. That was in 2020. Yes it was hard at times but it is doable.
You can do this too. One step at a time. Reward yourself after each treatment with a night away or a night out for dinner. I hope you have some good support to help you at home. Best wishes to you
Cath62
4
Re: Letrozole - Fracture in spine
Well now I have been to my oncologist and breast surgeon and have all different views on why I have a fracture at T9 of my spine.
My GP says osteoporosis based on a bone scan. I had a xray, bone a scan and bone density test and bloods.
Hospital Emergency had no diagnosis and were checking for a blood clot in my lungs. The did a contrast CT of chest and bloods.
My oncologist still wants to check for bone mets and ordered an MRI. She looked at bone scan, contrast CT, bone density and bloods. Based on my bone density she disagreed with my GP that I had osteoporosis. She said my spine was normal but femur was pre osteoporosis. She suggested I get results from mri and the we discuss a PET scan or seeing an endocrinologist. She actually said maybe I will never know why I got that fracture.
My breast surgeon was also copied into all results including the MRI that the oncologist ordered. The MRI only showed the T9 fracture and confirmed no bone mets. My breast surgeon used to be a general surgeon and she actually suggested my pain episode may have been pancreatitis but couldn't explain the fracture.
So 4 different doctors and 4 different views and now I am still in the dark. Next step: I have a telephone consultation with the oncologist next week on 14th to get mri results i already know indicating the fracture. I don't know whether I just forget it and move forward or go back to the GP to look further. I am already $1400 out of pocket for all the tests. Happy to pay more but not sure i will get anywhere with this. Any thoughts?
My GP says osteoporosis based on a bone scan. I had a xray, bone a scan and bone density test and bloods.
Hospital Emergency had no diagnosis and were checking for a blood clot in my lungs. The did a contrast CT of chest and bloods.
My oncologist still wants to check for bone mets and ordered an MRI. She looked at bone scan, contrast CT, bone density and bloods. Based on my bone density she disagreed with my GP that I had osteoporosis. She said my spine was normal but femur was pre osteoporosis. She suggested I get results from mri and the we discuss a PET scan or seeing an endocrinologist. She actually said maybe I will never know why I got that fracture.
My breast surgeon was also copied into all results including the MRI that the oncologist ordered. The MRI only showed the T9 fracture and confirmed no bone mets. My breast surgeon used to be a general surgeon and she actually suggested my pain episode may have been pancreatitis but couldn't explain the fracture.
So 4 different doctors and 4 different views and now I am still in the dark. Next step: I have a telephone consultation with the oncologist next week on 14th to get mri results i already know indicating the fracture. I don't know whether I just forget it and move forward or go back to the GP to look further. I am already $1400 out of pocket for all the tests. Happy to pay more but not sure i will get anywhere with this. Any thoughts?
Cath62
3
Radiotherapy is pretty painful
Hi everyone
I’ve had 6 treatments so far… my breast is quite red and painful (like a sharp pain)…
I’ve moved to a burns cream 6 times a day…
Today it took 3 takes for them to get it right
Just sharing …
I’ve had 6 treatments so far… my breast is quite red and painful (like a sharp pain)…
I’ve moved to a burns cream 6 times a day…
Today it took 3 takes for them to get it right
Just sharing …
Re: Reminder - 'New Look' Online Network 15th December 2022
Sick of seeing there are 7 new comments on this post in my notifications, when there are not. Even after I mark as all read.
Sick of having half my screen full of the banner photo which so inclusively shows older white women.
Bored by outdated 'announcements'
Sick of having half my screen full of the banner photo which so inclusively shows older white women.
Bored by outdated 'announcements'
Disenchanted by meme culture and copy/paste replies
Sick of being censored for disagreeing.
Over it.
Sick of being censored for disagreeing.
Over it.
Zoffiel
3