Best Of
Re: Struggling through Chemo
Today, I had my last AC. In two weeks, I'll start Paclitaxel for 12 weeks. The nurse told me that I have to celebrate finishing AC, as Paclitaxel is much easier. Let's hope she is right. I am reading all yours posts about paclitaxel and will pay attention to the side effects you experience. I think I managed the side effects of AC well with all the medication they gave me for nausea and other issues, such as steroids. I use pantoprazole for heartburn. I have insomnia, but I compensate for it with daytime naps. My oncologist told me that I can take diazepam for sleep. All the best to all of us through the journey which is definitely not easy.
GorgyS
2
Re: 5 day radiotherapy treatment
I’ve been offered 15 or 5 too.
It’s not until May because I’m regional NSW and one of the machines at the hospital broke down 😩 so now there is a backlog of people.
I initially decided to have 15 but as time goes on I think the 5 may be an option too.
Be interesting to see the difference in outcomes.
The reason I chose 15 is because it has a lot more research behind it. The onc told me they are doing a 5 year study of the 5 round treatment however the results aren’t available til 2025.
I don’t want to make a decision based on wanting to get through it quicker and the recurrence rate is higher or more damage is done because it’s higher strength.
Sorry not helpful but you’re not alone in your decision making.
Happy Easter
Best wishes to all as we enter the Easter holidays. A time to relax and enjoy and hopefully a welcome distraction from treatment.
If travelling, safe travels
Take care
If travelling, safe travels
Take care
Re: New to This
went back to specialist today and she did remove all cancer from breast there was even some DCIS there but she removed this as well. Need to see an oncologist next week to see if its worth doing chemo, will def have radiotherapy but my specialist seems to think that the outcome is good with radiotherapy even under the arm and chemo would only add another 1% to survival rate. but we will see what the oncologist says.
has anyone had the same outcome?.
Oh and now after surgery it turns out I have IDC not ILC like the biopsy showed and it is still stage 2.
Its hard to keep thinking positive and I love my specialist but hate going to the building. xx
has anyone had the same outcome?.
Oh and now after surgery it turns out I have IDC not ILC like the biopsy showed and it is still stage 2.
Its hard to keep thinking positive and I love my specialist but hate going to the building. xx
RenataW
4
Update
So updated info.... Clot was over 10 CMS from forearm to elbow. Have been started on blood thinners for rest of treatment and they are putting a pic line in so no more arm infusions..
Sandra01
4
Emotional roller coaster
Hi All,
Just joined and first post.
This whole cancer thing scares the hell out of me. It happened so fast. Diagnosed in Dec 23 1st surgery on 19th for a wide local excision and lumpectomy to return again for margins on 19 th Jan 24. 3 nodes taken but only cancer in 1. started chemo late Feb have completed 2 rounds heading into round 3 of 8. Then onto radiation followed by hormone treatment. To find out late yesterday arvo I have clots on my infusion arm. I am devastated, I am scared, hoping they call today to get it sorted. I'm trying to be brave and in control Infront of kids and hubby but it is killing me inside. And sleep what that been awake for hours even with melatonin they gave me yesterday. Anyone else had these and can make things less scary for me.
Just joined and first post.
This whole cancer thing scares the hell out of me. It happened so fast. Diagnosed in Dec 23 1st surgery on 19th for a wide local excision and lumpectomy to return again for margins on 19 th Jan 24. 3 nodes taken but only cancer in 1. started chemo late Feb have completed 2 rounds heading into round 3 of 8. Then onto radiation followed by hormone treatment. To find out late yesterday arvo I have clots on my infusion arm. I am devastated, I am scared, hoping they call today to get it sorted. I'm trying to be brave and in control Infront of kids and hubby but it is killing me inside. And sleep what that been awake for hours even with melatonin they gave me yesterday. Anyone else had these and can make things less scary for me.
Sandra01
1
Re: Emotional roller coaster
Hi @Sandra01. I have a similar story, although had a single Mastectomy 2 weeks ago and waiting on Chemo plan. How are you handling the Chemo?
I have so much support that I am very grateful for but it is still a very lonely journey as it’s you and your body that this is happening to. I also am not sleeping well. As soon as I wake in the night, the mind wanders.
I am going to look at the Chemo as medicine to make me better. I also had cancer in one of the nodes out of the six that were removed. I have so many questions for my Oncologist who I am waiting to hear from. All this waiting is cruel.
I’m feeling your pain with the family, when I’m talking to them I try to be so strong as the last thing I want to do is make them sad. It doesn’t always work.
All the best with everything, we do know that treatment works, if we can stay positive for the majority of the time we are doing well xo
I’m feeling your pain with the family, when I’m talking to them I try to be so strong as the last thing I want to do is make them sad. It doesn’t always work.
All the best with everything, we do know that treatment works, if we can stay positive for the majority of the time we are doing well xo
CeeCee
1