Did you have a Mirena in place like me when diagnosed with breast cancer?
I was diagnosed with breast cancer 3.5 months ago and had a double mastectomy 3months ago. I am 44 years old. I started doing some research as a number of people I know with breast cancer who were young also had a Mirena. There is new research coming out of: -Europe that indicates that there is a 40% higher risk of breast cancer if you had a Mirena, and -Germany that shows that the Mirena can change hormone levels in the breast based on scans I had breast ultrasound scans that show I did not have breast cancer just before my Mirena was inserted 5 years ago, and that it developed post Mirena insertion. I had no genetic factors (based on testing), and no risk factors for breast cancer. It seems highly co-incidental. I also looked up the FDA documentation for Mirena approval and it states that "Spontaneous reports of breast cancer have been received during postmarketing experience with Mirena. Because spontaneous reports and voluntary and from a population of uncertain size, it is not possible to use postmarketing data to estimate the frequency or establish causal relationship to drug exposure..." I am keen to connect with other women who had a Mirena in place and then were diagnosed with breast cancer. If this is you, please respond to this post- I would love to hear your story!
Issue with chemo port surgery
Hi all, I've just recently had my chemo port installed after going through phase 1 of chemo taxol and carbo, for tnbc. I'm concerned as I think my surgeon forgot to stitch my 14 cm wound, I've had bleeding and from what I can see and the chemo nurses can see that there were no stitches, i dont know what to do..... I'm uncomfortable with male doctors and nurses so I've been avoiding the emergency room.... Seems like medical negligence...
Looking for nutrition/natural medicine recommendations
Hi all, Absolutely hating this journey to be honest. Single mum of two auDhd teens. It’s been hell. I’m angry and don’t feel I’ve accepted any part of this. I’m just recovering from double mastectomy and now waiting to see if I need chemo/herceptin. Waiting waiting forever waiting. That’s one of the worst parts. Anyway, just wondering if any of you know any good online nutritional medicine/naturopaths etc who use good evidence based practice to help me navigate through this **bleep** show? I start ovarian suppression and AIs next week, before going back for more surgery because my nipple is now on the banned list 🙄 Many thanks and all the love in the world to you all xxxxx
Heavy lifting after surgery
Hi all Im 17 days post bilateral mastectomy and recon. I have a 3 yr old and a 1 year old. My husband is doing all the lifting etc but today I forgot myself and picked up my 3 year old. I instantly remembered and went to sit down with her. Im not in any pain and nothing on the outside seems to be affected. has anyone done this and if so, what signs do I need to watch out for with messing up recovery? thank youBreast cancer has seen a rise in the diagnosis of young women - awareness is key! 🔑
Growing numbers of women are being diagnosed with breast cancer before the age of 40. While experts are not able to say for sure what is driving this, the impact is still notably huge on both the healthcare system and the real lives of real people. Finding breast cancer early gives you the best chance of effective treatment. Being breast aware at any age means knowing what’s normal for your body, so changes can be noticed sooner. Consider this your friendly reminder to #Know Yourself. Feel Yourself. , and that awareness and early detection are key. Don't be afraid to share the love and gently 'nudge' your close friends & family to be more breast aware ❤️ 👉 Learn how to perform a breast self-check at https://www.bcna.org.au/resources/screening-and-diagnosis/how-to-check-your-breasts 👉Watch the 9 news coverage of the issue here: https://www.facebook.com/reel/929813956177041❓ Are More Young Women Being Diagnosed with Breast Cancer?
💡 Did you know? Breast cancer is now the most common cause of cancer death in women aged 20–39. Around three women under 40 are diagnosed with breast cancer every day in Australia. The five-year survival rate for young women has improved dramatically from 76% to 90% in recent decades. Help make a difference by joining this powerful and timely conversation hosted by Breast Cancer Trials. 📅 Wednesday 12 November 🕔 5:00–6:30 PM AEDT (7:00–8:30 PM NZST) 📍 Online Q&A Event. Click here to find out more This free event brings together leading experts to explore the rising rates of breast cancer in younger women, the unique challenges they face, and what current research is uncovering. From fertility and early menopause to emotional wellbeing and career disruption, this is a space to learn, connect, and advocate for better support and care.💪Be your best advocate with your treating team
We've compiled the following lists of questions to help support you in preparing for those appointments where you might feel a little confused or overwhelmed. These questions are designed to help you on the path to having your voice heard during appointments with your treating team as you navigate a breast cancer diagnosis. If there are additional questions not there that you feel helped you, please comment it below so we can continue to grow our impact in empowering patient conversations ❤️ Communication Support Communication with your treating team: 🔎 Questions to Ask: DCIS Newly diagnosed (DCIS) Early Breast Cancer Newly diagnosed (early breast cancer) Treatment (early breast cancer) Finishing active treatment (early breast cancer) Breast Reconstruction Breast reconstruction – questions to ask a surgeon Metastatic Breast Cancer Metastatic breast cancer diagnosis Metastatic treatment and care team Stopping metastatic breast cancer treatment Community Support Young women diagnosed with breast cancer Men diagnosed with breast cancer Questions to get support for First Peoples Questions to get support in remote and rural areasBreast cancer has seen a rise in the diagnosis of young women - awareness is key! 🔑
Growing numbers of women are being diagnosed with breast cancer before the age of 40. While experts are not able to say for sure what is driving this, the impact is still notably huge on both the healthcare system and the real lives of real people. Finding breast cancer early gives you the best chance of effective treatment. Being breast aware at any age means knowing what’s normal for your body, so changes can be noticed sooner. Consider this your friendly reminder to #Know Yourself. Feel Yourself. , and that awareness and early detection are key. Don't be afraid to share the love and gently 'nudge' your close friends & family to be more breast aware ❤️ 👉 Learn how to perform a breast self-check at https://www.bcna.org.au/resources/screening-and-diagnosis/how-to-check-your-breasts 👉Watch the 9 news coverage of the issue here: https://www.facebook.com/reel/929813956177041
