Unsure about radiation after complete response after chemo & surgery for triple negative bc - Help
Hello ladies I'm 26 and earlier this year I was diagnosed with local advanced triple negative breast cancer. The cancer had spread to my lymph nodes so they got me started on chemo within 2 weeks of diagnose. I completed chemo in the end of September and just did my conservation breast surgery on the 5th of November & also had 3 lymph nodes removed. I had complete pathological response yay but the thing is is that they are still recommending radiation therapy. I feel very unsure about it because it kinda doesn't make sense to me. They want me to start radiation early January and I had an appointment with radiation oncologist today and kinda told him I was leaning more not to do it than to do it. He said that there is not enough data out there that tells it's safe not to do radiation when complete response has been achieved. Just hoping I can find someone in the same situation that had same type of cancer preferably but any suggestions/advise is welcome. Thank you and much love to you all.
Update on Nat SHE IS BREAST CANCER FREE
Chemo done :) Radiotherapy done :) first yearly check and mammogram done :) heart scan :) chest exray :) ct scan done :) results BREAST CANCER FREE yah!!!!! ( DOING A BIG HAPPY DANCE ) Now to fix the side effects :( dam it she was doing so well.. Had to push the docs to listen to me ugg As they all blame each other ugg well that is not going to help :( just fix it now off to the respiratory clinic for more test ugg at east they are helping.. Did anyone see Nat on channel 7 news on Sat it was a story for Canteen and bandanna day.. she is a tv star hahaha now she will be on 102.3 mix radio on Thursday gee her head wont fit in the door soon hahaha but this will help her hopefully get a job in supporting young women with breast cancer. Cheers Sue xx
Mepitel and radiotherapy
Hi, I was diagnosed with triple negative bc grade 3 last August. Have finished chemo and had double mastectomy and axillary clearance in February this year. I start radiotherapy on Monday and would like to hear from those who used Mepitel during their treatment. I am wanting to use it from the 1st treatment. Did you find it helped and how long until it had to be replaced? Could you still moisturise, use cool packs and creams/gels? Jodie
My First Blog
Hi I have Triple Negative Breast Cancer, Grade 3. I have had a Lumpectomy and now have to have Chemo and Radiation. I am okay with the Radiation but not sure on Chemo is anyone out there that has the same ????? Treatment is 3rd Generation Drugs Fluorouracil, Epirubicin, Cyclophosphamide and followed by Docetaxel. I really don't know what to do would love to hear from people who are in the same boat. I guess I am a little bit scared !!!!!!!
double mascetomy or not tnabc
i had triple negative agressive breast cancer last year, I have had chemo n radiation and finished treatment my port has remained in. I was told that the type i had can come back in other areas outside of the breast. Im wondering to have the double mascectomy and which way to go. Whether to have the flap, prosethis or what. Any feedback would be great please.
Positive but fearful at the same time
Hello I am 45yrs old and was diagnosed with triple negative early breast cancer in May, had a lumpectomy, 4 nodes removed with all 4 clear. I have started my chemo journey, due for my 2nd 3 weekly treatment next week. After 6 treatments I will start radiotherapy. It has been 2 weeks and after cutting my long hair short, I am starting to lose it. I have so much to learn but most pressing for me now is on my pathology report under grading it states 3BER. Does anyone know what BER means? It is a question I have listed to ask oncologist but if someone knows online in would be grateful to know. I lost my husband to cancer 2-1/2yrs ago, he was 40yrs of age. I have 2 beautiful children 12 & 14 who need me so there is no way I can lose this fight. I am pleased to have joined this network and hope to gain strength from the stories of real women going through their own journeys while supporting one another. Thank you.TNBC
Am keen to chat with others diagnosed with TNBC. I had lumpectomy & total lymph node clearance in April 2013 but also had spread to supra clavicular lymph nodes & pectoral muscle. I have had 13 of 16 chemo treatments and have 35 Radiotherapy sessions booked for Nov/Dec. Feeling rather overwhelmed by all the uncertainities especially as last CT showed ?" some spots on the liver" so waiting for rescan at the end of chemo. Also having skin rash problems especially on my arms and face - trying all the plain cremes QV, Sorbolene but no rel effect. Does anyone have any other bright ideas?
Radiotherapy and dizziness
Hi, my diagnosis was TN BC I just put a post up on the e general blog site, so not sure if I'm doubling up! I am in my fourth and final week of radiotherapy which is fantastic. However since the sixth treatment have been experiencing full on dizziness, had lots of tests for this which have come up clear. It is pretty distressing. Did/is anyone experiencing similar issue? Thanks, Tam.
Treatment options
Hi this is my first posting to the triple negative group. i am a 44 yr old mother of 3 who has just finished 6 rounds of chemo and 25 radiation treatments for stage 3 triple negative breast cancer. I elected to have a bilateral mastectomy. I have decided not to have reconstruction and would be interested in talking to other women that may have made the same decision. 16 of the removed lymph nodes were found to have cancer. I am wondering what treatment options others have found after they finished radiation. I think I would feel better if I knew there was something I could be doing, taking etc there is a funny emptiness after treatment stops. I haven't found my oncologist very forthcoming with information or advice and being a rural patient unless I want to travel I have no other choice but to continue with him. I traveled for radiation treatment and found the support offered at a bigger centre such an improvement.
Radiation is next
Friday 26th April Radiation starts with the markers - but first one is on May 20th, Nice break. I have a friend coming to visit. I only found out recently, believe it or not that the Stage word and the Grade were describing 2 different things. Crazy I know, I thought the Drs had mixed something up. So Im Grade 2, Stage 3, Grade indicates how aggressive it is, and the Stage is how far it has travelled. So much to take in, no wonder I was confused. Took awhile for me to work out I was Triple Neg too, no one told me I was, but all the information says I am! So hence all the chemo and radiation and no other weapons for me. I had my tumour removed, and the nodes, so Ive always thought I dont have breast cancer now, and mentally go with that. This is all just back up stuff. May as well be positive. Lost the usual 2 kgs, and my appetite is back. Day 6 and I had a coffee this morning. Im sure Im more positive because that was my last hit of Chemo, not having to do it again. My arm measurement was normal at the Physio, so the comp bandage and the basic massage Ive learnt is working (preventative). The movement is so important though, wow do my muscles let me know when Ive been lying around. Which reminds me, time to do a few stretches. Thats it for today! XX Bel