Can't stop thinking about bad outcomes
Newly diagnosed ++- and scheduled for lumpectomy in 2 weeks followed by radiation if all goes to plan. I'm having intrusive obsessive thoughts about death, particularly dying during the surgery and what my funeral will be like. It's non stop and exhausting and I'm neglecting everything else. I've put together an 'instruction manual' for my husband so he knows how to look after our autistic son properly. Are these thoughts premonitions or just underlying fear? I want it all to stop!
Not sure
I was diagnosed with invasive ductal BC stage 2 ER+PR a couple of weeks ago lymph nodes do not seem affected for now ( biopsy was negative). My breast are small and MRI showed ~4cm cancer. I was wondering if mastectomy + reconstruction and possibly no radiation therapy was better than lumpectomy + radiation. Not sure what to do🤔Breast cancer diagnosis- did you have a Mirena in place, like me?
I was diagnosed with breast cancer 3.5 months ago and had a double mastectomy 3months ago. I am 44 years old. I started doing some research as a number of people I know with breast cancer who were young also had a Mirena. There is new research coming out of: -Europe that indicates that there is a 40% higher risk of breast cancer if you had a Mirena, and -Germany that shows that the Mirena can change hormone levels in the breast based on scans I had breast ultrasound scans that show I did not have breast cancer just before my Mirena was inserted 5 years ago, and that it developed post Mirena insertion. I had no genetic factors (based on testing), and no risk factors for breast cancer. It seems highly co-incidental. I also looked up the FDA documentation for Mirena approval and it states that "Spontaneous reports of breast cancer have been received during postmarketing experience with Mirena. Because spontaneous reports and voluntary and from a population of uncertain size, it is not possible to use postmarketing data to estimate the frequency or establish causal relationship to drug exposure..." I am keen to connect with other women who had a Mirena in place and then were diagnosed with breast cancer. If this is you, please respond to this post- I would love to hear your story!Surgeon & Hospital Choices Melbourne
Hi, I am recently diagnosed with DCIS and 75 years old. I live in Melbourne and need to select a Surgeon and Hospital for either a Lumpectomy or mastectomy. Does anyone have experience with Cabrini or Epworth and also with the surgeons Sarah Kemp or Melanie Walker?
Reluctant about mastectomy
This is awesome that a supportive community like this is available. My mum was recently diagnosed with breast cancer. She has had an initial lumpectomy and now requiring a mastectomy. She's struggling to understand the necessity of undergoing this treatment due to being asymptomatic. I was wondering if any ladies here, particularly Cantonese-speaking were willing to share their experience in undergoing this type of surgery. I know my mum would appreciate talking on the phone to someone, if anyone is happy to share details or exchange emails. Thank you so much for your help in advance 🙏🏻 🙏🏻 🙏🏻 ☺️ Constance
I dont even know what my question is..
I got a lump out and thought nothing of it. The ultrasound and GP kind of indicated it was in the skin not the breast tissue. So when I got a call to go back to surgeon a little earlier, I thought they were just checking the wound care. Until they said its what it is and booked me in for another surgery (this week) and had MRI and CT and biopsy. On a referral it says possible IDC and DCIS. Im getting a call tomorrow and surgery Friday. GP told me the lymph nodes are positive. Its been a blur over Christmas. Will I ever think about something else or will it always be on my mind before bed and as and soon as I wake and every moment in between? I've 2 kids. Im scared.ER/PR+ HER2- invasive lobular
I’m a 47 yr old mum of one 6 yr old. I received my ER/PR+ HER2- invasive lobular cancer diagnosis this week. Due to strong family history (mum passed away at 62 in 2012 with triple negative BC- and her mother also passed away at similar age from BC type unknown as it was late 1970s) - my sister and I had started the process of having additional screening etc. My mammogram and Ultrasound in Jan this year was clear - MRI last month showed something- which following a core biopsy has revealed 3mm ER/PR+ HER2- invasive lobular cancer. As I was already under care of private breast surgeon due to wanting extra screening etc- I feel grateful to have already talked to her about surgery options and possible surgery week of 12th January. I went for genetic testing this week and now wait to see results. Am weighing up option of double mastectomy(and reconstruction) - though surgeon has advised its very early and very small so lumpectomy and sentinel node surgery is a very feasible option too. Followed by radiation therapy and tamoxifen. If I chose a mastectomy it may reduce my need for radiation and tamoxifen.
Radiotherapy side effects
Hello I began chemotherapy in April this year for triple negative breast cancer and 2 weeks ago I finished 13 cycles of chemo. I now can have a lumpectomy followed by 3 weeks of radiotherapy. Due to some side effects of radiotherapy, I was looking at my options of removing the whole breast which I then could avoid radiotherapy as both options have the same survival rate. I have had sarcoid of the lungs in past and lot of severe gerd pain which I’m on medication for recently due to chemo. Has anyone got any experience with longterm side effects from radiotherapy they could share? Thank you
Nerve Pain Management
Hello, I have recently been diagnosed with DCIS left breast for which I am 1 surgery done and another next week to clear further margins. I am struggling with the sensation in my nipple area for which I'm told is my nerves rejoining which can take up to 6 months to reform. I am finding the sensation extremely uncomfortable and am often in tears at the end of the day at the overstimulation of the area. I am wearing a bra 24/7 as a simple movement on my nipple is too much. I'm wondering if anyone has had success with anything natural as I ideally don't want to take any pharmaceutical medicines. Appreciate any guidance 😊
