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swisha's avatar
swisha
Member
8 hours ago

Another Re-Excision or Mastectomy?

Well, here I go again.  

I was diagnosed with DCIS in December.  It has been a long path, but I eventually had a double lumpectomy on my right breast on 26 March 2026.  A week later I was told that although they got clear margins, three of the margins on my largest lesion (4 cm) were less than 1mm.  So, I had a re-excision on 15 April to get wider margins.

I saw the surgeon this morning, who told me they found more disease and the new margins are still less than 1mm in two places.  I have to have more surgery next Wednesday but have to decide (by Friday) whether to have another re-excision (and my breast will be starting to look a bit sad after that) or go straight to a mastectomy.

She said it was quite feasible to try a re-excision again, to preserve the breast if I want to, but if they still find disease or don't get good clearances, then I have no choice but to have a mastectomy.

If I have the re-excision, I have to have radiation treatment for 3 weeks, 5 days a week afterwards.  If I have a mastectomy, then it's all done.  No radiation and no lymph node involvement.

Does anyone have any advice on what I should do / or want to share your story if you've had a similar experience?  I know it's my decision, but your advice is appreciated,  thank you.

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