Forum Discussion
swisha
4 months agoMember
Another Re-Excision or Mastectomy?
Note: this is all behind me now and I feel great. I had four surgeries in the end, the last being a mastectomy. Recovery was pretty easy and I now have my external prosthesis, and noone would even kn...
swisha
4 months agoMember
Hello, Thanks for your message. I hope you continue to recover well and have no issues. I am all set for my mastectomy next week. No regrets, we tried everything to save the boob 😁
motton
4 months agoMember
swisha sending you healing love for your journey ahead. You've absolutely got this!
- swisha4 months agoMember
Thank you motton. I certainly hope so. Today I am teary & anxious for the first time, it's 2 days out, and I am not worried about the surgery, I am worried about life afterward.
- Bren3 months agoMember
swisha Gosh you've gone thru a lot with all this surgery. May l ask how your mastectomy went, how you feel about how it looks, pain & recovery. I am facing a left breast mastectomy due to high grade DCIS & am super fearful. Hope you are doing ok 🤞
- swisha3 months agoMember
Hi Bren. It went well and I feel great. Not much pain after the surgery, as they put pain blockers in. The drain was a nuisance, but didn’t hurt. They give you a fabric bag to carry it around in, but I had made my own to use, as a cross body bag. I was in hospital for five nights, couldn’t go home until the drain was reducing less than 50 mils in a 24 hour period. I believe that public hospitals will often send you home with the drain in, and a nurse comes to visit your own, but I was in a private hospital. They were happy for me to stay there. I was very well looked after, the food was amazing, but I was ready to come home after those five nights. I wasn’t allowed to have a shower while the drain was in, just had to have a wash each day, and after about four days, my hair was disgusting, so they gave me this shower cap thing, that you just put over your hair and massage it through for a couple of minutes and then take it off. Towel dry and style your hair. They’re actually designed for people that are bedridden, to be able to wash their hair without water.So keep that in mind if you have the same situation, or just throw some dry shampoo into your toiletries bag.
I had a little bit more pain after the first couple of days, but it was really nothing to worry about. I’m two weeks out tomorrow, and I don’t feel that I’m very limited in doing things. I have been tired most afternoons and have had a lie down or a sleep a few times.
I’ve felt really good since I came home, I was given a little sort of horseshoe shape cushion in the hospital, and that’s been really, really good to help me sleep at night. I’ve only been taking a couple of Panadol maybe twice a day. And the pain is really nothing to worry about.
My scar looks pretty good, it was covered by dressings for the first week and now I still have Steri-Strips on, although they are falling off, a couple every day now.
Ive been walking most days, just 15-20 minutes, but I feel that’s enough for me right now.
I see my surgeon tomorrow for a wound check, as she didn’t want to remove the dressing last week because it was still fully intact, and had just been changed the day before at the hospital when they removed the drain (which didn’t hurt).
I don’t have any emotional or psychological issues looking at my scar, I didn’t have large breasts, but the left one does look a bit weird there on its own.
The Breast Care Nurse at the hospital gave me a soft prosthetic to use in my bra for the meantime, until I can be fitted for a proper prothesis, which can’t happen for about six weeks.
When I’m at home, I’m not bothering with putting that in my bra but when I go out, I do, and no one would ever know.
Best of luck for your surgery. Mine was DCIS as well, and I had low-grade, immediate grade and high grade. Luckily, after my fourth surgery, (the mastectomy), they got clearances, and my surgeon is confident that there is no more disease, and I don’t need to have any further treatment.
So I’m actually very lucky.
I don’t have an issue staying flat. Perhaps if I was young, and single, then I would have a reconstruction, but I’m quite happy the way I am.
My husband‘s also been very very supportive. Before I had it done, I thought I would be hiding myself from him when I came home, wearing T-shirts to bed or whatever, but I’m really not, and I’m quite open about showing him my scar and letting him touch it if he wants to, (not in a sexual way ha ha)!
Best of luck … you’ve got this!!
- arpie4 months agoMember
Wishing you all the best swisha xx.
I was a MESS leading up to my own surgery 8 years ago (it was really just watching my husband and brother walking away, I think!) ..... but as soon as I got to my room, I settled down - and once the surgery was done (and I was FINE) I was just SO GLAD to have that puppy OUT OF THERE!!
Your life afterward, once you have finished your active treatment will be fine too xx Just don't do any heavy lifting for some weeks (your surgeon will advise when you can!). So no hanging out washing, picking up the grandkids or doing the washing .... even getting pans out of cupboards can be problematic at the start. Just take it easy. No mowing, either!!
After your surgery, Contact Otis Foundation (https://www.otisfoundation.org.au/donated-properties) and start applying for a few days away with the family (or friends!) as a great break & also a reward for what you've been thru. It can take a few months to arrange a suitable booking. I did one last year with my brothers & partners & it was fabulous. They've opened up interstate visits again too - so if you can get there .... you can try somewhere NEW!
Make haste slowly and all the best xx - motton4 months agoMember
🤗 sending you a virtual hug....it's a very trying time in the emotions department and you need to be gentle on yourself as I'm sure they will appear over the course of your healing. Focus on getting through little steps as the whole journey thoughts can knock you around. You may find a whole new appreciation for yourself and your strength. Here for a chat anytime 💕