First chemo!
Hi everyone! I had my first chemo session today, starting with AC. Though I was warned and given a strong anti-nausea tablet before they started, I was absolutely not prepared for the crippling nausea that has ensued! I was fine throughout the treatment but on the way home it got worse and I've had waves that have had me over the toilet, sweating and gagging (but no actual vomit yet!). I have taken emexlon which seems to work for about 5 minutes and then the relief wears off. If it continues I will of course bring it up with my team but in the meantime, does anybody have any home remedies that have helped keep the nausea at bay? Stay strong team! X541Views0likes35CommentsHot flushes on Tamoxifen
Hello. Newby here. Just wondering if you could advise me. I have been on Tamoxifen for 8 months now and have been putting up with those pesky hot flushes at least 20 times in 24 hours. Started taking Evening Primrose Oil 1000mg three times a day. Not one to put too much faith in these types of remedies but the symptoms eased considerably. This lasted a few weeks and now back flushing away all be it possibly to a lesser frequency. Any other things you could suggest??? thanks82Views0likes7CommentsHot flush and nausea
I have done the search thing here with no result. Surely I am not the only one. Every time I get a hot flush I feel nauseous. Not enough to puke, just churningstomach and feel feverish (but I don’t have a high temp). I also feel like this anytime my body feels overheated. I certainly didn’t feel like this pre BC. I am not on hormone tablets. Herceptin finished four months ago. By logical thinking I should be improving. My doctor just says hmmmm. Anybody else or am I just weird? Maybe I shouldn’t have asked that last question!231Views0likes15CommentsTrailwire study about hot flushes...
OK someone sent me this knowing I am BC survivor I am not on AI but https://www.geomap-clinicaltrialfinder.com/nct03518138-au-hot-flushes/?fbclid=IwAR1VazAVmQ4InTY8fNBiLKNndKmvBZb6ByZCcbuAfu54l0DpPsgQy1tXyhM https://www.trialwirecontact.com/hot-flashes-au-usa/ I thought some of you might be interested I have put the link here that is the quoted page I have copied below for you as it has the hosptials conducting the trials.. Here are the participating clinics in Australia. Please choose your preferred or nearest.* SYDNEY Women’s Health and Research Institute of Australia SYDNEY Royal North Shore Hospital MELBOURNE School of Public Health and Preventive Medicine MELBOURNE The Royal Womens Hospital PERTH, NedlandS, Sir Charles Gairdner Hospital ADELAIDE Royal Adelaide Hospital HOT FLASHES STUDY (NCT03518138 AU USA) You can register your interest in this breast cancer and hot flashes study here, and get a call back from the Study Coordinator (NCT03518138 AU USA) There was a problem with your submission. Errors have been highlighted below. Firstly, would you like the link for this study information? Yes please send me the link so I can share with friends or my medical specialist Eligibility check - Please check the following applies to you (source ClincalTrials.Gov) Be a female, aged between 18 - 70 years on the day of informed consent Have a history of or current breast cancer and currently taking tamoxifen or an aromatase inhibitor On a stable dose of TAM or an AI for a minimum of 30 days before the Screening Visit and no anticipated need to change the dose for the duration of the study Experience an average of at least 50 moderate to severe hot flashes/week for the 2 weeks immediately preceding the Run-In Visit (i.e., during the Screening period). If on thyroid medication, on a stable dose for a minimum of 30 days before the Screening Visit and no anticipated need to change the dose for the duration of the study If taking an SSRI or SNRI, on a stable dose for a minimum of 30 days before the Screening Visit and no anticipated need to change the dose for the duration of the study Willing and able to complete the daily participant diary, attend all study visits, and participate in all study procedures Able to provide informed consent I have checked the eligibility criteria* Confirmed This field is required. Let's find your nearest participating clinic.* See the participating clinics in the UNITED STATES See the participating clinics in AUSTRALIA Here are the participating clinics in Australia. Please choose your preferred or nearest.* SYDNEY Women’s Health and Research Institute of Australia SYDNEY Royal North Shore Hospital MELBOURNE School of Public Health and Preventive Medicine MELBOURNE The Royal Womens Hospital PERTH, NedlandS, Sir Charles Gairdner Hospital ADELAIDE Royal Adelaide Hospital Please note: These are all HREC registered and approved participating hospitals and clinics. When is the best time to contact you?* Morning? Afternoon? Before or after work? During work hours? Your name* Your name and contact details will ONLY be sent to the clinic team. Your email* (Please always check your junk folder if you don't get an email back from the Study Coordinator) Do you want the clinic contact details also?* Yes please No thanks TECHNICAL SUPPORT If you are having technical problems, please contact us at Team@Trial-Wire.com131Views0likes4CommentsHot Flushes
Melbourne based trial (Royal Women's Hospital) on treatment for hot flushes, for anyone interested. https://studies.trialfacts.com/TF91-melbourne-breast-cancer-new-potential-VMS-treatment-research-study-RWH?fbclid=IwAR2y7KnW2PaZD8WEcUVZ5kH8bVj5kVJrv37yKeUCEOw762VI0wqRz3McJ5A321Views0likes16CommentsChills at night
I completed chemo on the last day of 2018, finished radiotherapy in March and had a bilateral mastectomy with DIEP reconstruction 3.5 weeks ago. I’m will be on hormone treatments for 10 years (I was diagnosed at 40). Just about every night in the last week, I have been waking up shivering, as if my foobs are freezing. I also get hot flushes, but it this is mostly manageable. Would the chills be the body’s reaction to the surgery I’ve had? I don’t have a temperature. thanks62Views0likes2CommentsNight sweats sleep remedies help!!
Hi all, Just finished AC started night sweats kicked in full swing even before Taxol and herceptin. Every night for weeks. I can see this will be permanent and i will go mental. As not able to sleep even when not an inferno Does anyone know of anything that might help, remedies,herbals, alernative therapies, teas, ive read about black cohosh for example.anything would be appreciated 😊221Views0likes16CommentsHot flushes
Hi there - for the last two years during and after menopause I have had the worst hot flushes at night. Cover on cover off all night, even to having a towel with me. BUT since the two DCIS's have been removed - nothing! zippo. Even my brain has had the fog lift, no PMS'y feelings. Has anyone else noticed that? have looked it up but couldn't find anything, if at all its been the other way. Julie.681Views1like30CommentsLetrozole side effects
Last monday at the age of 52 i started my daily dose of Letrozole. Fast forward 7 days and i feel like ive aged 30 years. Every bone & joint hurts, even bones in my face hurt ! My Oncologist said she was concerned i may not do well on letrozole given my pain in recent months (none of which i had before BC). Should I stop? Will it get better or worse. Cant sit on the loo without screeching from pain in my knees. I want my old self back and i want it now 😡1.1KViews0likes18Comments