Her2 positive.
Hello! I was diagnosed 5 months ago now with Her2 positive in 15 lymph nodes (22 removed). Although no lump showed up in my breast I had a right mastectomy and the axillary node clearance. Tomorrow I am due to have my 6th and final EC dose (3 weekly intervals) before starting on Taxol weekly with Herceptin being added on the second dose. Have handled the treatment quite well for my age (67) which is why my Oncologist recommended 6 treatments instead of 4. Apart from the week of what I call my 'battery gone flat' all has been ok as long as I prepare around this week and rest when I have to. Has anyone out there had similar to me and would love to hear how it all went. My treatment will be ongoing for some time with radiation then Herceptin as the final treatment. Many thanks.
Triple Positive HER2+
Hi everyone BCNA Online Network established a Group with Triple Positive breast cancer which is useful also for people who might be HER2+ but not positive for oestrogen or progesterone. This post is also to alert previously accepted Triple Positive Group members: you might not have been automatically transferred across to the Triple Positive Group with the recent upgrade to the new BCNA Network site. Please do request to rejoin the Group (I did)! Ned01CheriSukiCheriAnna15FeRnurserachMareealsoTriplebreast240Number2CaitySXC1947
I think I am reading too much :(
Morning everyone. I am reasonably new to this cancer world and still in the overwhelmed stage. I had a right breast mastectomy on NYE and the pathology report showed nothing in lymph nodes, but small invasive cancer in breast tissue. I am oestrogen and HER2 positive. I had first of 12 weekly paclitaxel chemo treatments on Wednesday. I started Herceptin last week (every 3 weds for 12 months) and will start goserelin (zoladex) next week (every 4 weeks for 5 years). I have been reading so much from this site and others and have delved into various posts on this forum and what I'm reading is making me feel quite low. The side effects that you are all experiencing on the hormone suppressant drugs read like a horror movie. It makes me wonder if it is worth it before I've even begun. I am 46 and until BC hit I was playing competitive sport 3 times a week, walking 5km a day and teaching full time. With all my reading I now fear that in a few months I'll have the body and mind of an 80 yr old and I'm not coping with that. I know it is different for everyone, but I've not heard anyone say that that the side effects aren't bad or that they have been able to continue their lives as before. I'm already grieving for the life I used to have and I'm struggling. I am usually so positive. I'm definitely not doom and gloom, but today is not a good one for me. Not sure what I am expecting people to say, I just needed to get it out. Thanks for listening x
35 y/o and diagnosed with HER2 positive breast Cancer
Hello, I am new on this online discussion thread but I find it very encouraging. Here it goes.. Is anyone out there who is HER2 positive who is the same age range like me? I just got got diagnosed on the 25th of Nov and I just cried my hearts out because I cant believe that its me. But of course cancer doesnt choose right it just does what it does. The thing is I am a nurse by profession and to read my pathology report I cant believe that what I am reading is my own result not someone else which I am used to doing. Then I started blaming myself because I was not proactive on my health management when I went to GP. She told me its nothing and did not even perform a biopsy which I should have insisted. Backtracking I felt the lump 10weeks ago before I was officially diagnosed and everything was pretty full on after that in terms of the treatment. Right now, I am crying again because I am scared. You see I have two kids a 3y/o and a 1y/o. I cry for the future. I really wanted to beat this cancer. I want to build more memories with the bubs because you know they are still to young to remember me if God decided to take me...
Chemo almost done...next is surgery. Hair growth questions.
Hi all, it's been a little while, hope you all doing well and this year brings you all good health and happiness. I am almost done with my chemo (AC and 12 weeks paclitaxel, 4 perjeta and another one (not sure of name), 2 more infusions of paclitaxel. Did anyone find bits of fluffy hair starting to grow already? I don't want to get too excited but am starting to notice some growth. Anxious and excited about my appointment tomorrow with the surgeon to discuss surgery options and how the tumors have responded to the chemo. Any advice would be appreciated. Still awaiting genetic testing results. Now the fun part. We have a family wedding in October this year and some other events and I am very excited for my hair to start growing. Any tips or advice. Scalp treatment or oils etc vitamins. Should I have a shave after chemo so the hair grows evenly and also what kind of length can I expect in 6 months or so. How did you hair grow? Lastly. If anyone is based in Sydney and would want to meet for a chat, support, pray , let me know. Would love to meet some ladies, we can encourage each other. Can direct message me if you like. Thanks and look forward to hearing your progress xxx
Her2 diagnosis.
Diagnosed in Sept 2016, mastectomy and 4 rounds of chemotherapy every 3 weeks, followed by a further chemo every week for 12 weeks. This was a 'nicer/kinder' dose with fewer side effects. Although every week was pretty full on. Found it hard to see the 'light at the end of the tunnel" when I started this. Amongst that was 17 doses of Herceptin - these were 3 weeks apart. After about 13 months it was finally all done. I am feeling back to my normal self physically - doing lots of walking/jogging with a friend several times a week and this has been amazing. Mentally pretty good but I do worry that being diagnosed with Her2 might be the undoing. Anyone else out there with a similar diagnosis. I am also on Letrozole as I'm oestrogen positive. Tiniest bit in one lymph node - so I tell myself I am lymph node clear... ;) Stage 3 - which I wonder is that because it was Her2 which makes the cells grow quickly?? I am 47.
Thank you for this online forum
Hi everyone. I was diagnosed late June/ early July and had my first chemo treatment on August 1st - docetaxol/ carboplatin/ herceptin/ perjeta- yes Im all the positives! I just wanted to say thank you to everyone who has posted in the past as I found searching for side effects in this online community very helpful. It’s all very overwhelming and knowing that others have had a sudden runny nose and a cough a week after treatment was extremely reassuring. So again - Thank you all!
Good news for some .................new drug
NERLYNX^® (neratinib) now approved by the Therapeutic Goods Administration for Australian women^2 · Leading Australian breast cancer oncologist says this is a 'huge step forward' for Australian women · Five-year data shows NERLYNX reduces the risk of invasive disease recurrence or death by 42% in women with early-stage, HER2+/HR+ breast cancer^3 · NERLYNX now available to eligible women at no cost in Australia via the NERLYNX Access Program The drug, NERLYNX (neratinib) is an oral medication taken for 12 months by women with early stage HER2-positive (HER2+) breast cancer. It is now TGA approved with the following indication: *"NERLYNX is indicated for the extended adjuvant treatment of adult patients with early-stage HER2-overexpressed/amplified breast cancer, to follow adjuvant trastuzumab based therapy."^2* The greatest benefit is seen in women who are hormone-receptor positive (HR+) and who initiate NERLYNX therapy within 12 months of completing trastuzumab based therapy. Their five-year risk of recurrence or death is reduced by 42% after completing 12 months of NERLYNX therapy.^3
