Bayside Melbourne
Hi everyone, Just diagnosed sadly. It's a little lump so this whole situation should just end up a another campfire story. Hopefully. My family has never experienced anything to do with the big C word. It's very foreign to any of us and I was just wondering if there is any one base I'd Melbourne who was experiencing the same thing? If so it would be really nice to meet up for a coffee or something and just chat about what's to come next. Love and hope, Sim x91ViewsSign in to react to this post4Comments
Dbl or single masectomy? public health
Hi, ive been diagnosed with dcis in left breast Aug 2026, but breast specialist says likely invasive too as its large, will need masectomy and probably need radiotherapy after too. Right has shown something of concern but cant get in for a biopsi via mri for 2 weeks but need to make decision asap as they want left off. Do i get left off and wait for right biopsi results, or get both off now? If i get right off without mri they say unlikely to get sentinol node biopsi done too yet i saw a private reconstruction specialist who has recomended both the sentinol nodes to be biopsied during bi lat masectomy and has helped inform my decison for a dble masectomy in terms of reconstruction outcomes, individual risk factors etc. I know if the results come back invasive cancer in right it will be hard to do biopsi of sentinol node and likely need all nodes stripped which can lead to lymphodema and those issues. Amyone else have any ideas? Public system challenges?ViewsSign in to react to this postCommentsScared of Magseed procedure
Hi all, so I need to have Magseed inserted in my breast prior to surgery and I am petrified, as I always am with procedures and needless, etc. I just don't cope well with them. I was told it's similar to needle biopsy, which I had, but that still doesn't make me feel any better. Can someone shed some light and help me relieve my anxiety as I am absolutely petrified. Thank you ❤️ViewsSign in to react to this postComments
Microcalcification biopsy
I was wondering if anyone here has experience with microcalcifications? In particular, whether they've been biopsied and if so, how many times? And have you had an MRI or other imaging to help understand the microcalcifications? I'm curious because I had microcalcifications show up in my other breast from my first mammogram a year ago. Two core biopsies were taken but a clip/marker wasn't inserted. The diagnosis was: benign proliferative changes. I've now had my second mammogram and they want to do another biopsy and insert a clip. They haven't said if anything has actually changed in that part of my breast in the past year. My surgeon is going to ask the imaging place for more information so I understand what's going on. I'm surprised that they want another biopsy so soon and seemingly without any change. I don't know if that's normal and whether that will be the case for the years to come?!ViewsSign in to react to this postComments
Brie321
Hi recently I had my first yearly mammogram following lumpectomy and radiation for stage one IDC. Unfortunately the radiologist found calcifications. I was therefore referred for a vacuum assisted biopsy via mammogram. This was done 3 weeks after finding the calcifications it was difficult to find a radiologist to carry this out. The night of the biopsy I had a major bleed into the breast. I was admitted to hospital for 3 days and no treatment given. Both the doctors in the ER and my breast surgeon stated they hadn't seen anything like this before. Now 3 weeks later I have 3 large haematomas in my breast and I cannot proceed with the lumpectomy my surgeon wants to carry out on the the intermediate grade dcis I was diagnosed with. My dilemma is do I ask the surgeon to evacuate the clots. My breast is so deformed and heavy it would be a relief to do something about it. My surgeon is seeking advice from colleagues. I think if I wait for it to absorb it will take a very long time. Has anyone else gone through this. I have a lot of pressure in the breast and concerned what it might do to underlying tissue.. Thanks for reading this far.ViewsSign in to react to this postComments
Inquiry
Had left hand side mastectomy with sentinel lymph biopsy 3 weeks ago and results showed 4mm on the node and dcis 19mm and invasive ca 22mm found hence surgeon suggested axillary clearance which i have done a last week and still recovering. I dont get enough sleep as i kept waking up in the middle of the night. I have not book my post review as still processing all the information.ViewsSign in to react to this postComments
Feeling angry
I have recently been diagnosed and had a lumpectomy last Thursday. I’m feel fine not overly sore but tired. Mine was picked up on a mammograms so early and I’m very grateful and know how lucky I am. I’m ok with diagnosis 1 in 7 my turn. The issue is I’ve been through so much recently and I’m finding myself angry. Well the last 2 days. 2 knee replacements, fibromyalgia, depression, late adhd diagnosis at 62, mum with dementia I’ve had to put into care, I sold her house without her knowing which is heart breaking - no help from siblings and that just this year. Lol. I had a breakdown a few years ago through work, got divorced, my dog died and I burnt my nachos the other day. A bit of light relief. There is more but that will do. I’m exhausted keeping a lid on everything. I’ve spoken to my psychologist who suggested Emdr. I’m by myself and just so angry. My kids have their own lives and basically my safe place is my home (with a massive mortgage) and my dogs. I had started a wonderful new business but have had to put that on hold until I find out what happens next. Which is next Monday. This is not a why me post it’s a is it normal to be angry. Not all the time but it’s scathing and my dogs have heard some words that I have never mentioned before. I’m not really good at asking for help. And was disappointed with the support I received with my knee replacements so reluctant to go through that rejection again. I think maybe it’s the lack of control, not knowing where we go from here. Again I know how lucky I am and whatever treatment (looks like radiation and hormone therapy and possibly another op and chemo if it’s travelled) I will gladly do and be thankful. I guess I’m just bewildered and have no idea what’s normal and whats not. And if I’ve honest I’m teary too. Ok I feel lonely and unsupported as well.ViewsSign in to react to this postComments
Newly diagnosed
Hi all, I have received a diagnosis of DCIS, I was told on Friday, and now I need another biopsy before we work out the best way forward, obviously the two options are mastectomy or lumpectomy, my concern is I can’t have this other biopsy for 3weeks, I feel overwhelmed, I was also diagnosed with Multiple Sclerosis this time last year, and I am a hairdresser, so I’m finding work a struggle and I’m wondering what I should expect with the recovery if I have a mastectomy and reconstruction vs lumpectomy and radiation? I would love to hear if anyone has experience any restrictions as a hairdresser getting back to work after a mastectomy? After my MS diagnosis I had to cut my business in half because of fatigue, now I’m concerned that I won’t have a business left after this if I can’t work for a while 😢ViewsSign in to react to this postCommentsMy first post
Hello lovely ladies, First time mammogram identified the need for a 3D mammogram, then ultrasound & biopsy in my left breast. All via Breast Screen Victoria. Biopsy showed 18 x 17 x 5mm 'high grade DCIS' (clinical notes on 21/3). As I'm in the public system I'm now waiting on having a MRI. My question though relates to the paperwork saying 'E-Cadherin stain and hormone receptors to follow'. Its been 16 days since the biopsy was reported on. How do I receive or who gives me these 'E-Cadherin stain and hormone receptor' results? Should it be via Breast Screen Victoria? Am I meant to chase them up myself?ViewsSign in to react to this postCommentsDifficult to organize a biopsy
A week ago I had a CT scan of the chest due to being out of breath. It was thought to be a problem with my lungs though I have no cough and don't smoke. The scan showed a 3.7 cm calcified elongated mass in the right breast tissue. It also showed scattered ground glass densities. Sometimes this can indicate metastatic breast cancer. I've read that a mass that is elongated should be investigated, and 3.7 cm is quite large. As well, both my mother and grandmother had breast cancer after menopause. The type in both cases was slow growing and didn't kill either of them. I asked the GP if I could get a guided needle aspiration biopsy. She gave me a referral. Wouldn't you think such a thing is urgent? I rang the imaging centre where the CT scan was done, in a town a half hour drive away, and they had several weeks' wait. I tried every centre in Canberra and they all had a wait between several weeks and several months. Wouldn't this mean the difference between treatable cancer, and one that has got away to the point that it's terminal? I thought even a week's delay could be dangerous? I finally found a place near Wollongong that can do the biopsy in two weeks' time. I'll need to drive three hours to get there. I'm just horrified that it's so difficult to get a biopsy of a suspicious lump. Has anyone else had this experience?ViewsSign in to react to this postComments
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