Forum Discussion

yoda's avatar
yoda
Member
20 days ago

My first post

Hello lovely ladies,  First time mammogram identified the need for a 3D mammogram, then ultrasound & biopsy in my left breast. All via Breast Screen Victoria. Biopsy showed 18 x 17 x 5mm 'high grade DCIS' (clinical notes on 21/3). 

As I'm in the public system I'm now waiting on having a MRI.  My question though relates to the paperwork saying 'E-Cadherin stain and hormone receptors to follow'.   Its been 16 days since the biopsy was reported on.  How do I receive or who gives me these 'E-Cadherin stain and hormone receptor' results? Should it be via Breast Screen Victoria? Am I meant to chase them up myself?

anxiety
biopsy

3 Replies

  • Millymonster's avatar
    Millymonster
    Member
    19 days ago

    My Biopsy results didnt end up in my health records but i got a copy through my GP(not diagnosised through a breastscreen), When I visited the Hospitial Physio and BCN (before Surgery) in my home town they didnt have record of the pathology either. My wait in the public system has been very long so I manage by finding results where I can.😆 Im on the count down for surgery now- 16 more days....

  • Christina_BCNA's avatar
    Christina_BCNA
    Community Manager
    19 days ago

    Hi yoda​ , welcome to our community, though I am sorry to hear of your recent DCIS diagnosis. Our understanding of BreastScreen Victoria's process is that they would receive these results and share them with you in a follow up appointment within 2 weeks. However if your GP ordered this test, then they will likely be the one to receive the results. If you're not sure how it was ordered, I would recommend calling BreastScreen Victoria to see if they received your report as the best next step - you can contact them on 13 20 50. 

  • Moomincorn's avatar
    Moomincorn
    Member
    19 days ago

    Hi yoda​ - I'm sorry to hear of your diagnosis.

    I didn't go down the Breast Screen path so hopefully someone who has will respond soon.

    In my case my biopsy results went to my GP who explained them to me and then referred me to a surgeon. When I saw the surgeon, he had received the updated report with more detail to help guide the next steps. 

    Do you have a GP or Breast Care Nurse to contact to ask if the updated report is ready? 

    Or do you use My Health Record? I hadn't used it previously but set it up when I was diagnosed and found it helpful to know when reports had arrived (though the reports are sometimes locked until seeing a medical person).