My first post
Hello lovely ladies, First time mammogram identified the need for a 3D mammogram, then ultrasound & biopsy in my left breast. All via Breast Screen Victoria. Biopsy showed 18 x 17 x 5mm 'high grade DCIS' (clinical notes on 21/3). As I'm in the public system I'm now waiting on having a MRI. My question though relates to the paperwork saying 'E-Cadherin stain and hormone receptors to follow'. Its been 16 days since the biopsy was reported on. How do I receive or who gives me these 'E-Cadherin stain and hormone receptor' results? Should it be via Breast Screen Victoria? Am I meant to chase them up myself?
2nd operation DCIS
Hi all, Was diagnosed in Feb this year with high grade DCIS, 3 small tumours. Lumpectomy 3 weeks ago. Pathology report came up with not clean edges. The surgeon said I have two options, do another re-excision with most likely radiotherapy and endocrine therapy, or mastectomy. I have a family history of breast cancer. Has anyone been through this desición before? What was your experience like? outcomes? Thanks for sharing
Diagnosed Today
Hi all, I'm new here. I'm 48. I had my last Mammogram in November 2022, and was due for my next December 7th....however.... I went to the GP in November after feeling a breast lump for 10 days which I was hoping was hormonal. It didn't go away so I got it checked. GP didn't seem concerned but she appreciated that I was and ordered mammogram & ultrasound. Appointment was in 2 weeks. On Wednesday 4/12 I had the scans, the mammogram lady went quiet, later with the sonographer I said 'I'm just not sure if it's in my head or if I'm being hyper-vigilant' He said 'I'd say you're being the right amount of vigilant', then told me he would go and get the Dr who would need to check me. The Dr started telling me that I'll need a biopsy and that the statistics in Australia in particular are very successful for treating breast cancer. He went on to say that he'll get his report to my GP straight away and if we decide to use them for biopsy they'll get me in straight away and to contact my GP. So I drove home and on my way I stopped at the GP, the receptionist could not get me in till the next day to see the GP. I left in tears and went home. I decided to do some work and 2hrs later I got a call to say the GP wanted to see me immediately. I drove back and saw the GP who gave me a referral for urgent biopsy. I went straight to the local ultrasound place to see if they could book me an appointment at their sister site, that I attended earlier that day. They said they'd need to speak to their Dr and would call me. Within an hour they called me, and said their Dr would come to my local clinic and do the biopsies there for me the very next day, saving me the 45minute drive. Thursday 5/12 I had the biopsies of my breast and lymph node done. That was pretty smooth sailing and the Dr said he didn't want me waiting a week at the other clinic so came up here especially for me. All the staff were SO lovely and I'm eternally grateful for their care and concern - however the urgency is absolutely scared the crap out of me 🫣 Today 10/12 I got my biopsy results and am officially diagnosed with Breast Cancer. No idea what most of it means but basically 👻 Invasive Carcinoma NST; and 🐝 Metastatic Adenocarcinoma 🍃 ER/PR Positive 🍂 HER2 Positive (Amplified) An hour after j left the GP, the local Cancer Centre phoned me, so I have: Medical Oncologist Appt: next Monday Radiology Oncologist Appt: next Thursday I don't understand what NST means, and it wasn't staged on pathology...is that usual? I haven't told my children, and am hoping to hold off till after sons' birthday and grandsons first Christmas. One thing I have to say is that I am SO incredibly grateful for the swiftness of care I've received and am receiving. It's a crappy club to be a part of 😭 but I look forward to 'meeting' you all xx
My ALND was a bust..
Hi everyone, this is my first time posting. I discovered my lump in late May while breastfeeding my bub, and am now two weeks post surgery for hormone positive breast cancer. Not the clogged duct I had originally assumed it was. It’s been an awful shock, as I know everyone will understand. So, I have just had a lumpectomy, a LICAP reconstruction on the boob, and level 2 axillary clearance. I’m looking for advice from those who have had an axillary lymph node dissection. I just had my post-op and it was a real mixed bag. Breast cancer out with clear margins (great) BUT seven nodes removed and … none cancerous. While that sounds like great news the problem is that they had biopsied one suspicious node prior to surgery and it had come back positive. So it appears that this positive node was missed. I’m now headed for a second surgery. My question is - for those of you who have undergone ALND- is it normal that they didn’t mark my positive node in any way so they knew where it was during the biopsy or prior to surgery? The doctors are saying they will mark it for the second surgery with magseed and it seems completely ridiculous to me that this wasn’t done initially, when my breast tumor (which was palpable so very obvious) was marked during biopsy. It just seems very slap dash to presume you don’t need to mark as you’re taking everything out anyway. I am wondering whether not marking or targeting when a clearance is planned is just normal procedure and I should just roll with this situation, or whether my hospital or perhaps the surgeon has not done something they probably should have ie mark the cancerous node. I have an appointment on Friday with the surgeon, and I feel knowing others experiences prior to that conversation will give me some peace of mind, or perhaps the gumption to at least push for a second biopsy alongside the magseed. I want to be really sure this time that they are targeting and marking the right node before I go for another surgery. Any shared experiences or thoughts from those who have walked this road ahead of me is appreciated. You are all so brave. This whole situation is very frightening.
Here's to all the test's we have to have - a wee jingle I made up - cause well we have to find some
So as some of you may know I'm still going through my second round of breast cancer, and still under going all these tests that my medical have put me though, today I chose to go through my I-Med radiology app to look over how many different producers I've been booked for, and gone through, and I came up with this wee jingle I could turn this into a new version of a Christmas song : you know the one “On the first day of Christmas my true love gave to me “ Well in here goes this wee tune "On my second cancer diagnosis my medical team gave to me " 4 cannula’s into the veins for all the contrast dies 3 breast ultrasounds 3 biopsy ( one double, one triple, then a single ) 3 mammograms 2 MRI’s 1 PET Scan 1 MRI guided biopsy 1 genetic test for family history And still no surgery Now tell me you just didn’t sing that tune in your head hopefully that put a smile on your dial , as we try to stay positive and support one another this October, breast cancer awareness month Happy Saturday every one hopefully my medical team will soon know when they want to do the surgery ???Newly diagnosed
Hello I'm newly diagnosed as of last week,I see my surgeon this coming Tuesday. My head is still spinning with my diagnosis.Ive started to write down questions for my surgeon but its so hard to no where to start with it all . Any suggestions of information I may need would be greatly appreciated.. Sending love to all 💖
Biopsies and MG
Hello my friendly support friends, it’s me again! sorry, this maybe a silly question and it’s actually standard procedure I will be having biopsies on 02 Aug. it’s going to be core biopsies (both breasts). My breast care nurse tells me after the core biopsies, they will be doing MG ( same day). I thought the breasts would be sore after biopsies and it wouldn’t be fun to be put through the photocopy machine? Is this ‘normal’? p.s. I had US and MG done on 14 July already.
